California · Nonprofit
National Council On Severe Autism
National Council On Severe Autism (California) receives grants from 12 organizations whose IRS filings report $336,474 to it, the largest being DONOR ADVISED CHARITABLE GIVING INC ($110,600). 8 of them have funded it in more than one year, and 77% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $160k
- Funders on record
- 12
- Grants received
- $336k
- Net assets
- $220k
What National Council On Severe Autism does
Mission
To pursue recognition, policy and solutions for the surging population of individuals, families and caregivers affected by severe forms of autism and related disorders
As stated on its FY2025 Form 990-EZ.
Programs
Recognition & Awareness: In 2025, the National Council on Severe Autism (NCSA) significantly expanded its national reach and engagement through strategic digital communications and infrastructure investment. NCSA delivered 187,914 newsletters to subscribers nationwide, amplifying information and advocacy on issues affecting individuals and families impacted by severe autism. On Facebook, NCSA achieved a net gain of 8,022 followers (+32.7%) with 72.9% of growth driven by Reels and 27.1% driven by Posts. Total followers at year-end reached 32,857. NCSA also invested in upgrading media relations and advocacy software, enhancing tools for the reach and influence of our National Grassroots Network. Through its Authentic Awareness Video Campaign, NCSA gave caregivers an accessible platform to publish first-person videos of their families stories, which were featured across NCSAs website, social media, and YouTube channel. In December, NCSA also ran an artwork campaign that named a person with severe autism as its Artist of the Year for 2026, highlighting the creativity, individualism, and beauty beyond the bounds of words for individuals with severe autism. In 2025, NCSA earned over…
$64,685 spent35% of program spendingPolicy & Advocacy: In 2025, NCSA strengthened its policy infrastructure and expanded its National Grassroots Network (NGN), nearing 2,000 members nationwide. NCSA hired its first Legal and Policy Fellow for the 202526 academic year. The NGN held monthly meetings for state chairs to address national issues, while state chapters convened virtually to discuss state-specific priorities. NCSA held its first D.C. fly-in event, with 131 advocates representing 30 states holding more than 150 meetings with congressional offices. NCSA conducted a national survey of family caregivers of individuals with severe autism and published the results via webinar and also PDF on our website. In September, NCSA held its first Voices for the Voiceless Advocacy Week, which included 4.5 hours of online pre-training. 162 participants took part, meeting with legislators in an accessible format. The organization is continuing plans for the 2026 in-person fly-in in July and two virtual fly-ins in the spring and fall. NCSA launched its book club for social engagement and civics/advocacy training in 2025 with 30 registrants in the spring and 42 registrants in the fall. Multiple chapters participated in…
$88,185 spent48% of program spendingSolutions & Resources: NCSA hosted webinars on topics including exploring the complexities of epilepsy and seizures in autism, integrated health care, innovative housing, hospital care for special care, and understanding development & behavior. NCSA hosted a podcast discussing the similar disparities and discourse between the communities of severe autism and severe mental illness, addressing the harms that ensued from monolithic modern policy that sanitizes disability, and discussing the realities of the types of supports and collaborations that may bring real solutions to these marginalized populations. NCSA families served as significant cohort segments for studies such as Quality of Life of Mothers of Severely Autistic Children Under the Age of 22 by Chele Weiglein (Liberty University); Caregiver Adherence to Behavioral Recommendations by the PCORI-Awarded SPARC project, and Parents Caring for Autistic Adults by Jess Wellington (Penn State University). NCSA proudly supported promising research for Understanding Severity of SIB by Joseph Patrick Boyle (UC Davis) and co-hosted Supporting People with Autism and Catatonia through Education and Support (SPACES) with Autism Science…
$32,580 spent18% of program spending
The 3 programs described on its FY2025 Form 990-EZ. Program spending in total: $185,450.
The organization over time
Each line starts at 100 in 2022, so what you read is the shape rather than the size: 150 means half as much again as 2022, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2022 to 2023, from $132k to $212k (+61%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
73% of National Council On Severe Autism’s revenue is contributions — about as donation-reliant as the typical peer (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 1 of the last 4 reported years ran a deficit.
Who funds it, year by year
2019 → 2023: the base broadened from 2 funders to 6 funders, grant income rose $16k → $50k.
10 of 12 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 77% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of National Council On Severe Autism’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
National Council On Severe Autism leans on a few funders — its largest provides 33% of grant income and the top three 67%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
77% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund National Council On Severe Autism.
Largest funder’s share by year: 2019 64% · 2020 54% · 2021 54% · 2022 33% · 2023 41% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
75% of National Council On Severe Autism's funders are still giving 3 years after their first grant; 67% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
77% of National Council On Severe Autism's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $76k that is directly attributable, 100% of it comes from funders outside California, across 2 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $260k arriving through sponsors registered in 9 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
National Council On Severe Autism has grown faster than half of the 7,883 health nonprofits its size.
this organization peer median middle 50% of peers· 7,883 health nonprofits $100k–$1M, FY2025
Organizations like National Council On Severe Autism
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In California
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Public support
97%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for National Council On Severe Autism: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds National Council On Severe Autism?
- National Council On Severe Autism (California) receives grants from 12 organizations whose IRS filings report $336,474 to it, the largest being DONOR ADVISED CHARITABLE GIVING INC ($110,600). 8 of them have funded it in more than one year, and 77% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does National Council On Severe Autism have?
- IRS filings report 12 organizations giving $336,474 in grants to National Council On Severe Autism, 8 of which have funded it in more than one year.
- Who is the largest funder of National Council On Severe Autism?
- DONOR ADVISED CHARITABLE GIVING INC is the largest funder on record, with $110,600 in grants. The full list of funders is on this page.
- How can an organization like National Council On Severe Autism find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in California. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds National Council On Severe Autism →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2022–2025), and the filings of 12 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing