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Florida · Nonprofit

ASSOC OF BIRTH DEFECT CHILDREN INC D/B/A BIRTH DEFECT RESEARCH FOR CHILDREN

ASSOC OF BIRTH DEFECT CHILDREN INC D/B/A BIRTH DEFECT RESEARCH FOR CHILDREN (Florida) receives grants from 7 organizations whose IRS filings report $157,774 to it, the largest being HONOR BOUND FOUNDATION INC ($105,000). 4 of them have funded it in more than one year.

Revenue FY2025
$66k
Funders on record
7
Grants received
$158k
Net assets
$3.6M
4/7 repeat funderspeak grant-dependency 75%
01What it does

What Assoc of Birth Defect Children Inc D/B/A Birth Defect Research for Children does

Mission

Birth defect research for children.

As stated on its FY2025 Form 990.

Program

  1. The association serves as an international clearinghouse to provide information about all kinds of structural and functional birth defects as well as support systems and resources to assist families who have children with these conditions. The association also sponsors the national birth defects registry, a research and birth defects prevention project.

    $178,366 spent
    100% of program spending

The program described on its FY2023 Form 990. Program spending in total: $178,366.

02The organization over time

The organization over time

Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended.

100 = 20172017 Revenue 100 ($133k) Expenses 100 ($146k) Net assets 100 ($1.4M)2018 Revenue 81 ($107k) Expenses 114 ($166k) Net assets 100 ($1.4M)2019 Revenue 80 ($106k) Expenses 72 ($105k) Net assets 100 ($1.4M)2020 Revenue 38 ($50k) Expenses 71 ($103k) Net assets 103 ($1.4M)2021 Revenue 53 ($70k) Expenses 72 ($105k) Net assets 119 ($1.6M)2022 Revenue 47 ($63k) Expenses 65 ($95k) Net assets 100 ($1.4M)2023 Revenue 1359 ($1.8M) Expenses 59 ($86k) Net assets 224 ($3.1M)2024 Revenue 222 ($296k) Expenses 127 ($185k) Net assets 246 ($3.4M)2025 Revenue 50 ($66k) Expenses 128 ($186k) Net assets 262 ($3.6M)
'17'18'19'20'21'22'23'24'25
Revenue (50)Expenses (128)Net assets (262)

Balance sheet

Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2022 to 2023, from $1.4M to $3.2M (+123%).

$1.4M
$1.4M
$1.4M
$1.5M
$1.7M
$1.4M
$3.2M
$3.5M
$3.7M
'17'18'19'20'21'22'23'24'25
Total assetsTotal liabilities

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2017
2018
2019
2020
2021
2022
2023
2024
2025
ContributionsProgram revenueInvestmentOther

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 6 of the last 9 reported years ran a deficit.

−$13k
’17
−$59k
’18
$1k
’19
−$52k
’20
−$35k
’21
−$32k
’22
$1.7M
’23
$112k
’24
−$120k
’25
2.7
months of
reserve

Leadership and staff

The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.

'17'18'19'20'21'22'23'24'25
Listed777766679
Joined·+0+0+0+0+0+0+2+2
No longer listed·00010010
03Who funds it

Who funds it, year by year

2017 → 2023: the base held at 1 funder, grant income fell $15k → $77.

2 of 7 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 4% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of ASSOC OF BIRTH DEFECT CHILDREN INC D/B/A BIRTH DEFECT RESEARCH FOR CHILDREN’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

ASSOC OF BIRTH DEFECT CHILDREN INC D/B/A BIRTH DEFECT RESEARCH FOR CHILDREN leans on a few funders — its largest provides 67% of grant income and the top three 92%; half comes from just 1 funder.

the vertical line marks half of all grant income — 1 funder to its left

81% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund ASSOC OF BIRTH DEFECT CHILDREN INC D/B/A BIRTH DEFECT RESEARCH FOR CHILDREN.

67%
largest funder
92%
top three
~2
effective funders

Largest funder’s share by year: 2017 100% · 2018 93% · 2019 100% · 2020 95% · 2021 94% · 2022 94% · 2023 100% — broadly stable.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

Where its funders are

ASSOC OF BIRTH DEFECT CHILDREN INC D/B/A BIRTH DEFECT RESEARCH FOR CHILDREN draws 83% of its grant income from funders outside Florida, across 5 states in all.

IL
IN
CT
MD
FL

In-state vs out-of-state, by year

’17
’18
’19
’20
’21
’22
Florida out of state home

Funder states come from each funder’s own filing. $6k arriving through sponsors registered in 2 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Organizations like ASSOC OF BIRTH DEFECT CHILDREN INC D/B/A BIRTH DEFECT RESEARCH FOR CHILDREN

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In Florida

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Where the money goes

97% of spending goes to programs.

Program 97%Management 2%Fundraising 1%

Governance

6
board members
83%
independent
✓Conflict-of-interest policy–Whistleblower policy✓Document retention✓Board reviewed the 990–Audited financials

Public support

86%

Share of support from the public (Schedule A) — the basis for its public-charity status.

Footprint & structure

Files a return copy in 1 state

FL

Screen this organization

A dated, signed PDF of the compliance screen for ASSOC OF BIRTH DEFECT CHILDREN INC D/B/A BIRTH DEFECT RESEARCH FOR CHILDREN: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

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Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds ASSOC OF BIRTH DEFECT CHILDREN INC D/B/A BIRTH DEFECT RESEARCH FOR CHILDREN?
ASSOC OF BIRTH DEFECT CHILDREN INC D/B/A BIRTH DEFECT RESEARCH FOR CHILDREN (Florida) receives grants from 7 organizations whose IRS filings report $157,774 to it, the largest being HONOR BOUND FOUNDATION INC ($105,000). 4 of them have funded it in more than one year.
How many funders does ASSOC OF BIRTH DEFECT CHILDREN INC D/B/A BIRTH DEFECT RESEARCH FOR CHILDREN have?
IRS filings report 7 organizations giving $157,774 in grants to ASSOC OF BIRTH DEFECT CHILDREN INC D/B/A BIRTH DEFECT RESEARCH FOR CHILDREN, 4 of which have funded it in more than one year.
Who is the largest funder of ASSOC OF BIRTH DEFECT CHILDREN INC D/B/A BIRTH DEFECT RESEARCH FOR CHILDREN?
HONOR BOUND FOUNDATION INC is the largest funder on record, with $105,000 in grants. The full list of funders is on this page.
How can an organization like ASSOC OF BIRTH DEFECT CHILDREN INC D/B/A BIRTH DEFECT RESEARCH FOR CHILDREN find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in Florida. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

Play a game about who funds Assoc of Birth Defect Children Inc D/B/A Birth Defect Research for Children →

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 7 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing