New York · Public charity
Huntington's Disease Foundation
To fund transformative research to find treatments, and ultimately a cure, for huntington's disease.
- $3.2M
- Granted FY2025(still arriving)
- 11
- Itemized grants FY2025
- 7
- Organizations funded FY2024
- 43%
- First-time grantees FY2024
- Itemized, FY2025
- $1.4M
- The rest is grants the schedule does not break out
- Median grant, FY2025
- $100,000
- Largest grant, FY2025
- $200,000
- Organizations funded a year
- 2 to 10
- FY2018 to FY2024
- States reached, FY2025
- 5
- Total assets, FY2025
- $23M
How open it is to new grantees
In FY2024, 43% of the organizations Huntington's Disease Foundation funded were first-time grantees, receiving 22% of its grant dollars.
New vs renewed · share of each year
In FY2024, 78% of grant dollars renewed an existing relationship; $400k went to new ones.
RenewedFirst-time
Where new relationships form · theme of each grantee’s first grant
HealthEducationRecreation & SportsOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.
The numbers by year
| Fiscal year | Organizations funded | To those organizations | First-time grantees |
|---|---|---|---|
| FY2025still arriving | 5 | $850k | 40% |
| FY2024 | 7 | $1.8M | 43% |
| FY2023 | 8 | $2.9M | 25% |
| FY2022 | 2 | $230k | 0% |
| FY2021 | 8 | $1.1M | 50% |
| FY2020 | 10 | $963k | 70% |
| FY2019 | 9 | $796k | 78% |
| FY2018 | 4 | $300k | 100% |
100% classified
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.
Science & Tech$4.8MHealth$4.4MEducation$2.9MPublic Benefit$202k
Where its grants go
Grant dollars by states, across the years we hold.
Which US states its grants reach
WA
IL
WI
NY
MA
PA
CA
MO
NC
AL
GA
TX
FL
Top grantees
Largest recipients by total granted, FY2017 to FY2025, and the share of each one’s budget the grants supplied at peak.
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Mass General Brigham Incorporated | $1,810,482 | 5 | n/a |
| The Children's Hospital of Philadelphia | $1,464,388 | 3 | 0% |
| Washington University | $1,182,270 | 2 | 0% |
| Regents of the University of California at Irvine | $807,220 | 6 | n/a |
| Regents Univ of California | $534,550 | 4 | n/a |
| Thomas Jefferson University | $285,320 | 3 | 0% |
| Coriell Institute for Medical Research Inc | $275,208 | 1 | 1% |
| University of Massachusetts | $250,444 | 2 | n/a |
| The J David Gladstone Institutes | $250,000 | 3 | 0% |
| Northwestern University | $200,000 | 1 | 0% |
Show all 31 grantees
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Mass General Brigham Incorporated | $1,810,482 | 5 | n/a |
| The Children's Hospital of Philadelphia | $1,464,388 | 3 | 0% |
| Washington University | $1,182,270 | 2 | 0% |
| Regents of the University of California at Irvine | $807,220 | 6 | n/a |
| Regents Univ of California | $534,550 | 4 | n/a |
| Thomas Jefferson University | $285,320 | 3 | 0% |
| Coriell Institute for Medical Research Inc | $275,208 | 1 | 1% |
| University of Massachusetts | $250,444 | 2 | n/a |
| The J David Gladstone Institutes | $250,000 | 3 | 0% |
| Northwestern University | $200,000 | 1 | 0% |
| University of Washington | $175,000 | 2 | n/a |
| California Institute of Technology | $150,000 | 2 | 0% |
| Mass General Brigham Incorporated | $150,000 | 2 | n/a |
| John Sealy Hospitalutmb | $150,000 | 2 | n/a |
| University of Florida | $150,000 | 1 | n/a |
| The University of Texas Southwestern Medical Cente | $137,036 | 1 | n/a |
| Ludwig Institute for Cancer Research Ltd | $129,056 | 1 | 0% |
| The Broad Institute Inc | $120,380 | 1 | 0% |
| Regents of the University of California at San Diego | $100,000 | 1 | n/a |
| CZ Biohub SF LLC | $100,000 | 1 | n/a |
| Mass General Brigham Incorporated | $100,000 | 1 | n/a |
| The Corporation of Mercer University | $100,000 | 1 | 0% |
| New York Genome Center Inc | $75,000 | 1 | 0% |
| University of Alabama at Birmingham | $75,000 | 1 | n/a |
| The Medical College of Wisconsin Inc | $75,000 | 1 | 0% |
| Whitehead Institute for Biomedical Research | $75,000 | 1 | 0% |
| Regents of the University of California | $75,000 | 1 | n/a |
| University of Rochester | $75,000 | 1 | 0% |
| Ny Presbyterian Hospital Columbia University Medical Ctrnysna Retiree Medic Al Plan Trust | $46,980 | 1 | 2% |
| The Children's Hospital of Philadelphia Foundation | $46,738 | 1 | 0% |
| Duke University | $12,883 | 1 | 0% |
Where it is load-bearing
Each grantee by its size and the share of its budget Huntington's Disease Foundation supplied at peak.
Tap a dot to name the grantee.
How this is measured
Share of budget is the funder’s grant in a year over the grantee’s total revenue that year, at its highest across the years we hold; revenue is from all sources. Only grantees confirmed against their own filings, whose grants do not exceed their revenue, are plotted: the largest 17.
Co-funders
Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a set of overlaps that mostly run through this funder rather than between each other.
Silicon Valley Community FoundationCA12.3× affinity4 shared granteesties to 0 of 0Hover any node to trace its alignments.Compare side by side →
Open a dossier: Silicon Valley Community Foundation
How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.
About Huntington's Disease Foundation
- How much does Huntington's Disease Foundation give?
- Huntington's Disease Foundation reported 11 itemized grants totaling $1,400,000, out of $3,152,522 in total grant expense reported on the return in its FY2025 IRS filing. It funded between 2 and 10 organizations a year over FY2018 to FY2024.
- What does Huntington's Disease Foundation fund?
- By grant dollars over FY2017 to FY2025, its largest causes are Science & Tech (39%), Health (36%), Education (23%).
- Who are Huntington's Disease Foundation's largest grantees?
- By total granted over FY2017 to FY2025: Mass General Brigham Incorporated ($1.8M), The Children's Hospital of Philadelphia ($1.5M), Washington University ($1.2M).
- Does Huntington's Disease Foundation fund new organizations?
- In FY2024, 43% of the organizations it funded were first-time grantees.
- Which funders back the same organizations as Huntington's Disease Foundation?
- Its strongest co-funders, measured against what their size predicts, include Silicon Valley Community Foundation.
- Where is Huntington's Disease Foundation based?
- Huntington's Disease Foundation is based in NY.
Play a game based on Huntington's Disease’s filings →
More from the funding graph
The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home