NATIVE BIODATA CONSORTIUM

Programs

1. Monitoring COVID 19. Building Capacity with Northern Plains Tribes and the Future of Pandemics. The Native BioData Consortium is partnering with its research partners to develop itself to be a Infectious disease testing center immunological research hub and data storage and security facility to support the northern plains tribal public health monitoring and response efforts.

   $410,131 spent
   32% of program spending

2. Two one-week 4-6 days Indigenous data science education workshops held each summer to introduce data science and informatics skills to undergraduate and graduate students. We offer an Indigenous-centered curriculum that is led by a community of Indigenous data scientists and guest faculty. All of our workshop activities will center Indigenous data sovereignty and data ethics while also providing students valuable insight into the emerging data and technology career fields. Two workshops were held in Minnesota and Washington. Also contributing educational materials services and sponsoring Summer Internship for Indigenous peoples in Genomics SING.

   $219,913 spent
   17% of program spending

3. Building a web based dynamic consent portal to build trust among tribal participants in research.

   $134,503 spent
   10% of program spending

4. Community Outreach and Education. We will educate the CRST membership of who we are and what we do. Cheyenne River Sioux Tribe]The Community Advisory Board is a long-term group that will assist in guiding research aim and dissemination of research findings to ensure project goals are carried out per Indigenous community values beliefs and meet all necessary ethical and legal requirements

   $129,052 spent
   10% of program spending

5. Parter with REDE4BlackLives Research Evaluation Data Ethics for Black People

   $78,500 spent
   6% of program spending

6. Monitor sewer effluents for bacteria parasites viruses and fungi with new and efficient methods which will be paired to digitized mapping for Tribal planning and mitigation strategies.

   $75,651 spent$60,617 earned by the program
   6% of program spending

7. IDEAS Conference. Establish a conference for a two day symposium called IDEAS to welcome indigenous tribal leaders academics and entrepreneurs to discuss the future application of data science in growing Artificial Intelligence and Machine Learning and its effect on health data and workforce development for indigenous peoples.

   $75,478 spent
   6% of program spending

8. Possible 6 episode documentary about Indigenous Data and Research sovereignty around the world with NBDC as its beginning and inspiration

   $70,019 spent
   5% of program spending

9. HuBMAP. Looking at the small bowel and colon that play wide-ranging roles in maintaining normal physiologies of metabolism immunity and even neural function. We applied the deep expertise of our team to obtain high-quality biospecimens characterize tissues using cutting-edge omics and multiparametric imaging techniques and perform integrative analyses to understand the biomolecular profiles in the context of spatial tissue structure. We have scaled these data-generation and analysis pipelines for production-scale interrogation of the intestinal wall. We will continue these efforts to build three-dimensional multi-modal snRNA snATAC CODEX multiplex FISH spatial maps that will give the greater scientific community insights into the molecular underpinnings of normal bowel function.

   $54,488 spent
   4% of program spending

10. BRIDGE 2AI. Collect and condition data to prepare for AI. Create systems of ethics law and policy to protect data. Record and build teaming methods for large inter-organizational data collection projects. Create IT tools for data collection analysis and dissemination.

    $26,772 spent
    2% of program spending

11. Unspeicichiya na Winweya Learn and Prepare: We Protect The People - Create culturally relevant public health messaging and translate it into the Lakota language

    $16,500 spent$16,500 earned by the program
    1% of program spending

12. This is a study of rheumatoid arthritis from samples collected from Cheyenne River Sioux people since 2012. This includes the storage and analysis of these samples. This is a study of rheumatoid arthritis from samples collected from Cheyenne River Sioux people since 2012. This includes the storage and analysis of these samples.

    $4,861 spent
    0% of program spending

The 12 programs described on its FY2023 Form 990, listed largest first by expense. Program spending in total: $1,295,868.