Virginia · Nonprofit
PRISMS Inc
PRISMS Inc (Virginia) receives grants from 16 organizations whose IRS filings report $368,715 to it, the largest being FIDELITY INVESTMENTS CHARITABLE GIFT FUND ($70,690). 11 of them have funded it in more than one year, and 75% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $439k
- Funders on record
- 16
- Grants received
- $369k
- Net assets
- $703k
What PRISMS Inc does
Mission
PRISMS provides a range of services for persons with SMS telephone support, database of registered families, newsletters, informational packets for caregivers and medical professionals. P.R.I.S.M.S., Inc. engages individuals with medical and scientific expertise to serve on its Professional Advisory Board, conducts an international conference.
As stated on its FY2025 Form 990.
Programs
PRISMS provides support to our SMS community in a number of ways in including phone and email support, information sharing newsletters, annual reports, webinars, awareness materials, informational packets, and a shared community Facebook Group for family support. PRISMS also offers guidebooks on topics such as medical management guidelines, constipation, behavior, and residential living. We provide an online store where our community can purchase PRISMS merchandise as well as the book On the Road to Success with SMS.
$137,891 spentof which $3,000 as grants63% of program spendingPRISMS hosted the 12th Smith-Magenis Syndrome Research Symposium in Boulder, Colorado on September 25-26, 2025. The symposium brought together researchers from around the world to share and collaborate on research about Smith-Magenis Syndrome. Researchers new to the SMS community and graduate students were able to participate in person and virtually to share current and active research initiatives. The symposium was open to all members of the community to attend. PRISMS also funded the research of four summer scholars, graduate students that are working to expend our understanding of SMS.
$27,238 spentof which $12,028 as grants$2,750 earned by the program12% of program spendingPRISMS continued to support the PCRC PRISMS Clinics and Research Consortium. SMS Clinics provide multi-specialty, comprehensive and compassionate care for patients with SMS. PCRC also offers families the opportunity to carry home treatment recommendations to share with their local providers. The Clinic Travel Fund reimburses caregivers for expenses associated with travel to and from a SMS clinic. This helps ensure families seek the best medical care. With the addition of a clinic at St. Jude Childrens Clinic in Memphis, TN there are now nine clinics in the United States with locations on both the East and West Coast, the Central, and Mid-West.
$53,583 spentof which $13,842 as grants24% of program spending
The 3 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $218,712.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $858k to $599k (−30%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2020 3% · 2021 6%. Grants only. Government contracts and fees sit inside program revenue.
91% of PRISMS Inc’s revenue is contributions — more donation-reliant than the typical peer (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 4 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Michelle Larscheid
Executive Director
As listed on its FY2025 Form 990.
The chief executive listed changed between the FY2018 and FY2019 filings.
Who funds it, year by year
2017 → 2023: the base broadened from 3 funders to 6 funders, grant income fell $101k → $66k.
8 of 16 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 75% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of PRISMS Inc’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
PRISMS Inc has a broad base — no single funder exceeds 19% of grant income, and it takes 3 funders to reach half.
the vertical line marks half of all grant income — 3 funders to its left
75% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund PRISMS Inc.
Largest funder’s share by year: 2017 51% · 2018 58% · 2019 97% · 2020 45% · 2021 46% · 2022 34% · 2023 64% — growing more concentrated.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
30% of PRISMS Inc's funders are still giving 3 years after their first grant; 69% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
75% of PRISMS Inc's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $92k that is directly attributable, 100% of it comes from funders outside Virginia, across 6 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $277k arriving through sponsors registered in 8 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
PRISMS Inc runs a healthier operating margin than half of the 7,883 health nonprofits its size.
this organization peer median middle 50% of peers· 7,883 health nonprofits $100k–$1M, FY2025
Organizations like PRISMS Inc
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Virginia
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
63% of spending goes to programs.
Governance
Public support
69%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Screen this organization
A dated, signed PDF of the compliance screen for PRISMS Inc: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds PRISMS Inc?
- PRISMS Inc (Virginia) receives grants from 16 organizations whose IRS filings report $368,715 to it, the largest being FIDELITY INVESTMENTS CHARITABLE GIFT FUND ($70,690). 11 of them have funded it in more than one year, and 75% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does PRISMS Inc have?
- IRS filings report 16 organizations giving $368,715 in grants to PRISMS Inc, 11 of which have funded it in more than one year.
- Who is the largest funder of PRISMS Inc?
- FIDELITY INVESTMENTS CHARITABLE GIFT FUND is the largest funder on record, with $70,690 in grants. The full list of funders is on this page.
- How can an organization like PRISMS Inc find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Virginia. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 16 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing