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· Public charity

Muscular Dystrophy Association Inc

Muscular dystrophy association (mda) is the #1 voluntary health organization in the united states for people living with muscular dystrophy, als, and related neuromuscular diseases.

$14M
Granted FY2025still arriving
193
Grants FY2025still arriving
47
States reached
$642k
Largest
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.

Health$101MScience & Tech$24MEducation$10MRecreation & Sports$653kYouth Development$132kHuman Services$110kCivil Rights$7k
02FY2025 · 193 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 193 grants below total $12,572,359, the rows itemized in this filing. The $14,147,711 headline is the total grant expense on the return; the other $1,575,352 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.

By grant size · FY2025

  • Under $10k5 grants · $34k
  • $10k–50k110 grants · $2.9M
  • $50k–250k70 grants · $6.5M
  • $250k+8 grants · $3.2M
$40,000
Median grant
47
States reached
$51M
Total assets
Largest grants
RecipientAmount
UNIVERSITY OF WASHINGTON MEDICAL CENTER$641,819
JOHNS HOPKINS UNIVERSITY- CG$578,750
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES$410,998
UNIVERSITY OF ROCHESTER -$398,910
MASSACHUSETTS GENERAL HOSPITAL$377,699
REGENTS OF THE UNIVERSITY OF MINNESOTA - TWIN CITIES$272,950
CHILDREN'S RESEARCH INSTITUTE (CNMC)$258,963
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK$250,000
UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC$206,922
COLUMBIA UNIVERSITY MEDICAL CENTER$196,318
UNIVERSITY OF FLORIDA$191,500
THE BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINOIS - UNIV OF ILLINOIS AT$189,982
THE RESEARCH FOUNDATION FOR THE STATE UNIVERSITY OF NEW YORK$189,470
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA (UNIVERSITY OF CALIFORNIA DAVIS$188,722
EMORY UNIVERSITY$159,603
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Its human-services grants (FY17–25, $770k) land where the poverty rate runs at 13%, against an area that typically sits at 10%. 74% of those dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 10%ALL WHEELS UP INC: $75k → 8%CAMP COLE: $43k → 16%CAMP COURAGEOUS OF IOWA: $56k → 11%RECREATION UNLIMITED FARM AND FUN: $40k → 11%YMCA CAMP SEYMOUR: $49k → 9%ALL WHEELS UP INC: $35k → 8%CAMP COLE: $22k → 16%CAMP COURAGEOUS OF LOWA: $53k → 11%RECREATION UNLIMITED FARM AND FUN: $31k → 11%YMCA CAMP SEYMOUR: $43k → 9%METHODIST LE BONHEUR COMMUNITY OUTREACH: $59k → 17%METHODIST LE BONHEUR COMMUNITY OUTREACH: $51k → 17%METHODIST LE BONHEUR COMMUNITY OUTREACH: $51k → 17%METHODIST LE BONHEUR COMMUNITY OUTREACH ATTN GRANT ADMINSTRATOR: $50k → 17%METHODIST LE BONHEUR COMMUNITY OUTREACH: $43k → 17%METHODIST LE BONHEUR COMMUNITY OUTREACH: $25k → 17%Le Bonheur Community Health: $25k → 17%LE BONHEUR COMMUNITY HEALTH AN WELL BEING: $19k → 17%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

ME
VT
NH
WA
ID
MT
ND
MN
IL
WI
MI
NY
MA
OR
NV
WY
SD
IA
IN
OH
PA
NJ
CT
RI
CA
UT
CO
NE
MO
KY
WV
VA
MD
AZ
NM
KS
AR
TN
NC
SC
DC
OK
LA
MS
AL
GA
TX
FL
How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

98%of every dollar goes to organizations it has funded before.
$125M · 251 repeat orgs$3.0M to everyone else

Grantees it renews have grown median revenue +53% since the first grant, against +10% for those funded once.

251 repeat relationships: 168 still active in FY2025, 83 since wound down; 10 grantees were first funded in FY2025 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

251
46

Total granted

$125M
$2.7M

Median revenue growth · since first grant

+53%
+10%

Still filing today

59%
30%

New vs renewed · share of each year

In FY2025, 98% of grant dollars renewed an existing relationship; $262k went to new ones.

50%100%’17’18’19’20’21’22’23’24’25
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’22’23’24’25
HealthEducationRecreation & SportsHuman ServicesYouth DevelopmentScience & TechOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • JOHNS HOPKINS UNIVERSITY
    9× · 2017–2025 · $6.8M · revenue +64%
  • UO
    University of Miami
    9× · 2017–2025 · $4.6M · revenue +96%
  • UNIVERSITY OF ROCHESTER
    9× · 2017–2025 · $4.2M · revenue +81%

Funded once

  • MT
    MYOSANA THERAPEUTICS INC
    one grant, 2022 · $650k
  • MG
    MASS GENERAL BRIGHAM INCORPORATED
    one grant, 2022 · $228k
  • AB
    ASKLEPIOS BIOPHARMACEUTICAL INC
    one grant, 2019 · $193k
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
University of Minnesota Physicians

University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…

Health
2
The Johns Hopkins Hospital

For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…

Health
3
Memorial Sloan-Kettering Cancer Center

Leadership in the prevention, treatment, and cure of cancer through excellence, vision and cost effectiveness in patient care, outreach programs, research, and education.

Health
4
Fred Hutchinson Cancer Center

Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o

Health
5
Children's Health Care

We champion the health needs of children and families. we are committed to improving children's health by providing the highest-quality, family centered care, advanced through research and education.

Health
6
Truman Medical Center Incorporated

University health is an academic health center providing accessible, state-of-the-art quality healthcare to our community regardless of the ability to pay.

Health
7
University of Chicago Medical Center

Our mission at the university of chicago medicine is to provide superior health care through rigorous research, innovative education, and comprehensive care and healing. in partnership with our colleagues, we pursue life-changing…

Health
8
Mass General Brigham Incorporated & Affiliates Group Return

Mass general brigham incorporated is developing an integrated health care delivery system throughout the region that offers patients a continuum of coordinated, high-quality care.

Health
9
Children's Hospital & Research Center At Oakland

The mission of children's hospital & research center at oakland is to protect and advance the health and well-being of children through clinical care, teaching and research.

Health
10
Albany College of Pharmacy and Health Sciences

We educate the next generation of leaders to improve the health of our society.

Education
11
Southern California University of Health Sciences

The mission of southern california university of health sciences (scu) is to educate students as competent, caring and successful practitioners of integrative healthcare. the university is committed to providing excellence in academics,…

Education
12
Massachusetts Eye & Ear Infirmary

THE MASSACHUSETTS EYE AND EAR INFIRMARY ("THE INFIRMARY") IS A NOT-FOR-PROFIT TEACHING HOSPITAL CONDUCTING PATIENT CARE AND RESEARCH. THE INFIRMARY IS A TEACHING HOSPITAL OF HARVARD MEDICAL SCHOOL AND AN INTERNATIONAL CENTER FOR RESEARCH.…

Health
How this is measured
The grantee most central to the portfolio’s shape is Children's Hospital Medical Center; the most unlike its peers is The Speak Foundation Inc. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

182 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 182 of the 317 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

2
Load-bearing (≥25% of a budget)
16
Early backer (in before they grew)
179/182
Grantees still filing
145/182
Grew since first funded

Where the money sits, by cause and then by grantee

UNIVERSITY OF FLORIDA: $3,806,805 · OtherUNIVERSITY OF FLORIDAREGENTS UNIV OF CALIFORNIA: $3,573,053 · OtherREGENTS UNIV OF CALIFORNIAMASS GENERAL BRIGHAM INCORPORATED: $3,502,980 · OtherMASS GENERAL BRIGHAM INCORPORATEDUNIVERSITY OF WASHINGTON: $3,089,709 · OtherState University of Iowa: $2,698,797 · OtherUNIVERSITY OF MINNESOTA: $2,267,844 · Other+93 more: $43,809,523 · Other+93 moreJOHNS HOPKINS UNIVERSITY: $6,835,273 · EducationJOHNS HOPKINS UNIVERSITYUniversity of Miami: $4,616,591 · EducationUniversity of MiamiUNIVERSITY OF ROCHESTER: $4,246,168 · EducationUNIVERSITY OF ROCHESTERTHE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK: $3,543,850 · EducationTHE TRUSTEES OF COLUMBIA UNIVERSI…The Research Foundation for The State University of New York: $2,833,052 · EducationThe Research Foundation for The S…WASHINGTON UNIVERSITY: $2,012,667 · EducationEmory University: $1,941,846 · EducationYale University: $1,685,017 · EducationBaylor College of Medicine: $1,575,989 · Education+23 more: $9,123,263 · Education+23 moreUNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE: $3,598,082 · HealthUNIVERSITY OF KANSAS ME…Children's Hospital Corporation: $2,256,568 · HealthChildren's Hospital Cor…ATRIUM HEALTH FOUNDATION: $1,980,354 · HealthATRIUM HEALTH FOUNDATIO…CHILDREN'S RESEARCH INSTITUTE: $1,127,171 · HealthVanderbilt University Medical Center: $1,018,433 · HealthTHE CHILDREN'S HOSPITAL OF PHILADELPHIA: $965,011 · Health+55 more: $15,962,447 · Health+55 moreNorthwestern University: $607,651 · Recreation & SportsHAPPINESS IS CAMPING: $129,275 · Recreation & SportsResearch Triangle Institute: $375,000 · Science & TechHUDSON-ALPHA INSTITUTE FOR BIOTECHNOLOGY: $285,157 · Science & TechMethodist Le Bonheur Community Outreach: $338,158 · Human ServicesALL WHEELS UP INC: $110,000 · Human ServicesCAMP COURAGEOUS OF IOWA: $109,486 · Human ServicesBROWN UNIVERSITY: $525,973 · Community Improvement
Other$62,748,711Education$38,413,716Health$26,908,066Recreation & Sports$736,926Science & Tech$660,157Human Services$557,644Community Improvement$525,973

Showing the 200 largest grantees by grant value.

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$1.0M$10M$100Mgrantee revenue →↑ funder's share of their budgetJOHNS HOPKINS UNIVERSITY: $6,835,273 over 9y, 0.0% of budgetUniversity of Miami: $4,616,591 over 9y, 0.0% of budgetUNIVERSITY OF ROCHESTER: $4,246,168 over 9y, 0.0% of budgetUNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE: $3,598,082 over 9y, 0.5% of budgetTHE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK: $3,543,850 over 9y, 0.0% of budgetThe Research Foundation for The State University of New York: $2,833,052 over 9y, 0.1% of budgetChildren's Hospital Corporation: $2,256,568 over 9y, 0.0% of budgetWASHINGTON UNIVERSITY: $2,012,667 over 9y, 0.0% of budgetATRIUM HEALTH FOUNDATION: $1,980,354 over 9y, 0.7% of budgetEmory University: $1,941,846 over 9y, 0.0% of budgetYale University: $1,685,017 over 9y, 0.0% of budgetBaylor College of Medicine: $1,575,989 over 7y, 0.0% of budgetUNIVERSITY OF PITTSBURGH: $1,238,105 over 7y, 0.0% of budgetTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $1,167,362 over 9y, 0.0% of budgetCHILDREN'S RESEARCH INSTITUTE: $1,127,171 over 7y, 0.4% of budgetVanderbilt University Medical Center: $1,018,433 over 9y, 0.0% of budgetTHE CHILDREN'S HOSPITAL OF PHILADELPHIA: $965,011 over 9y, 0.0% of budgetTHOMAS JEFFERSON UNIVERSITY: $940,939 over 9y, 0.1% of budgetLudwig Institute for Cancer Research Ltd: $932,513 over 6y, 0.4% of budgetTHE NEMOURS FOUNDATION: $826,525 over 9y, 0.0% of budgetTHE METHODIST HOSPITAL FOUNDATION: $740,800 over 5y, 0.4% of budgetCEDARS-SINAI MEDICAL CENTER: $644,237 over 9y, 0.0% of budgetAnn & Robert H Lurie Children's Hospital of Chicago: $637,500 over 9y, 0.0% of budgetNorthwestern University: $607,651 over 4y, 0.0% of budgetDUKE UNIVERSITY HEALTH SYSTEM INC: $600,000 over 5y, 0.0% of budgetSANFORD BURNHAM PREBYS MEDICAL DISCOVERY INSTITUTE: $584,368 over 6y, 0.2% of budgetThe George Washington University: $557,625 over 3y, 0.0% of budgetST PETER'S HOSPITAL FOUNDATION INC: $537,500 over 8y, 3.4% of budgetBROWN UNIVERSITY: $525,973 over 4y, 0.0% of budgetTMH PHYSICIAN ORGANIZATION: $499,450 over 6y, 0.0% of budgetCHILDREN'S HOSPITAL MEDICAL CENTER: $491,935 over 7y, 0.0% of budgetTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $491,832 over 6y, 0.0% of budgetChildren's Hospital Colorado: $475,958 over 9y, 0.0% of budgetHospital For Special Care: $473,725 over 9y, 0.1% of budgetNEW YORK SOCIETY FOR THE RELIEF OF THE RUPTURED AND CRIPPLED MAINTAINING THE: $447,325 over 9y, 0.0% of budgetNew York University: $437,500 over 9y, 0.0% of budgetGillette Children's Specialty Healthcare: $437,500 over 9y, 0.0% of budgetMONTEFIORE MEDICAL CENTER: $429,167 over 9y, 0.0% of budgetLOMA LINDA UNIVERSITY: $418,750 over 9y, 0.0% of budgetDana-Farber Cancer Institute Inc: $405,000 over 6y, 0.0% of budgetTHE SCRIPPS RESEARCH INSTITUTE: $375,000 over 5y, 0.0% of budgetDUKE UNIVERSITY: $375,000 over 4y, 0.0% of budgetResearch Triangle Institute: $375,000 over 5y, 0.0% of budgetSHRINERS HOSPITALS FOR CHILDREN: $362,083 over 9y, 0.0% of budgetTemple University - Of The Commonwealth System of Higher Education: $346,225 over 9y, 0.0% of budgetCornell University: $344,998 over 3y, 0.0% of budgetMethodist Le Bonheur Community Outreach: $338,158 over 9y, 0.4% of budgetAMERICAN BRAIN FOUNDATION: $335,832 over 4y, 3.4% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

  • Who funds JOHNS HOPKINS UNIVERSITY ↗
  • Who funds University of Miami ↗
  • Who funds UNIVERSITY OF ROCHESTER ↗
  • Who funds UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE ↗
  • Who funds THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK ↗
  • Who funds The Research Foundation for The State University of New York ↗
  • Who funds Children's Hospital Corporation ↗
  • Who funds WASHINGTON UNIVERSITY ↗
  • Who funds ATRIUM HEALTH FOUNDATION ↗
  • Who funds Emory University ↗
  • Who funds Yale University ↗
  • Who funds Baylor College of Medicine ↗
  • Who funds UNIVERSITY OF PITTSBURGH ↗
  • Who funds TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA ↗
  • Who funds CHILDREN'S RESEARCH INSTITUTE ↗
  • Who funds Vanderbilt University Medical Center ↗
  • Who funds THE CHILDREN'S HOSPITAL OF PHILADELPHIA ↗
  • Who funds THOMAS JEFFERSON UNIVERSITY ↗
  • Who funds Ludwig Institute for Cancer Research Ltd ↗

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.

Cystic Fibrosis FoundationMD80.3× affinity38 shared granteesties to 11 of 11Hover any node to trace its alignments.Compare side by side →

Open a dossier: Cystic Fibrosis Foundation · Amyotrophic Lateral Sclerosis Assn · The Children's Hospital of Philadelphia · The Children's Oncology Group Foundation Inc · American Cancer Society Inc · Vanderbilt University Medical Center · Mayo Clinic · Public Health Institute · American Heart Association Inc · The Trustees of Columbia University in the City of New York · Yale University · Washington University

How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

How much its grantees rely on government

Each dot is one organization Muscular Dystrophy Association Inc funds: left to right is the share of its income from government, bottom to top the share from Muscular Dystrophy Association Inc. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 20%3%10%23%40%funder's share of their income ↑0%25%50%75%100%share of the org’s income from government →median 7%
  • Massachusetts Institute of Technology: 35% of income from government
  • The Broad Institute Inc: 19% of income from government
  • Trustees of Tufts College: 13% of income from government
  • Trustees of Boston University: 12% of income from government
  • Johns Hopkins University: 12% of income from government
  • The Trustees of the Stevens Institute of Technology: 12% of income from government
  • Yale University: 12% of income from government
  • Children's Hospital Corporation: 10% of income from government
  • President and Fellows of Harvard College: 7% of income from government
  • Dana-Farber Cancer Institute Inc: 7% of income from government
  • University of Miami: 5% of income from government
  • Connecticut Children's Medical Center: 5% of income from government
  • The University of Vermont Medical Center: 1% of income from government
  • The Nemours Foundation: 0% of income from government
  • Hospital for Special Care: 0% of income from government
  • Shriners Hospitals for Children: 0% of income from government
  • BayCare Medical Group Inc: 0% of income from government
no gov moneyreceives it· size = income
2get no government money at all
15report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 317 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

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