Ohio · Nonprofit
MAPLE SYRUP URINE DISEASE FAMILY SUPPORT GROUP INC
MAPLE SYRUP URINE DISEASE FAMILY SUPPORT GROUP INC (Ohio) receives grants from 4 organizations whose IRS filings report $83,981 to it, the largest being PAYPAL CHARITABLE GIVING FUND ($49,824). 2 of them have funded it in more than one year, and 100% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $179k
- Funders on record
- 4
- Grants received
- $84k
- Net assets
- $564k
What Maple Syrup Urine Disease Family Support Group Inc does
Mission
The maple syrup urine disease family support group empowers those affected by maple syrup urine disease through advocacy, education, and community. We connect families, clinicians, and researchers to improve care, advance research, and work toward a cure.
As stated on its FY2025 Form 990.
Programs
To provide support and education for the families of children with maple syrup urine disease.
$136,479 spent$32,863 earned by the program98% of program spendingPrepare and mail msud newsletter and pamphlets to provide information to families and professionals caring for individuals with msud.
$2,701 spent2% of program spendingProvide information via an internet website to families and professionals caring for individuals with msud.
$289 spent0% of program spending
The 3 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $139,469.
The organization over time
Each line starts at 100 in 2018, so what you read is the shape rather than the size: 150 means half as much again as 2018, 50 means half. The number beside each label in the key is where it ended.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2018 to 2019, from $490k to $551k (+12%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 4 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Denise Kolivoski
Executive director
As listed on its FY2025 Form 990.
Who funds it, year by year
2020 → 2023: the base held at 1 funder, grant income rose $202 → $475.
3 of 4 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 100% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of MAPLE SYRUP URINE DISEASE FAMILY SUPPORT GROUP INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
MAPLE SYRUP URINE DISEASE FAMILY SUPPORT GROUP INC leans on a few funders — its largest provides 59% of grant income and the top three 100%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
100% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund MAPLE SYRUP URINE DISEASE FAMILY SUPPORT GROUP INC.
Largest funder’s share by year: 2020 100% · 2021 69% · 2022 100% · 2023 100% — broadly stable.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
100% of MAPLE SYRUP URINE DISEASE FAMILY SUPPORT GROUP INC's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $200 that is directly attributable, 100% of it comes from funders outside Ohio, across 1 state.
Funder states come from each funder’s own filing. $84k arriving through sponsors registered in 3 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Organizations like MAPLE SYRUP URINE DISEASE FAMILY SUPPORT GROUP INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Ohio
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
98% of spending goes to programs.
Governance
Public support
90%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for MAPLE SYRUP URINE DISEASE FAMILY SUPPORT GROUP INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds MAPLE SYRUP URINE DISEASE FAMILY SUPPORT GROUP INC?
- MAPLE SYRUP URINE DISEASE FAMILY SUPPORT GROUP INC (Ohio) receives grants from 4 organizations whose IRS filings report $83,981 to it, the largest being PAYPAL CHARITABLE GIVING FUND ($49,824). 2 of them have funded it in more than one year, and 100% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does MAPLE SYRUP URINE DISEASE FAMILY SUPPORT GROUP INC have?
- IRS filings report 4 organizations giving $83,981 in grants to MAPLE SYRUP URINE DISEASE FAMILY SUPPORT GROUP INC, 2 of which have funded it in more than one year.
- Who is the largest funder of MAPLE SYRUP URINE DISEASE FAMILY SUPPORT GROUP INC?
- PAYPAL CHARITABLE GIVING FUND is the largest funder on record, with $49,824 in grants. The full list of funders is on this page.
- How can an organization like MAPLE SYRUP URINE DISEASE FAMILY SUPPORT GROUP INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Ohio. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Maple Syrup Urine Disease Family Support Group →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2018–2025), and the filings of 4 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing