Massachusetts · Nonprofit
RARE DISEASE RENEGADES A NJ NONPROFIT CORPORATION
RARE DISEASE RENEGADES A NJ NONPROFIT CORPORATION (Massachusetts) receives grants from 8 organizations whose IRS filings report $35,181 to it, the largest being DONOR ADVISED CHARITABLE GIVING INC ($10,000). 0 of them have funded it in more than one year.
- Revenue FY2024
- $12k
- Funders on record
- 8
- Grants received
- $35k
- Net assets
- $50k
What Rare Disease Renegades a Nj Nonprofit Corporation does
Mission
Fundraising for scientific research
As stated on its FY2024 Form 990-EZ.
Program
Engaged with and educated the public about rare disease research. 250+ people
$7,428 spent100% of program spending
The program described on its FY2023 Form 990-EZ. Program spending in total: $7,428.
The organization over time
Each line starts at 100 in 2022, so what you read is the shape rather than the size: 150 means half as much again as 2022, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2023 to 2024, from $139k to $50k (−64%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
100% of RARE DISEASE RENEGADES A NJ NONPROFIT CORPORATION’s revenue is contributions — more reliant on donations than three-quarters of its peers (100% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 1 of the last 3 reported years ran a deficit.
Leadership and staff
Chief executive
William Lester
Executive Director
Board chair
Joelle Lester
Board Member - Chair
As listed on its FY2023 Form 990-EZ.
Who funds it, year by year
2022 → 2023: the base broadened from 2 funders to 4 funders, grant income fell $10k → $10k.
3 of 8 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 43% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of RARE DISEASE RENEGADES A NJ NONPROFIT CORPORATION’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
RARE DISEASE RENEGADES A NJ NONPROFIT CORPORATION leans on a few funders — its largest provides 28% of grant income and the top three 76%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
91% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund RARE DISEASE RENEGADES A NJ NONPROFIT CORPORATION.
Largest funder’s share by year: 2022 98% · 2023 68% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
RARE DISEASE RENEGADES A NJ NONPROFIT CORPORATION draws 100% of its grant income from funders outside Massachusetts, across 3 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $15k arriving through sponsors registered in 3 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
RARE DISEASE RENEGADES A NJ NONPROFIT CORPORATION's revenue fell 89% between 2022 and 2024.
this organization peer median middle 50% of peers· 9,898 health nonprofits under $100k, FY2024
Organizations like RARE DISEASE RENEGADES A NJ NONPROFIT CORPORATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Massachusetts
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Screen this organization
A dated, signed PDF of the compliance screen for RARE DISEASE RENEGADES A NJ NONPROFIT CORPORATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds RARE DISEASE RENEGADES A NJ NONPROFIT CORPORATION?
- RARE DISEASE RENEGADES A NJ NONPROFIT CORPORATION (Massachusetts) receives grants from 8 organizations whose IRS filings report $35,181 to it, the largest being DONOR ADVISED CHARITABLE GIVING INC ($10,000). 0 of them have funded it in more than one year.
- How many funders does RARE DISEASE RENEGADES A NJ NONPROFIT CORPORATION have?
- IRS filings report 8 organizations giving $35,181 in grants to RARE DISEASE RENEGADES A NJ NONPROFIT CORPORATION.
- Who is the largest funder of RARE DISEASE RENEGADES A NJ NONPROFIT CORPORATION?
- DONOR ADVISED CHARITABLE GIVING INC is the largest funder on record, with $10,000 in grants. The full list of funders is on this page.
- How can an organization like RARE DISEASE RENEGADES A NJ NONPROFIT CORPORATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Massachusetts. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Rare Disease Renegades a Nj Nonprofit →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2022–2024), and the filings of 8 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing