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Connecticut · Nonprofit

COALITION TO CURE CALPAIN 3

COALITION TO CURE CALPAIN 3 (Connecticut) receives grants from 7 organizations whose IRS filings report $392,172 to it, the largest being NETWORK FOR GOOD ($286,816). 5 of them have funded it in more than one year, and 98% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.

Revenue FY2024
$646k
Funders on record
7
Grants received
$392k
Net assets
$22k
5/7 repeat funderspeak grant-dependency 17%
01What it does

What Coalition to Cure Calpain 3 does

Mission

To fund research to cure or treat limb-girdle muscular dystrophy type 2a (lgmd2a/r1), a form of calpainopathy, and to raise awareness of the disease among the scientific community, patients, and the public

As stated on its FY2024 Form 990.

Programs

  1. To provide research grants to individuals and universities for the study of treatment or cures for muscular dystrophy lgmd2a/r1 (calpainopathy).virginia commonwealth university - research comparative proteomics of lgmd2a and bmd to develop serum protein biomarkers - $110,338university of newcastle - understanding the variable expression of dominant calpainopathies - $49,617queens university - solving the structure of capn3 and assessing the impact of lgmdr1 mutations - $85,000aix marseille - optimizing the functional assay to identify novel capn3variants responsible for the dominant form of calpainopathy (lgmdd4) -$100,000

    $607,021 spentof which $344,955 as grants
    100% of program spending
  2. Participate in outreach activities to spread awareness of Coalition to Cure Calpain 3 and lgmd2a/r1 (calpainopathy)

The 2 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $607,021.

02The organization over time

The organization over time

Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.

100 = 20172017 Revenue 100 ($303k) Expenses 100 ($319k) Net assets 100 ($191k)2018 Revenue 163 ($496k) Expenses 149 ($475k) Net assets -115 ($-219259)2019 Revenue 198 ($600k) Expenses 108 ($346k) Net assets 18 ($34k)2020 Revenue 99 ($300k) Expenses 106 ($339k) Net assets -3 ($-5532)2021 Revenue 155 ($469k) Expenses 112 ($359k) Net assets 55 ($105k)2022 Revenue 135 ($410k) Expenses 196 ($625k) Net assets -57 ($-109762)2023 Revenue 235 ($712k) Expenses 241 ($770k) Net assets -88 ($-168299)2024 Revenue 213 ($646k) Expenses 143 ($456k) Net assets 11 ($22k)
'17'18'19'20'21'22'23'24
Revenue (213)Expenses (143)Net assets (11)Peer revenue range

Balance sheet

Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2018 to 2019, from $75k to $210k (+179%).

$193k
$75k
$210k
$176k
$275k
$152k
$252k
$217k
'17'18'19'20'21'22'23'24
Total assetsTotal liabilities

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2017
2018
2019
2020
2021
2022
2023
2024
ContributionsProgram revenueInvestmentOther

100% of COALITION TO CURE CALPAIN 3’s revenue is contributions — more reliant on donations than three-quarters of its peers (82% for the typical peer).

This organization
Typical peer · 14,893 orgs

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 4 of the last 8 reported years ran a deficit.

−$16k
’17
$20k
’18
$254k
’19
−$40k
’20
$110k
’21
−$215k
’22
−$59k
’23
$190k
’24
4.5
months of
reserve

Leadership and staff

The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.

'17'18'19'20'21'22'23'24
Listed55555666
Joined·+0+0+0+0+1+0+1
No longer listed·0000001
03Who funds it

Who funds it, year by year

2017 → 2023: the base held at 2 funders, grant income fell $52k → $47k.

5 of 7 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 98% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of COALITION TO CURE CALPAIN 3’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

COALITION TO CURE CALPAIN 3 leans on a few funders — its largest provides 73% of grant income and the top three 95%; half comes from just 1 funder.

the vertical line marks half of all grant income — 1 funder to its left

98% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund COALITION TO CURE CALPAIN 3.

73%
largest funder
95%
top three
~2
effective funders

Largest funder’s share by year: 2017 58% · 2018 99% · 2019 52% · 2020 57% · 2021 96% · 2022 98% · 2023 99% — growing more concentrated.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

Where its funders are

98% of COALITION TO CURE CALPAIN 3's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $8k that is directly attributable, 100% of it comes from funders outside Connecticut, across 2 states.

IL
OH

Funder states come from each funder’s own filing. $384k arriving through sponsors registered in 4 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Against its field

COALITION TO CURE CALPAIN 3 runs a healthier operating margin than three-quarters of the 13,754 health nonprofits its size.

Operating margin29% · top quartile
Months of reserve4.5mo · below the median
Revenue growth (annualized)11% · above the median

this organization peer median middle 50% of peers· 13,754 health nonprofits $100k–$1M, FY2024

Organizations like COALITION TO CURE CALPAIN 3

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In Connecticut

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Where the money goes

90% of spending goes to programs.

Program 90%Management 9%Fundraising 1%

Governance

6
board members
100%
independent
–Conflict-of-interest policy–Whistleblower policy–Document retention✓Board reviewed the 990✓Audited financials

Public support

100%

Share of support from the public (Schedule A) — the basis for its public-charity status.

Footprint & structure

Files a return copy in 4 states

IL
MI
CT
FL

Screen this organization

A dated, signed PDF of the compliance screen for COALITION TO CURE CALPAIN 3: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

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Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds COALITION TO CURE CALPAIN 3?
COALITION TO CURE CALPAIN 3 (Connecticut) receives grants from 7 organizations whose IRS filings report $392,172 to it, the largest being NETWORK FOR GOOD ($286,816). 5 of them have funded it in more than one year, and 98% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
How many funders does COALITION TO CURE CALPAIN 3 have?
IRS filings report 7 organizations giving $392,172 in grants to COALITION TO CURE CALPAIN 3, 5 of which have funded it in more than one year.
Who is the largest funder of COALITION TO CURE CALPAIN 3?
NETWORK FOR GOOD is the largest funder on record, with $286,816 in grants. The full list of funders is on this page.
How can an organization like COALITION TO CURE CALPAIN 3 find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in Connecticut. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 7 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing