· Public charity
Huntington's Disease Foundation
To fund transformative research to find treatments, and ultimately a cure, for huntington's disease.
What you funded, over time
Every grant clustered by its grantee’s IRS cause code (NTEE), by year — across FY2017–2025.
Where the money goes
Your grants by size, and where they go.
The 11 grants below total $1,400,000 — the rows itemised in this filing. The $3,152,522 headline is the total grant expense reported on the return, so the remaining $1,752,522 is giving the schedule does not break out: grants under the $5,000 itemisation floor, grants to individuals, and grants reported on other schedules. Every figure below describes the itemised rows only.
| Recipient | Amount |
|---|---|
| MASSACHUSETTS GENERAL HOSPITAL (MASS GENERAL) | $200,000 |
| THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY | $200,000 |
| THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES | $200,000 |
| MASSACHUSETTS INSTITUTE OF TECHNOLOGY - MIT | $200,000 |
| MASSACHUSETTS INSTITUTE OF TECHNOLOGY - MIT | $100,000 |
| THE CORPORATION OF MERCER UNIVERSITY | $100,000 |
| WASHINGTON UNIVERSITY | $100,000 |
| CHAN ZUCKERBERG BIOHUB (SAN FRANCISCO) | $100,000 |
| MASSACHUSETTS GENERAL HOSPITAL (MASS GENERAL) | $100,000 |
| THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES | $50,000 |
| THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK | $50,000 |
Do your dollars go where the need is?
Each grant placed by the hardship in its grantee’s ZIP, then read against the area’s typical level.
Dollar for dollar, your grants (FY17–25) land where the poverty rate runs at 14%, against an area that typically sits at 10%. 75% of your dollars go to grantees based in above-average-need neighborhoods. Most of your grants land in higher-need ZIPs.
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty linein the grantee’s ZIP, averaged from the tracts in that ZIP; grantee ZIP can differ from where services are delivered.
Which US states your grants reach
Grants abroad, by region — $1.7M on the FY2025 return
Schedule F, as filed: 2 regions. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.
Stated purpose: SCIENTIFIC RESEARCH
Stated purpose: SCIENTIFIC RESEARCH
US grants placed by each grantee’s ZIP, which can differ from where services are actually delivered. Need from public data — U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA — shown as context about the area, never attributed to your giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
Who you back again
Which organizations you funded more than once, and which you funded a single time. Each grantee is matched to its own filings.
And the relationships you keep tend to grow: grantees you re-up on have seen median revenue of +45% since the first grant, against +44% for the ones you funded once.
12 repeat relationships — 3 still active in FY2025, 9 since wound down; 2 grantees were first funded in FY2025 (too recent to call).
How the two cohorts compare
Organizations
Total granted
Median revenue growth · since first grant
Still filing today
New vs renewed · share of each year
In FY2025, 76% of grant dollars renewed an existing relationship; $200k went to new ones.
Where new relationships form · theme of each grantee’s first grant
First-time = a grantee’s first year in your filing window; renewed = funded in an earlier year too. As a portfolio matures the renewed share naturally climbs — once funded, an org stays “renewable” — so the signal is the years that buck it (a new-grantee intake wave). The earliest year is left-censored: relationships that predate the data read as “new.” Theme is the grantee’s IRS cause.
Backed again, and grew
- TCTHE CHILDREN'S HOSPITAL OF PHILADELPHIA3× · 2021–2024 · $1.5M · revenue +45%
WASHINGTON UNIVERSITY2× · 2021–2024 · $1.2M · revenue +21%- TJTHOMAS JEFFERSON UNIVERSITY3× · 2018–2021 · $285k · revenue +127%
Funded once
- CICORIELL INSTITUTE FOR MEDICAL RESEARCH INCgraduatedone grant, 2017 · $275k · revenue +32%
Northwestern Universityone grant, 2024 · $200k · revenue 0%- UOUNIVERSITY OF FLORIDAone grant, 2023 · $150k
Repeat = funded in two or more distinct years; growth and survival are read from each grantee’s own subsequent IRS filings.
The map has a center of gravity: the average direction from the rest of the sector toward the organizations the foundation funds — the shape of its giving. Scoring every nonprofit along that direction surfaces the ones that look most like the portfolio. These are the closest matchesthat aren’t grantees — a resemblance in what they say they do, not a recommendation.
Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.
Drexel university fulfills its founder's vision of preparing each new generation of students for productive professional and civic lives while also focusing its collective expertise on solving society's greatest problems. drexel is an…
See Form 990, Part I, Line 1, Description of Organization Mission.
University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…
The institute for advanced study (the institute) is one of the world's leading centers for theoretical research and intellectual inquiry. see schedule o.
We educate the next generation of leaders to improve the health of our society.
Education, research, medical services and other public services.
For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…
Western new england university, a comprehensive private institution with a tradition of excellence in teaching and scholarship and a commitment to service, awards undergraduate, master's, and doctoral degrees in various departments from…
Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o
The mission of southern california university of health sciences (scu) is to educate students as competent, caring and successful practitioners of integrative healthcare. the university is committed to providing excellence in academics,…
Please see schedule o
For reference, the grantee most central to the portfolio’s shape is Massachusetts Institute of Technology and the most unlike its peers is Ny Presbyterian Hospital Columbia University Medical Ctrnysna Retiree Medic Al Plan Trust. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
Your grantees are a median of 58 years old; the field is 16. You back the established end — and your money leans older still.
The field is 22% startups (under 5 years old) — 0% of your grantees by number, and just 0% of your money.
The orgs you fund almost never close — 0.0% lost their exemption, against 13% of the field you don’t fund.
Age = years since IRS exemption (a founding proxy). “Closed” = auto-revocation for 3 years of non-filing — a floor on closure, not proof, and bigger established orgs lapse least. Association, not causation.
22 grantees tracked through their own filings, 2017–2025.
Each one resolved to its own IRS returns and tracked year by year — your grant beside their revenue from every source. Association, dated; never a causal claim.
Counted here: distinct organizations you funded across 2017–2025, not grant rows in a single year — so this will not match the grant count on the cover. 22 of the 36 grantees resolved in that span have returns of their own we could reconcile; the rest are funded organizations whose filings we could not track year by year.
Where your money sits — by cause, then by grantee
Each org by its size and your share of it — top-left is where you’re load-bearing
Go grantee by grantee — a decade per org, and how each moved after you funded them
A decade per grantee — revenue shaded, your grants as bars, all rows on one timeline.
- Who funds THE CHILDREN'S HOSPITAL OF PHILADELPHIA ↗
- Who funds WASHINGTON UNIVERSITY ↗
- Who funds THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY ↗
- Who funds Massachusetts Institute of Technology ↗
- Who funds THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK ↗
- Who funds THOMAS JEFFERSON UNIVERSITY ↗
- Who funds CORIELL INSTITUTE FOR MEDICAL RESEARCH INC ↗
- Who funds THE J DAVID GLADSTONE INSTITUTES ↗
- Who funds Northwestern University ↗
- Who funds CALIFORNIA INSTITUTE OF TECHNOLOGY ↗
- Who funds Ludwig Institute for Cancer Research Ltd ↗
- Who funds The Broad Institute Inc ↗
- Who funds THE CORPORATION OF MERCER UNIVERSITY ↗
- Who funds TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA ↗
- Who funds NEW YORK GENOME CENTER INC ↗
- Who funds THE MEDICAL COLLEGE OF WISCONSIN INC ↗
- Who funds UNIVERSITY OF SOUTHERN CALIFORNIA ↗
- Who funds WHITEHEAD INSTITUTE FOR BIOMEDICAL RESEARCH ↗
- Who funds UNIVERSITY OF ROCHESTER ↗
- Who funds NY PRESBYTERIAN HOSPITAL COLUMBIA UNIVERSITY MEDICAL CTRNYSNA RETIREE MEDIC AL PLAN TRUST ↗
- Who funds THE CHILDREN'S HOSPITAL OF PHILADELPHIA FOUNDATION ↗
- Who funds DUKE UNIVERSITY ↗
The grantmakers whose grantees overlap with yours far more than size alone predicts. Each orbits closer the stronger the alignment; the arcs between them show where they also fund each other. Here it reads as a set of overlaps that mostly run through you, not between each other.
Open a dossier: Silicon Valley Community Foundation
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. A research starting point: overlap is association, not proof of shared intent.
Government reliance of your grantees
Every dot is one organization Huntington's Disease Foundation funds. Left–right is the share of its income from government; up–down is the share from you. Bigger dots raise more. Filter to federal or a single department — and drag the year to watch it move.
- Coriell Institute for Medical Research Inc — 44% of income from government
- Massachusetts Institute of Technology — 35% of income from government
- The Broad Institute Inc — 19% of income from government
- Whitehead Institute for Biomedical Research — 7% of income from government
Government income is each org’s traced federal awards (USASpending — grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that your grant caused the public funding. Coverage is precision-first — a floor, not a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12–24 months.