Indiana · Nonprofit
MUSCULAR DYSTROPHY FAMILY FOUNDATION
MUSCULAR DYSTROPHY FAMILY FOUNDATION (Indiana) receives grants from 25 organizations whose IRS filings report $699,435 to it, the largest being THE GREATER CINCINNATI FOUNDATION ($161,000). 18 of them have funded it in more than one year, and 52% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2024
- $635k
- Funders on record
- 25
- Grants received
- $699k
- Net assets
- $997k
What Muscular Dystrophy Family Foundation does
Mission
The Muscular Dystrophy Family Foundation uses the power of giving to increase the quality of life and independence of people with muscular dystrophy - and empower their families - through advocacy, education, and financial assistance.
As stated on its FY2024 Form 990.
Programs
The mdff annual accessible van give-away - the clemons, caldwell, rodriguez and wickizer families were the recipients of the mdff accessible van give-away program in 2024. The cost of the accessible vans was $197,954.
$197,954 spentof which $197,954 as grants65% of program spendingThe mdff adaptive equipment program - providing goods and services for those with muscular dystrophy, as follows, wheelchair repairs/upgrades $17,289equipment $572home renovations $16,477elevator seats $4,500ramps $1,423total: $40,261
$40,261 spentof which $40,261 as grants13% of program spendingMdff provided other client services focused on social activities like a christmas party for kids affected by muscular dystrophy, scholarships and zoo days:christmas party: $17,793seever scholarship disbursements: $2,113the river & the rock award: $2,558zoo days: $4,923total: $27,387
$29,618 spentof which $27,387 as grants10% of program spendingCompensation of officers
$37,809 spent12% of program spending
The 4 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $305,642.
The organization over time
Each line starts at 100 in 2020, so what you read is the shape rather than the size: 150 means half as much again as 2020, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2023 to 2024, from $786k to $1.0M (+27%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2021 2% · 2023 5%. Grants only. Government contracts and fees sit inside program revenue.
70% of MUSCULAR DYSTROPHY FAMILY FOUNDATION’s revenue is contributions — about as donation-reliant as the typical peer (83% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 0 of the last 5 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2017 → 2023: the base broadened from 2 funders to 13 funders, grant income rose $5k → $115k.
9 of 25 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 52% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of MUSCULAR DYSTROPHY FAMILY FOUNDATION’s funders (the co-funder graph). Top 24 of 25 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
MUSCULAR DYSTROPHY FAMILY FOUNDATION has a broad base — no single funder exceeds 23% of grant income, and it takes 4 funders to reach half.
the vertical line marks half of all grant income — 4 funders to its left
73% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund MUSCULAR DYSTROPHY FAMILY FOUNDATION.
Largest funder’s share by year: 2017 96% · 2018 61% · 2019 50% · 2020 31% · 2021 59% · 2022 36% · 2023 29% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
53% of MUSCULAR DYSTROPHY FAMILY FOUNDATION's funders are still giving 3 years after their first grant; 72% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
52% of MUSCULAR DYSTROPHY FAMILY FOUNDATION's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $333k that is directly attributable, 82% of it comes from Indiana funders.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $367k arriving through sponsors registered in 7 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
MUSCULAR DYSTROPHY FAMILY FOUNDATION runs a healthier operating margin than three-quarters of the 13,769 health nonprofits its size.
this organization peer median middle 50% of peers· 13,769 health nonprofits $100k–$1M, FY2024
Organizations like MUSCULAR DYSTROPHY FAMILY FOUNDATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Indiana
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
69% of spending goes to programs.
Governance
Public support
100%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for MUSCULAR DYSTROPHY FAMILY FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds MUSCULAR DYSTROPHY FAMILY FOUNDATION?
- MUSCULAR DYSTROPHY FAMILY FOUNDATION (Indiana) receives grants from 25 organizations whose IRS filings report $699,435 to it, the largest being THE GREATER CINCINNATI FOUNDATION ($161,000). 18 of them have funded it in more than one year, and 52% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does MUSCULAR DYSTROPHY FAMILY FOUNDATION have?
- IRS filings report 25 organizations giving $699,435 in grants to MUSCULAR DYSTROPHY FAMILY FOUNDATION, 18 of which have funded it in more than one year.
- Who is the largest funder of MUSCULAR DYSTROPHY FAMILY FOUNDATION?
- THE GREATER CINCINNATI FOUNDATION is the largest funder on record, with $161,000 in grants. The full list of funders is on this page.
- How can an organization like MUSCULAR DYSTROPHY FAMILY FOUNDATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Indiana. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Muscular Dystrophy Family →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2020–2024), and the filings of 25 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing