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Huntington's Disease Foundation at a glanceAlso receives grants: funding profile →

· Public charity

Huntington's Disease Foundation

To fund transformative research to find treatments, and ultimately a cure, for huntington's disease.

$3.2M
Granted FY2025still arriving
11
Grants FY2025still arriving
5
States reached
$200k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.

Science & Tech$4.8MHealth$4.4MEducation$2.9MPublic Benefit$202k
02FY2025 · 11 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 11 grants below total $1,400,000, the rows itemized in this filing. The $3,152,522 headline is the total grant expense on the return; the other $1,752,522 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.
$100,000
Median grant
5
States reached
$23M
Total assets
Largest grants
RecipientAmount
THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY$200,000
MASSACHUSETTS INSTITUTE OF TECHNOLOGY - MIT$200,000
MASSACHUSETTS GENERAL HOSPITAL (MASS GENERAL)$200,000
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES$200,000
MASSACHUSETTS INSTITUTE OF TECHNOLOGY - MIT$100,000
CHAN ZUCKERBERG BIOHUB (SAN FRANCISCO)$100,000
THE CORPORATION OF MERCER UNIVERSITY$100,000
WASHINGTON UNIVERSITY$100,000
MASSACHUSETTS GENERAL HOSPITAL (MASS GENERAL)$100,000
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK$50,000
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES$50,000
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY17–25) land where the poverty rate runs at 14%, against an area that typically sits at 10%. 75% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 10%Whitehead Institute: $75k → 8%University Mass Medical Sch: $120k → 11%CHILDREN'S HOSPITAL OF PHILADELPHIA: $1.1M → 22%THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $200k → 7%STANFORD UNIVERSITY: $206k → 8%Univ of California Irvine: $207k → 10%J DAVID GLADSTONE INSTITUTES: $100k → 10%REGENTS OF THE UNIV OF CA - SAN DIEGO: $100k → 11%The Trustees Of Columbia Uni: $150k → 17%UT Southwestern MedicalCenter: $137k → 14%WASHINGTON UNIVERSITY SCHOOL OF MEDICINE IN ST LOUIS: $1.1M → 11%WASHINGTON UNIVERSITY: $78k → 21%THE CORPORATION OF MERCER UNIVERSITY: $100k → 23%NORTHWESTERN UNIVERSITY: $200k → 14%MASSACHUSETTS GENERAL HOSPITAL: $204k → 8%MASSACHUSETTS GENERAL HOSPITAL: $1.1M → 16%CHILDREN'S HOSPITAL OF PHILADELPHIA: $214k → 22%THE BOARD OF TRUSTEES OF THE LELAND STANF: $176k → 7%STANFORD UNIVERSITY: $178k → 8%UNIVERSITY OF CALIFORNIA IRVINE: $201k → 10%CHAN ZUCKERBERG BIOHUB (SAN FRANCISCO): $100k → 10%TRUSTEES OF COLUMBIA UNIVERSITY: $150k → 17%WASHINGTON UNIVERSITY: $100k → 9%MASSACHUSETTS GENERAL HOSPITAL (MASS GENERAL): $200k → 16%CHILDREN'S HOSPITAL OF PHILADELPHIA THE: $100k → 22%THE BOARD OF TRUSTEES OF THE LELAND STANFORD: $135k → 7%Stanford University: $150k → 8%UNIVERSITY OF CALIFORNIA - IRVINE: $150k → 10%THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES: $200k → 14%MASSACHUSETTS INSTITUTE OF TECHNOLOGY: $223k → 8%Massachusetts General Hosp: $127k → 16%Stanford University: $132k → 8%REGENTS OF THE UNIVERSITY OF CA IRVINE: $100k → 10%UCLA: $110k → 14%MASSACHUSETTS INSTITUTE OF TECHNOLOGY - MIT: $200k → 8%CENTER FOR GENOMIC MEDICINE MASSACHUSETTS GENERAL HOSPITAL: $100k → 16%THE REGENTS UN OF CALIFORNIA -LOSANGELES: $100k → 14%Columbia University Med Ctr: $150k → 17%MASSACHUSETTS INSTITUTE OF TECHNOLOGY: $186k → 8%MASSACHUSETTS GENERAL HOSPITAL (MASS GENERAL): $100k → 16%Mass Institute of Technology: $111k → 8%MASSACHUSETTS INSTITUTE OF TECHNOLOGY: $100k → 8%THOMAS JEFFERSON UNIVERSITY: $135k → 22%NEW YORK GENOME CENTER: $275k → 17%MASSACHUSETTS INSTITUTE OF TECHNOLOGY - MIT: $100k → 8%Mass Institute of Technology: $80k → 8%Ludwig Inst for Cancer Resea: $129k → 17%Broad Institute: $120k → 8%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

WA
IL
WI
NY
MA
PA
CA
MO
NC
AL
GA
TX
FL

Grants abroad, by region: $1.7M on the FY2025 return

Schedule F, as filed: 2 regions. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.

North America (Canada and Mexico)$1.6M · 94% · 6 grants

Stated purpose: SCIENTIFIC RESEARCH

France$100k · 6% · 1 grant

Stated purpose: SCIENTIFIC RESEARCH

How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

79%of every dollar goes to organizations it has funded before.
$7.2M · 12 repeat orgs$2.0M to everyone else

Grantees it renews have grown median revenue +45% since the first grant, against +44% for those funded once.

12 repeat relationships: 3 still active in FY2025, 9 since wound down; 2 grantees were first funded in FY2025 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

12
17

Total granted

$7.2M
$1.8M

Median revenue growth · since first grant

+45%
+44%

Still filing today

42%
65%

New vs renewed · share of each year

In FY2025, 76% of grant dollars renewed an existing relationship; $200k went to new ones.

50%100%’17’18’19’20’21’22’23’24’25
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’22’23’24’25
EducationHealthScience & TechMembership BenefitRecreation & SportsOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • TC
    THE CHILDREN'S HOSPITAL OF PHILADELPHIA
    3× · 2021–2024 · $1.5M · revenue +45%
  • WASHINGTON UNIVERSITY
    2× · 2021–2024 · $1.2M · revenue +21%
  • TJ
    THOMAS JEFFERSON UNIVERSITY
    3× · 2018–2021 · $285k · revenue +127%

Funded once

  • CI
    CORIELL INSTITUTE FOR MEDICAL RESEARCH INCgraduated
    one grant, 2017 · $275k · revenue +32%
  • Northwestern University
    one grant, 2024 · $200k · revenue 0%
  • UO
    UNIVERSITY OF FLORIDA
    one grant, 2023 · $150k
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
New York University

Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.

Education
2
Drexel University

Drexel university fulfills its founder's vision of preparing each new generation of students for productive professional and civic lives while also focusing its collective expertise on solving society's greatest problems. drexel is an…

Education
3
University of Miami

See Form 990, Part I, Line 1, Description of Organization Mission.

Education
4
University of Minnesota Physicians

University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…

Health
5
Institute for Advanced Study - Louis Bamberger & Mrs Felix Fuld Foundation

The institute for advanced study (the institute) is one of the world's leading centers for theoretical research and intellectual inquiry. see schedule o.

Science & Tech
6
Albany College of Pharmacy and Health Sciences

We educate the next generation of leaders to improve the health of our society.

Education
7
Cornell University

Education, research, medical services and other public services.

Education
8
The Johns Hopkins Hospital

For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…

Health
9
Fred Hutchinson Cancer Center

Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o

Health
10
Western New England University

Western new england university, a comprehensive private institution with a tradition of excellence in teaching and scholarship and a commitment to service, awards undergraduate, master's, and doctoral degrees in various departments from…

Education
11
Southern California University of Health Sciences

The mission of southern california university of health sciences (scu) is to educate students as competent, caring and successful practitioners of integrative healthcare. the university is committed to providing excellence in academics,…

Education
12
Memorial Sloan-Kettering Cancer Center

Leadership in the prevention, treatment, and cure of cancer through excellence, vision and cost effectiveness in patient care, outreach programs, research, and education.

Health
How this is measured
The grantee most central to the portfolio’s shape is Massachusetts Institute of Technology; the most unlike its peers is Ny Presbyterian Hospital Columbia University Medical Ctrnysna Retiree Medic Al Plan Trust. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

22 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 22 of the 36 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
0
Early backer (in before they grew)
22/22
Grantees still filing
17/22
Grew since first funded

Where the money sits, by cause and then by grantee

WASHINGTON UNIVERSITY: $1,182,270 · EducationWASHINGTON UNIVERSITYTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $1,176,121 · EducationTHE BOARD OF TRUSTEES OF THE LELAND STANFORD J…Massachusetts Institute of Technology: $1,168,183 · EducationMassachusetts Institute of TechnologyTHE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK: $625,000 · EducationTHE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CIT…THOMAS JEFFERSON UNIVERSITY: $285,320 · EducationTHOMAS JEFFERSON UNIVERSITY+7 more: $562,883 · Education+7 moreMASS GENERAL BRIGHAM INCORPORATED: $1,810,482 · OtherMASS GENERAL BRIGHAM INCORPORATEDREGENTS OF THE UNIVERSITY OF CALIFORNIA AT IRVINE: $807,220 · OtherREGENTS OF THE UNIVERSITY OF CALIFORNIA AT …REGENTS UNIV OF CALIFORNIA: $534,550 · OtherREGENTS UNIV OF CALIFORNIAUNIVERSITY OF MASSACHUSETTS: $250,444 · OtherUNIVERSITY OF WASHINGTON: $175,000 · Other+10 more: $1,166,092 · Other+10 moreTHE CHILDREN'S HOSPITAL OF PHILADELPHIA: $1,464,388 · HealthTHE CHILDREN'S HOS…THE J DAVID GLADSTONE INSTITUTES: $250,000 · HealthTHE J DAVID GLADST…The Broad Institute Inc: $120,380 · HealthThe Broad Institut…NEW YORK GENOME CENTER INC: $75,000 · HealthWHITEHEAD INSTITUTE FOR BIOMEDICAL RESEARCH: $75,000 · Health+1 more: $46,738 · HealthCORIELL INSTITUTE FOR MEDICAL RESEARCH INC: $275,208 · Science & TechNorthwestern University: $200,000 · Recreation & SportsNY PRESBYTERIAN HOSPITAL COLUMBIA UNIVERSITY MEDICAL CTRNYSNA RETIREE MEDIC AL PLAN TRUST: $46,980 · Membership Benefit
Education$4,999,777Other$4,743,788Health$2,031,506Science & Tech$275,208Recreation & Sports$200,000Membership Benefit$46,980

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$10M$100Mgrantee revenue →↑ funder's share of their budgetTHE CHILDREN'S HOSPITAL OF PHILADELPHIA: $1,464,388 over 3y, 0.0% of budgetWASHINGTON UNIVERSITY: $1,182,270 over 2y, 0.0% of budgetTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $1,176,121 over 6y, 0.0% of budgetMassachusetts Institute of Technology: $1,168,183 over 8y, 0.0% of budgetTHE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK: $625,000 over 5y, 0.0% of budgetTHOMAS JEFFERSON UNIVERSITY: $285,320 over 3y, 0.0% of budgetCORIELL INSTITUTE FOR MEDICAL RESEARCH INC: $275,208 over 1y, 1.4% of budgetTHE J DAVID GLADSTONE INSTITUTES: $250,000 over 3y, 0.1% of budgetNorthwestern University: $200,000 over 1y, 0.0% of budgetCALIFORNIA INSTITUTE OF TECHNOLOGY: $150,000 over 2y, 0.0% of budgetLudwig Institute for Cancer Research Ltd: $129,056 over 1y, 0.2% of budgetThe Broad Institute Inc: $120,380 over 1y, 0.0% of budgetTHE CORPORATION OF MERCER UNIVERSITY: $100,000 over 1y, 0.0% of budgetTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $75,000 over 1y, 0.0% of budgetNEW YORK GENOME CENTER INC: $75,000 over 1y, 0.1% of budgetTHE MEDICAL COLLEGE OF WISCONSIN INC: $75,000 over 1y, 0.0% of budgetUNIVERSITY OF SOUTHERN CALIFORNIA: $75,000 over 1y, 0.0% of budgetWHITEHEAD INSTITUTE FOR BIOMEDICAL RESEARCH: $75,000 over 1y, 0.1% of budgetUNIVERSITY OF ROCHESTER: $75,000 over 1y, 0.0% of budgetNY PRESBYTERIAN HOSPITAL COLUMBIA UNIVERSITY MEDICAL CTRNYSNA RETIREE MEDIC AL PLAN TRUST: $46,980 over 1y, 1.8% of budgetTHE CHILDREN'S HOSPITAL OF PHILADELPHIA FOUNDATION: $46,738 over 1y, 0.0% of budgetDUKE UNIVERSITY: $12,883 over 1y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a set of overlaps that mostly run through this funder rather than between each other.

Silicon Valley Commun…
Silicon Valley Community FoundationCA12.3× affinity4 shared granteesties to 0 of 0Hover any node to trace its alignments.Compare side by side →

Open a dossier: Silicon Valley Community Foundation

How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

How much its grantees rely on government

Each dot is one organization Huntington's Disease Foundation funds: left to right is the share of its income from government, bottom to top the share from Huntington's Disease Foundation. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 00%0%1%3%5%funder's share of their income ↑0%25%50%75%100%share of the org’s income from government →median 35%
  • Coriell Institute for Medical Research Inc: 44% of income from government
  • Massachusetts Institute of Technology: 35% of income from government
  • The Broad Institute Inc: 19% of income from government
  • Whitehead Institute for Biomedical Research: 7% of income from government
no gov moneyreceives it· size = income
0get no government money at all
0rely on government for over half their income
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 36 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

Play a game based on Huntington's Disease’s filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home