Massachusetts · Nonprofit
RARE NEW ENGLAND INC
RARE NEW ENGLAND INC (Massachusetts) receives grants from 4 organizations whose IRS filings report $43,411 to it, the largest being PHARMACEUTICAL RESEARCH AND MANUFACTURERS OF AMERICA ($21,850). 2 of them have funded it in more than one year.
- Revenue FY2024
- $138k
- Funders on record
- 4
- Grants received
- $43k
- Net assets
- $271k
What Rare New England Inc does
Mission
1. To offer support to patients and families diagnosed with rare and complex disorders, and also help these patients and families find support from each other. 2. To promote awareness about rare and/or complex disorders as well as the difficulties these patients and families deal with in their daily lives.3. To advocate for patients and families of rare/complex diseases around local, regional and national issues that affect the rare disease communities.4. To offer educational opportunities to patients, families and professionals regarding how to achieve and maintain quality of lives for patients and families dealing with rare/complex diagnoses.5. To search for resources and make those available to benefit rare and/or complex disease patients.
As stated on its FY2024 Form 990-EZ.
Program
Promote awareness of rare/complex disorders, offer support to and advocate for patients/families, offer educational opportunities, search for resources and make them available.
$82,684 spent100% of program spending
The program described on its FY2025 Form 990-EZ. Program spending in total: $82,684.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $78k to $159k (+105%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
99% of RARE NEW ENGLAND INC’s revenue is contributions — more donation-reliant than the typical peer (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 0 of the last 7 reported years ran a deficit.
Leadership and staff
Chief executive
Nicole White
Executive director
As listed on its FY2025 Form 990-EZ.
Who funds it, year by year
2020 → 2023: the base broadened from 1 funder to 3 funders, grant income rose $15 → $7k.
1 of 4 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 0% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of RARE NEW ENGLAND INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
RARE NEW ENGLAND INC leans on a few funders — its largest provides 50% of grant income and the top three 100%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
51% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund RARE NEW ENGLAND INC.
Largest funder’s share by year: 2020 100% · 2021 100% · 2022 100% · 2023 86% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
RARE NEW ENGLAND INC draws 98% of its grant income from funders outside Massachusetts, across 3 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $104 arriving through sponsors registered in 1 state is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
RARE NEW ENGLAND INC has grown faster than three-quarters of the 13,754 health nonprofits its size.
this organization peer median middle 50% of peers· 13,754 health nonprofits $100k–$1M, FY2024
Organizations like RARE NEW ENGLAND INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Massachusetts
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Public support
57%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for RARE NEW ENGLAND INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds RARE NEW ENGLAND INC?
- RARE NEW ENGLAND INC (Massachusetts) receives grants from 4 organizations whose IRS filings report $43,411 to it, the largest being PHARMACEUTICAL RESEARCH AND MANUFACTURERS OF AMERICA ($21,850). 2 of them have funded it in more than one year.
- How many funders does RARE NEW ENGLAND INC have?
- IRS filings report 4 organizations giving $43,411 in grants to RARE NEW ENGLAND INC, 2 of which have funded it in more than one year.
- Who is the largest funder of RARE NEW ENGLAND INC?
- PHARMACEUTICAL RESEARCH AND MANUFACTURERS OF AMERICA is the largest funder on record, with $21,850 in grants. The full list of funders is on this page.
- How can an organization like RARE NEW ENGLAND INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Massachusetts. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Rare New England →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 4 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing