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The Adenoid Cystic Carcinoma Research Foundation

The adenoid cyctic carcinoma research foundation (accrf) supports research into adenoid cystic carcinoma that will accelerate the development of improved therapies and a cure for the disease.

$401k
Granted FY2025still arriving
5
Grants FY2025still arriving
3
States reached
$165k
Largest
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.

Health$3.0MEducation$682kScience & Tech$245k
02FY2025 · 5 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 5 grants below total $259,920, the rows itemized in this filing. The $401,246 headline is the total grant expense on the return; the other $141,326 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.

By grant size · FY2025

  • $10k–50k4 grants · $95k
  • $50k–250k1 grant · $165k
$24,920
Median grant
3
States reached
$2.3M
Total assets
Largest grants
RecipientAmount
MASSACHUSETTS GENERAL HOSPITA$165,000
MD ANDERSON CANCER CENTER$35,000
MEMORIAL SLOAN KETTERING$24,920
BOSTON UNIVERSITY$20,000
MD ANDERSON CANCER CENTER$15,000
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY17–25) land where the poverty rate runs at 15%, against an area that typically sits at 12%. 86% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 12%THE BROAD INSTITUTE INC: $25k → 8%HARVARD MEDICAL SCHOOL: $200k → 16%UNIVERSITY OF PENNSYLVANIA: $75k → 22%MISSION VIEJO HOSPITAL AND UCLA: $100k → 10%COLUMBIA UNIVERSITY: $200k → 17%MD ANDERSON CANCER CENTER: $51k → 16%UNIVERSITY OF NEW MEXICO: $83k → 14%GEORGETOWN UNIVERSITY: $165k → 14%H LEE MOFFITT CANCER CENTER & RESEARCH INSTITUTE INC: $50k → 13%UNIVERSITY OF MIAMI: $25k → 15%UNIVERSITY OF MICHIGAN: $25k → 14%UNIVERSITY OF CHICAGO: $317k → 14%RUTGERS CANCER INSTITUTE: $31k → 8%CONQUER CANCER FOUNDATION: $25k → 9%VIRGINA COMMONWEALTH UNIVERSITY OF MEDICINE: $50k → 22%JOHN HOPKINS UNIVERSITY: $100k → 19%MASSACHUSETTS INSTITUTE OF TECHNOLOGY: $129k → 8%BRIGHAM AND WOMEN'S HOSPITAL: $83k → 16%MISSION HOSPITAL - MISSION VIEJO: $25k → 10%MEMORIAL SLOAN KETTERING: $25k → 17%MD ANDERSON CANCER CENTER: $50k → 16%UNIVERSITY OF NEW MEXICO: $25k → 14%UNIVERSITY OF MICHIGAN: $20k → 14%UNIVERSITY OF CHICAGO: $220k → 14%JOHNS HOPKINS UNIVERSITY: $25k → 19%BRIGHAM AND WOMEN'S HOSPITAL: $25k → 16%MOUNT SINAI SCHOOL OF MEDICINE: $25k → 17%BAYLOR COLLEGE OF MEDICINE: $37k → 16%UNIVERSITY OF NEW MEXICO: $138k → 14%UNIVERSITY OF CHICAGO: $25k → 14%BRIGHAM AND WOMEN'S HOSPITAL: $24k → 16%THE MOUNT SINAI HOSPITAL: $25k → 17%MD ANDERSON CANCER CENTER: $35k → 16%MASSACHUSETTS EYE AND EAR INFIRMARY: $52k → 8%DANA-FARBER: $243k → 16%MASSACHUSETTS EYE AND EAR INFIRMARY: $48k → 8%DANA FARBER: $234k → 16%MASSACHUSETTS EYE AND EAR INFIRMARY: $25k → 8%DANA FARBER CANCER INSTITUTE: $50k → 16%DANA-FARBER: $25k → 16%DANA FARBER: $25k → 16%DANA-FARBER: $25k → 16%DANA-FARBER CANCER INSTITUTE: $25k → 16%MASSACHUSETTS GENERAL HOSPITA: $165k → 16%DANA FARBER CANCER INSTITUTE: $25k → 16%MASS GENERAL: $50k → 16%BOSTON UNIVERSITY: $20k → 16%MASSACHUSETTS GENERAL HOSPITAL: $25k → 16%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

IL
MI
NY
MA
PA
NJ
CA
VA
MD
NM
TN
DC
TX
FL

Grants abroad, by region: $100k on the FY2025 return

Schedule F, as filed: 2 regions. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.

United Kingdom$75k · 75% · 2 grants

Stated purpose: GENETIC MODELS · MULTICENTER VALID

Italy$25k · 25% · 1 grant

Stated purpose: MULTICENTER VALID

How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

71%of every dollar goes to organizations it has funded before.
$2.5M · 9 repeat orgs$1.0M to everyone else

Grantees it renews have grown median revenue +49% since the first grant, against +28% for those funded once.

9 repeat relationships: 1 still active in FY2025, 8 since wound down; 4 grantees were first funded in FY2025 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

9
16

Total granted

$2.5M
$783k

Median revenue growth · since first grant

+49%
+28%

Still filing today

56%
56%

New vs renewed · share of each year

In FY2025, 6% of grant dollars renewed an existing relationship; $245k went to new ones.

50%100%’17’18’19’20’21’22’23’24’25
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’22’23’24’25
HealthEducationOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • Dana-Farber Cancer Institute Inc
    5× · 2018–2024 · $651k · revenue +123%
  • University of Chicago
    3× · 2019–2022 · $562k · revenue +25%
  • MG
    MASS GENERAL BRIGHAM INCORPORATED & AFFILIATES GROUP RETURN
    3× · 2017–2020 · $132k · revenue +96%

Funded once

  • GEORGETOWN UNIVERSITYgraduated
    one grant, 2017 · $165k · revenue +47%
  • JOHNS HOPKINS UNIVERSITYgraduated
    one grant, 2022 · $100k · revenue +26%
  • RU
    REGENTS UNIV OF CALIFORNIA
    one grant, 2024 · $100k
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
New York University

Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.

Education
2
Sanford Burnham Prebys Medical Discovery Institute

Sanford burnham prebys medical discovery institute's mission is to advance the biomedical sciences by cultivating the next generation of scientific leaders, providing meaningful opportunities for researchers of all backgrounds to learn,…

Health
3
Fred Hutchinson Cancer Center

Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o

Health
4
Albany College of Pharmacy and Health Sciences

We educate the next generation of leaders to improve the health of our society.

Education
5
Memorial Sloan-Kettering Cancer Center

Leadership in the prevention, treatment, and cure of cancer through excellence, vision and cost effectiveness in patient care, outreach programs, research, and education.

Health
6
University of Minnesota Physicians

University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…

Health
7
University of Miami

See Form 990, Part I, Line 1, Description of Organization Mission.

Education
8
University of Southern California

The central mission of the university of southern california is the development of human beings and society as a whole through the cultivation and enrichment of the human mind and spirit. the principal means by which our mission is…

Education
9
Rhode Island Hospital

As a founding hospital in the brown university health system, rih is committed to its mission: delivering health with care.

Health
10
Howard Hughes Medical Institute

The mission of the institute has remained constant since its founding in 1953. as its restated articles of incorporation state the primary purpose and objective of the howard hughes medical institute shall be the promotion of human…

Health
11
Rush University Medical Center

The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.

Health
12
Thomas Jefferson University

Thomas jefferson university ("tju") is a comprehensive university with preeminence in transdisciplinary, experiential professional education, research and discovery, delivering exceptional value for the 21st century students with…

Education
How this is measured
The grantee most central to the portfolio’s shape is Georgetown University; the most unlike its peers is Dana-Farber Cancer Institute Inc. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

21 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 21 of the 33 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
1
Early backer (in before they grew)
20/21
Grantees still filing
20/21
Grew since first funded

Where the money sits, by cause and then by grantee

University of Chicago: $562,017 · EducationUniversity of ChicagoPresident and Fellows of Harvard College: $200,000 · EducationPresident and Fellows of Harvard CollegeTHE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK: $200,000 · EducationTHE TRUSTEES OF COLUMBIA UNIVERSITY IN TH…GEORGETOWN UNIVERSITY: $165,480 · EducationGEORGETOWN UNIVERSITYMassachusetts Institute of Technology: $159,457 · EducationMassachusetts Institute of TechnologyJOHNS HOPKINS UNIVERSITY: $100,000 · EducationJOHNS HOPKINS UNIVERSITYTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $75,000 · Education+2 more: $61,768 · EducationUTMD ANDERSON: $647,471 · OtherUTMD ANDERSONUNIVERSITY OF NEW MEXICO: $245,097 · OtherUNIVERSITY OF NEW MEXICOMASS GENERAL BRIGHAM INCORPORATED: $165,000 · OtherMASS GENERAL BRIGHAM INCORPORATEDREGENTS UNIV OF CALIFORNIA: $100,000 · OtherREGENTS UNIV OF CALIFORNIAVCUVCU HEALTH CAMPUS: $49,989 · Other+8 more: $230,827 · Other+8 moreDana-Farber Cancer Institute Inc: $651,328 · HealthDana-Farber Cancer Institute IncMASS GENERAL BRIGHAM INCORPORATED & AFFILIATES GROUP RETURN: $131,612 · HealthMASS GENERAL BRIGHAM INCORPORATE…MASSACHUSETTS EYE & EAR INFIRMARY: $124,557 · HealthMASSACHUSETTS EYE & EAR INFIRMAR…MASS GENERAL BRIGHAM INCORPORATED: $50,000 · HealthH LEE MOFFITT CANCER CENTER AND RESEARCH INSTITUTE INC: $49,999 · Health+6 more: $174,906 · Health+6 more
Education$1,523,722Other$1,438,384Health$1,182,402

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$100Mgrantee revenue →↑ funder's share of their budgetDana-Farber Cancer Institute Inc: $651,328 over 5y, 0.0% of budgetUniversity of Chicago: $562,017 over 3y, 0.0% of budgetPresident and Fellows of Harvard College: $200,000 over 1y, 0.0% of budgetTHE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK: $200,000 over 1y, 0.0% of budgetGEORGETOWN UNIVERSITY: $165,480 over 1y, 0.0% of budgetMassachusetts Institute of Technology: $159,457 over 3y, 0.0% of budgetMASS GENERAL BRIGHAM INCORPORATED & AFFILIATES GROUP RETURN: $131,612 over 3y, 0.0% of budgetMASSACHUSETTS EYE & EAR INFIRMARY: $124,557 over 3y, 0.0% of budgetJOHNS HOPKINS UNIVERSITY: $100,000 over 1y, 0.0% of budgetTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $75,000 over 1y, 0.0% of budgetMASS GENERAL BRIGHAM INCORPORATED: $50,000 over 1y, 0.0% of budgetH LEE MOFFITT CANCER CENTER AND RESEARCH INSTITUTE INC: $49,999 over 1y, 0.0% of budgetTHE JOHNS HOPKINS HOSPITAL: $37,500 over 2y, 0.0% of budgetTHE MOUNT SINAI HOSPITAL: $37,486 over 2y, 0.0% of budgetBaylor College of Medicine: $36,768 over 1y, 0.0% of budgetCONQUER CANCER FOUNDATION OF THE AMERICAN SOCIETY OF CLINICAL ONCOLOGY: $25,000 over 1y, 0.1% of budgetMISSION HOSPITAL REGIONAL MEDICAL CENTER: $25,000 over 1y, 0.0% of budgetICAHN SCHOOL OF MEDICINE AT MOUNT SINAI: $25,000 over 1y, 0.0% of budgetThe Broad Institute Inc: $25,000 over 1y, 0.0% of budgetTRUSTEES OF BOSTON UNIVERSITY: $20,000 over 1y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

How much its grantees rely on government

Each dot is one organization The Adenoid Cystic Carcinoma Research Foundation funds: left to right is the share of its income from government, bottom to top the share from The Adenoid Cystic Carcinoma Research Foundation. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 10%0%1%3%5%funder's share of their income ↑0%10%20%30%40%share of the org’s income from government →median 12%
  • Massachusetts Institute of Technology: 35% of income from government
  • The Broad Institute Inc: 19% of income from government
  • Johns Hopkins University: 12% of income from government
  • President and Fellows of Harvard College: 7% of income from government
  • Dana-Farber Cancer Institute Inc: 7% of income from government
  • The Johns Hopkins Hospital: 0% of income from government
no gov moneyreceives it· size = income
1get no government money at all
3report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
⤢ axis zoomed · 0–40%
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.
05Through Plinth

Warm introductions · Powered by PlinthPlus

How do I get to The Adenoid Cystic Carcinoma Research Foundation?

Find your warmest path to The Adenoid Cystic Carcinoma Research Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 33 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

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