California · Nonprofit
National Spasmodic Torticollis
National Spasmodic Torticollis (California) receives grants from 4 organizations whose IRS filings report $25,992 to it, the largest being THE ALLERGAN FOUNDATION ($15,000). 1 of them have funded it in more than one year.
- Revenue FY2025
- $55k
- Funders on record
- 4
- Grants received
- $26k
- Net assets
- $94k
What National Spasmodic Torticollis does
Mission
The mission of the NSTA is to support the needs and well being of affected individuals and families;to promote awareness and education; to advance research for more treatments and ultimately a cure.
As stated on its FY2025 Form 990.
Programs
A two-day conference for patients with neurologists and specialists presenting information on spasmodic torticollis, with social activities. Symposium 2025
$40,313 spent57% of program spendingPeople who receive the ST Quarterly magazine use it as a continuous source of up-to-date information regarding spasmodic torticollis. From the information they learn through the articles written by medical professionals and people inflicted with ST, they are able to communicate clearly with the medical professionals involved with their healthcare. In addition to information, readers are using the magazine as a source of emotional support. They take comfort knowing there are people who understand what they are going through and there is a place to contact if they should ever need information or support.
$11,333 spent16% of program spendingHosted Three Fundraisers with the Parkinsons and Movement Disorder Foundation
$9,820 spent$10,073 earned by the program14% of program spendingProvided email support to people inquiring information on spasmodic torticollis. Provide information on YouTube, Facebook, & NSTA website about the condition.
$8,886 spent13% of program spending
The 4 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $70,352.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2022 to 2023, from $147k to $399k (+172%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
100% of National Spasmodic Torticollis’s revenue is contributions — more donation-reliant than the typical peer (100% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 4 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2020 → 2023: the base held at 2 funders, grant income fell $15k → $229.
1 of 4 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 4% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of National Spasmodic Torticollis’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
National Spasmodic Torticollis leans on a few funders — its largest provides 58% of grant income and the top three 100%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
Largest funder’s share by year: 2020 98% · 2021 97% · 2022 100% · 2023 78% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
National Spasmodic Torticollis draws 100% of its grant income from funders outside California, across 2 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $942 arriving through sponsors registered in 1 state is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
National Spasmodic Torticollis's revenue fell 59% between 2017 and 2025.
this organization peer median middle 50% of peers· 6,360 health nonprofits under $100k, FY2025
Organizations like National Spasmodic Torticollis
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In California
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
30% of spending goes to programs.
Governance
Public support
95%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for National Spasmodic Torticollis: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds National Spasmodic Torticollis?
- National Spasmodic Torticollis (California) receives grants from 4 organizations whose IRS filings report $25,992 to it, the largest being THE ALLERGAN FOUNDATION ($15,000). 1 of them have funded it in more than one year.
- How many funders does National Spasmodic Torticollis have?
- IRS filings report 4 organizations giving $25,992 in grants to National Spasmodic Torticollis, 1 of which have funded it in more than one year.
- Who is the largest funder of National Spasmodic Torticollis?
- THE ALLERGAN FOUNDATION is the largest funder on record, with $15,000 in grants. The full list of funders is on this page.
- How can an organization like National Spasmodic Torticollis find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in California. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds National Spasmodic Torticollis →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 4 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing