Oregon · Nonprofit
HALEY'S HEROES FOUNDATION
HALEY'S HEROES FOUNDATION (Oregon) receives grants from 4 organizations whose IRS filings report $33,832 to it, the largest being NETWORK FOR GOOD ($22,201). 2 of them have funded it in more than one year, and 67% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $20k
- Funders on record
- 4
- Grants received
- $34k
- Net assets
- $342k
What Haley's Heroes Foundation does
Mission
To bring awareness and finding a cure for batten disease. To lead research teams and evaluate the effectiveness of gene therapy at preventing, curing, slowing and reducing symptoms of cln1.
As stated on its FY2025 Form 990-EZ.
Program
In the next 10 years, we will extend our efforts to research and evaluate regenerative therapy for improvement of symptoms for those affected by all variants of batten disease. And in the next 15 years, we will research and evaluate the effectiveness of any and all potential treatments, therapies and cures for all variants of batten disease. Ultimately, all victims of batten disease will receive or benefit from foundation influenced care and developments to have symptom slowing, symptom termination, symptom reversal, cure and/or prevention. We will see 1) fda approval for batten disease therapy clinical trials 2) clinical success for haley and other children 3) scientific advances beyond batten disease.
$87,934 spentof which $87,934 as grants100% of program spending
The program described on its FY2025 Form 990-EZ. Program spending in total: $87,934.
The organization over time
Each line starts at 100 in 2021, so what you read is the shape rather than the size: 150 means half as much again as 2021, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $71k to $418k (+489%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
78% of HALEY'S HEROES FOUNDATION’s revenue is contributions — about as donation-reliant as the typical peer (100% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 5 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Board chair
Dean Pollman
Chairman of the board
As listed on its FY2025 Form 990-EZ.
Who funds it, year by year
2019 → 2023: the base broadened from 1 funder to 3 funders, grant income rose $1k → $19k.
2 of 4 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 67% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of HALEY'S HEROES FOUNDATION’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
HALEY'S HEROES FOUNDATION leans on a few funders — its largest provides 66% of grant income and the top three 98%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
97% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund HALEY'S HEROES FOUNDATION.
Largest funder’s share by year: 2019 100% · 2021 100% · 2022 98% · 2023 52% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
67% of HALEY'S HEROES FOUNDATION's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $11k that is directly attributable, 91% of it comes from funders outside Oregon, across 2 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $23k arriving through sponsors registered in 2 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
HALEY'S HEROES FOUNDATION's revenue fell 76% between 2021 and 2025.
this organization peer median middle 50% of peers· 6,360 health nonprofits under $100k, FY2025
Organizations like HALEY'S HEROES FOUNDATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Oregon
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for HALEY'S HEROES FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds HALEY'S HEROES FOUNDATION?
- HALEY'S HEROES FOUNDATION (Oregon) receives grants from 4 organizations whose IRS filings report $33,832 to it, the largest being NETWORK FOR GOOD ($22,201). 2 of them have funded it in more than one year, and 67% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does HALEY'S HEROES FOUNDATION have?
- IRS filings report 4 organizations giving $33,832 in grants to HALEY'S HEROES FOUNDATION, 2 of which have funded it in more than one year.
- Who is the largest funder of HALEY'S HEROES FOUNDATION?
- NETWORK FOR GOOD is the largest funder on record, with $22,201 in grants. The full list of funders is on this page.
- How can an organization like HALEY'S HEROES FOUNDATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Oregon. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Haley's Heroes →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2021–2025), and the filings of 4 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing