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National Down Syndrome Congress at a glanceMostly funded, not a grantmaker: see who funds it →

· Public charity

National Down Syndrome Congress

The mission of the NATIONAL DOWN SYNDROME CONGRESS is to provide information, advocacy, and support concerning all aspects of life for individuals with down syndrome.ndsc exists with the purpose to promote the interests of people with down syndrome, to educate through awareness, to advocate and ensure their rights are recognized and…

$43k
Granted FY2025still arriving
3
Grants FY2025still arriving
3
States reached
$5k
Largest
01What it fundsRead
02The needRead
03Its fieldRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2022 to 2025.

Philanthropy$24kHealth$19kEducation$15kHuman Services$15k
02FY2025 · 3 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 3 grants below total $15,300, the rows itemized in this filing. The $42,800 headline is the total grant expense on the return; the other $27,500 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.
$5,100
Median grant
3
States reached
$745k
Total assets
Largest grants
RecipientAmount
BERRY COLLEGE$5,100
SYRACUSE UNIVERSITY$5,100
UNIVERSITY OF TENNESSEE FOUNDATION$5,100
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY22–25) land where the poverty rate runs at 12%, against an area that typically sits at 9%. 85% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 9%DOWN SYNDROME DIAGNOSIS NETWORK: $5k → 6%DOWN SYNDROME AFFILIATES IN ACTION: $10k → 13%SYRACUSE UNIVERSITY: $5k → 14%UNIVERSITY OF TENNESSEE FOUNDATION: $5k → 12%NDSC FOUNDATION INC: $24k → 13%BERRY COLLEGE: $5k → 15%GLOBAL DOWN SYNDROME FOUNDATION: $9k → 12%DOWN SYNDROME DIAGNOSIS NETWORK: $5k → 6%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.
How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving.
03Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
Dysimmune Diseases Foundation
Health
2
North Carolina Down Syndrome Alliance Inc

To empower, connect, and support the lifespan of individuals with down syndrome, their families, and the community through outreach, advocacy, and education in north carolina.

Human Services
3
National Down Syndrome Congress

The mission of the national down syndrome congress is to provide information, advocacy, and support concerning all aspects of life for individuals with down syndrome.ndsc exists with the purpose to promote the interests of people with down…

Health
4
Down Syndrome Association of South Georgia Inc
Health
5
Down Syndrome Association of Middle Tennessee

The organizations mission is to enhance the quality of life throughout the life span of all individuals with down syndrome by providing support, information and education to families, professionals and communities.

Health
6
National Down Syndrome Society

The National Down Syndrome Society empowers individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities, and shifting public perceptions.

—
7
Down Syndrome Association of Maryland

We empower individuals with down syndrome and their communities through education, resources, outreach and advocacy. we are committed to amplifying our collective voices and broader needs to drive meaningful change.

Human Services
8
Down Syndrome Society of Rhode Island Inc

A parent support organization dedicated to promoting the rights, dignity and potential of all individuals with down syndrome through advocacy, education, public awareness and support.

Health
9
Lysosomal and Rare Disorders Research and Treatment Center Inc

The mission of the lysosomal and rare disorders research and treatment center (ldrtc) is to improve the diagnosis, treatment, and understanding of lysosomal and other rare genetic disorders by conducting scientific research, advancing…

Health
10
Massachusetts Down Syndrome Congress Inc

To ensure individuals with down syndrome in massachusetts are valued, included, and given the opportunities to pursue fulfilling lives by providing information, networking opportunities, and advocacy for people with down syndrome and their…

—
11
Dravet Syndrome Foundation Inc

The mission of the Dravet Syndrome Foundation is to aggressively raise funds for Dravet syndrome & related epilepsies; support & fund research; increase awareness; & provide support to affected individuals & families. We understand the…

Philanthropy
12
Dup 15Q Alliance

Dup15q alliance empowers individuals living with dup15q syndrome and other related rare diseases to reach their full potential by advancing breakthrough research and life-changing therapeutic treatments, supporting families affected by…

Health
How this is measured
The grantee most central to the portfolio’s shape is Down Syndrome Affiliates in Action; the most unlike its peers is Berry College Inc. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

8 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

1
Load-bearing (≥25% of a budget)
1
Early backer (in before they grew)
8/8
Grantees still filing
2/8
Grew since first funded

Where the money sits, by cause and then by grantee

NDSC FOUNDATION INC: $23,500 · PhilanthropyNDSC FOUNDATION INCDOWN SYNDROME DIAGNOSIS NETWORK: $10,000 · HealthDOWN SYNDROME DIAGNOSIS NETWO…GLOBAL DOWN SYNDROME FOUNDATION: $9,000 · HealthGLOBAL DOWN SYNDROME FOUNDATI…THE UNIVERSITY OF TENNESSEE FOUNDATION INC: $5,100 · EducationTHE UNIVERSITY OF TENNE…SYRACUSE UNIVERSITY: $5,100 · EducationSYRACUSE UNIVERSITYBERRY COLLEGE INC: $5,100 · EducationBERRY COLLEGE INCDOWN SYNDROME AFFILIATES IN ACTION: $10,000 · OtherDOWN SYNDROME A…ASSOCIATION OF UNIVERSITY CENTERS ON DISABILITIES: $5,000 · Human Services
Philanthropy$23,500Health$19,000Education$15,300Other$10,000Human Services$5,000

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$1.0M$10M$100Mgrantee revenue →↑ funder's share of their budgetNDSC FOUNDATION INC: $23,500 over 1y, 37% of budgetDOWN SYNDROME DIAGNOSIS NETWORK: $10,000 over 2y, 0.9% of budgetDOWN SYNDROME AFFILIATES IN ACTION: $10,000 over 1y, 6.4% of budgetGLOBAL DOWN SYNDROME FOUNDATION: $9,000 over 1y, 0.2% of budgetTHE UNIVERSITY OF TENNESSEE FOUNDATION INC: $5,100 over 1y, 0.0% of budgetSYRACUSE UNIVERSITY: $5,100 over 1y, 0.0% of budgetBERRY COLLEGE INC: $5,100 over 1y, 0.0% of budgetASSOCIATION OF UNIVERSITY CENTERS ON DISABILITIES: $5,000 over 1y, 0.1% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

How much its grantees rely on government

Each dot is one organization National Down Syndrome Congress funds: left to right is the share of its income from government, bottom to top the share from National Down Syndrome Congress. Bigger dots raise more.

2025
’20’21’22’23’24’25
no gov · 00%3%10%23%40%funder's share of their income ↑0%25%50%75%100%share of the org’s income from government →median 52%
  • Association of University Centers On Disabilities: 52% of income from government
no gov moneyreceives it· size = income
0get no government money at all
1rely on government for over half their income
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 8 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

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The endowment market
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By state
where grant money is based, and what stays home