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Friedreich's Ataxia Research Alliance at a glanceMostly funded, not a grantmaker: see who funds it →

· Public charity

Friedreich's Ataxia Research Alliance

To marshal and focus the resources and relationships needed to cure fa by raising funds for research, promoting public awareness and aligning scientists, patients, clinicians, government agencies and pharmaceutical companies dedicated to curing fa and related disorders.

$10M
Granted FY2024still arriving
32
Grants FY2024still arriving
13
States reached
$1.9M
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
05Through PlinthRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.

Health$46M
02FY2024 · 32 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 32 grants below total $7,105,812, the rows itemized in this filing. The $10,467,810 headline is the total grant expense on the return; the other $3,361,998 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.

By grant size · FY2024

  • Under $10k3 grants · $20k
  • $10k–50k3 grants · $93k
  • $50k–250k17 grants · $2.0M
  • $250k+9 grants · $5.0M
$124,922
Median grant
13
States reached
$6.9M
Total assets
Largest grants
RecipientAmount
THE BROAD INSTITUTE$1,945,086
CHILDREN'S HOSPITAL OF PHILADELPHIA RESEARCH INSTITUTE$713,919
CHILDREN'S HOSPITAL OF PHILADELPHIA FOUNDATION$500,000
UNIVERSITY OF FLORIDA$359,182
REGENTS OF THE UNIVERSITY OF MINNESOTA$339,615
MASSACHUSETTS GENERAL HOSPITAL$313,988
UNIVERSITY OF MASSACHUSETTS$300,000
WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY$274,855
STANFORD UNIVERSITY$250,000
VESIGEN INC$204,136
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO$194,830
STEALTH BIOTHERAPEUTICS INC$185,182
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS$150,000
RGENTA THERAPEUTICS INC$125,000
COLUMBIA UNIVERSITY$125,000
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY17–24) land where the poverty rate runs at 14%, against an area that typically sits at 10%. 68% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 10%THE BROAD INSTITUTE: $2.3M → 8%UNIVERSITY OF MASSACHUSETTS: $324k → 12%UNIVERSITY OF MASSACHUSETTS: $300k → 16%THE REGENTS OF THE UNIVERSITY OF MINNESOTA: $516k → 11%UNIVERSITY OF PITTSBURGH: $225k → 11%CHILDREN'S HOSPITAL OF PHILADELPHIA: $1.9M → 22%STANFORD UNIVERSITY: $225k → 7%UNIVERSITY OF ROCHESTER: $417k → 14%UT SOUTHWESTERN MEDICAL CENTER: $366k → 14%BAYLOR COLLEGE OF MEDICINE: $250k → 16%UNIVERSITY OF UTAH: $300k → 8%TRUSTEES OF THE INDIANA UNIVERSITY: $272k → 18%THE BROAD INSTITUTE: $2.3M → 8%MASSACHUSETTS GENERAL HOSPITAL: $314k → 16%REGENTS OF THE UNIVERSITY OF MINNESOTA: $494k → 11%CHILDREN'S HOSPITAL OF PHILADELPHIA: $1.6M → 22%UNIVERSITY OF CALIFORNIA DAVIS: $225k → 16%UNIVERSITY OF ROCHESTER: $341k → 14%BAYLOR COLLEGE OF MEDICINE: $250k → 16%THE BROAD INSTITUTE: $1.9M → 8%REGENTS OF THE UNIVERSITY OF MINNESOTA: $340k → 11%CHILDREN'S HOSPITAL OF PHILADELPHIA: $1.3M → 22%STANFORD UNIVERSITY: $250k → 8%DESIGN THERAPEUTICS: $400k → 11%UNIVERSITY OF ROCHESTER: $334k → 14%THE BROAD INSTITUTE: $1.6M → 8%THE REGENTS OF THE UNIVERSITY OF MINNESOTA: $279k → 11%CHILDREN'S HOSPITAL OF PHILADELPHIA: $1.1M → 22%UNIVERSITY OF ROCHESTER: $314k → 14%THE BROAD INSTITUTE: $1.6M → 8%THE REGENTS OF THE UNIVERSITY OF MINNESOTA: $234k → 11%CHILDREN'S HOSPITAL OF PHILADELPHIA: $1.1M → 22%UNIVERSITY OF ROCHESTER: $311k → 14%CHILDREN'S HOSPITAL OF PHILADELPHIA: $874k → 22%UNIVERSITY OF ROCHESTER: $235k → 14%VESIGEN INC: $204k → 8%CHILDREN'S HOSPITAL OF PHILADELPHIA RESEARCH INSTITUTE: $714k → 22%CHILDREN'S HOSPITAL OF PHILADELPHIA: $557k → 22%WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY: $400k → 17%CHILDREN'S HOSPITAL OF PHILADELPHIA FOUNDATION: $500k → 22%WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY: $275k → 17%CHILDREN'S HOSPITAL OF PHILADELPHIA FOUNDATION: $500k → 22%WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY: $250k → 17%CHILDREN'S HOSPITAL OF PHILADELPHIA FOUNDATION: $425k → 22%CHILDREN'S HOSPITAL OF PHILADELPHIA FOUNDATION: $425k → 22%TRUSTREES OF THE UNIVERSITY OF PENNSYLVANIA: $413k → 22%TRUSTREES OF THE UNIVERSITY OF PENNSYLVANIA: $342k → 22%TRUSTREES OF THE UNIVERSITY OF PENNSYLVANIA: $213k → 22%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

MN
WI
NY
MA
IA
IN
OH
PA
CT
CA
UT
CO
MO
VA
MD
AZ
TN
NC
OK
AL
GA
TX
FL

Grants abroad, by region: $3.3M on the FY2024 return

Schedule F, as filed: 4 regions, $3.3M to organizations and $40k to individuals. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.

Europe (including Iceland and Greenland)$1.8M · 55% · 14 grants · 3 people

Stated purpose: MEDICAL RESEARCH · FARA FELLOWS AWARDS

East Asia and the Pacific$970k · 29% · 7 grants

Stated purpose: MEDICAL RESEARCH

North America (Canada and Mexico)$428k · 13% · 4 grants

Stated purpose: MEDICAL RESEARCH

South America$94k · 3% · 2 grants

Stated purpose: MEDICAL RESEARCH

How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

95%of every dollar goes to organizations it has funded before.
$41M · 43 repeat orgs$2.2M to everyone else

Grantees it renews have grown median revenue +67% since the first grant, against +51% for those funded once.

43 repeat relationships: 22 still active in FY2024, 21 since wound down; 8 grantees were first funded in FY2024 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

43
11

Total granted

$41M
$1.2M

Median revenue growth · since first grant

+67%
+51%

Still filing today

44%
27%

New vs renewed · share of each year

In FY2024, 84% of grant dollars renewed an existing relationship; $1.1M went to new ones.

50%100%’17’18’19’20’21’22’23’24
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’22’23’24
HealthEducationScience & TechOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • TB
    The Broad Institute Inc
    5× · 2020–2024 · $9.8M · revenue +44%
  • TC
    THE CHILDREN'S HOSPITAL OF PHILADELPHIA
    8× · 2017–2024 · $9.2M · revenue +88%
  • UNIVERSITY OF ROCHESTER
    8× · 2017–2024 · $2.2M · revenue +81%

Funded once

  • DT
    DESIGN THERAPEUTICS
    one grant, 2019 · $400k
  • UO
    UNIVERSITY OF UTAH
    one grant, 2018 · $300k
  • WI
    WHITEHEAD INSTITUTE FOR BIOMEDICAL RESEARCHgraduated
    one grant, 2022 · $100k · revenue +100%
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
New York University

Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.

Education
2
Albany College of Pharmacy and Health Sciences

We educate the next generation of leaders to improve the health of our society.

Education
3
Drexel University

Drexel university fulfills its founder's vision of preparing each new generation of students for productive professional and civic lives while also focusing its collective expertise on solving society's greatest problems. drexel is an…

Education
4
Thomas Jefferson University

Thomas jefferson university ("tju") is a comprehensive university with preeminence in transdisciplinary, experiential professional education, research and discovery, delivering exceptional value for the 21st century students with…

Education
5
The Johns Hopkins Hospital

For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…

Health
6
University of Southern California

The central mission of the university of southern california is the development of human beings and society as a whole through the cultivation and enrichment of the human mind and spirit. the principal means by which our mission is…

Education
7
Rhode Island Hospital

As a founding hospital in the brown university health system, rih is committed to its mission: delivering health with care.

Health
8
Fred Hutchinson Cancer Center

Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o

Health
9
University of Miami

See Form 990, Part I, Line 1, Description of Organization Mission.

Education
10
University of Minnesota Physicians

University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…

Health
11
William Marsh Rice University

As a leading research university with a distinctive commitment to undergraduate education, Rice University aspires to path breaking research, unsurpassed teaching, and contributions to the betterment of our world. It seeks to fulfill this…

Education
12
Rush University Medical Center

The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.

Health
How this is measured
The grantee most central to the portfolio’s shape is Johns Hopkins University; the most unlike its peers is Critical Path Institute. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

30 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 30 of the 67 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
3
Early backer (in before they grew)
30/30
Grantees still filing
29/30
Grew since first funded

Where the money sits, by cause and then by grantee

The Broad Institute Inc: $9,787,634 · HealthThe Broad Institute IncTHE CHILDREN'S HOSPITAL OF PHILADELPHIA: $9,203,061 · HealthTHE CHILDREN'S HOSPITAL OF PHILADELPHIATHE CHILDREN'S HOSPITAL OF PHILADELPHIA FOUNDATION: $1,850,000 · HealthTHE CHILDREN'S HOSPITAL OF PHILADELPHIA FOUNDATION+9 more: $1,655,427 · Health+9 moreUNIVERSITY OF FLORIDA: $2,625,520 · OtherUNIVERSITY OF FLORIDAUNIVERSITY OF MINNESOTA: $2,040,476 · OtherUNIVERSITY OF MINNESOTAWeill Medical College of Cornell Univers: $1,446,515 · OtherWeill Medical College of Cornell Uni…UNIVERSITY OF ALABAMA AT BIRMINGHAM: $1,026,722 · OtherUNIVERSITY OF ALABAMA AT BIRMINGHAMREGENTS OF THE UNIVERSITY OF CALIFORNIA AT SAN DIEGO: $719,830 · OtherTHE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE: $684,756 · OtherREGENTS UNIV OF CALIFORNIA: $576,673 · OtherUNIVERSITY OF CALIFORNIA DAVIS: $540,000 · Other+30 more: $5,204,512 · Other+30 moreUNIVERSITY OF ROCHESTER: $2,160,703 · EducationUNIVERSITY OF ROCHES…TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $1,375,253 · EducationTRUSTEES OF THE UNIV…THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $892,643 · EducationTHE BOARD OF TRUSTEE…THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK: $825,000 · EducationTHE TRUSTEES OF COLU…UNIVERSITY OF MASSACHUSETTS AMHERST FOUNDATION INC: $647,535 · EducationUNIVERSITY OF MASSAC…University of South Florida Foundation Inc: $505,009 · EducationUniversity of South …Baylor College of Medicine: $500,000 · EducationBaylor College of Me…CALIFORNIA INSTITUTE OF TECHNOLOGY: $385,203 · EducationUNIVERSITY OF PITTSBURGH: $300,000 · Education+7 more: $565,848 · Education+7 moreALBANY RESEARCH INSTITUTE INC: $583,654 · Science & Tech
Health$22,496,122Other$14,865,004Education$8,157,194Science & Tech$583,654

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$10M$100Mgrantee revenue →↑ funder's share of their budgetThe Broad Institute Inc: $9,787,634 over 5y, 0.3% of budgetTHE CHILDREN'S HOSPITAL OF PHILADELPHIA: $9,203,061 over 8y, 0.1% of budgetUNIVERSITY OF ROCHESTER: $2,160,703 over 8y, 0.0% of budgetTHE CHILDREN'S HOSPITAL OF PHILADELPHIA FOUNDATION: $1,850,000 over 4y, 0.1% of budgetTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $1,375,253 over 6y, 0.0% of budgetTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $892,643 over 5y, 0.0% of budgetTHE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK: $825,000 over 6y, 0.0% of budgetUNIVERSITY OF MASSACHUSETTS AMHERST FOUNDATION INC: $647,535 over 3y, 8.8% of budgetALBANY RESEARCH INSTITUTE INC: $583,654 over 6y, 24% of budgetUniversity of South Florida Foundation Inc: $505,009 over 5y, 0.2% of budgetBaylor College of Medicine: $500,000 over 2y, 0.0% of budgetCALIFORNIA INSTITUTE OF TECHNOLOGY: $385,203 over 4y, 0.0% of budgetMASS GENERAL BRIGHAM INCORPORATED: $313,988 over 1y, 0.0% of budgetCRITICAL PATH INSTITUTE: $306,500 over 3y, 0.8% of budgetTHOMAS JEFFERSON UNIVERSITY HOSPITALS INC: $300,000 over 2y, 0.0% of budgetUNIVERSITY OF PITTSBURGH: $300,000 over 2y, 0.0% of budgetWinifred Masterson Burke Medical Research: $271,164 over 4y, 0.5% of budgetST JUDE CHILDREN'S RESEARCH HOSPITAL INC: $194,748 over 3y, 0.0% of budgetTHE SCRIPPS RESEARCH INSTITUTE: $140,015 over 2y, 0.0% of budgetPresident and Fellows of Harvard College: $122,382 over 2y, 0.0% of budgetWHITEHEAD INSTITUTE FOR BIOMEDICAL RESEARCH: $100,000 over 1y, 0.1% of budgetYale University: $100,000 over 1y, 0.0% of budgetDUKE UNIVERSITY: $100,000 over 1y, 0.0% of budgetJOHNS HOPKINS UNIVERSITY: $86,175 over 1y, 0.0% of budgetEmory University: $79,291 over 5y, 0.0% of budgetTRUSTEES OF BOSTON COLLEGE: $76,000 over 2y, 0.0% of budgetNational Ataxia Foundation Incorporated: $29,750 over 2y, 0.9% of budgetUPLIFTING ATHLETES INC: $20,000 over 2y, 0.8% of budgetNationwide Children's Hospital Inc: $9,012 over 1y, 5.4% of budgetPHILADELPHIA UNIVERSITY: $2,000 over 1y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

  • Who funds The Broad Institute Inc ↗
  • Who funds THE CHILDREN'S HOSPITAL OF PHILADELPHIA ↗
  • Who funds UNIVERSITY OF ROCHESTER ↗
  • Who funds THE CHILDREN'S HOSPITAL OF PHILADELPHIA FOUNDATION ↗
  • Who funds TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA ↗
  • Who funds THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY ↗
  • Who funds THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK ↗
  • Who funds UNIVERSITY OF MASSACHUSETTS AMHERST FOUNDATION INC ↗
  • Who funds ALBANY RESEARCH INSTITUTE INC ↗
  • Who funds University of South Florida Foundation Inc ↗
  • Who funds Baylor College of Medicine ↗
  • Who funds CALIFORNIA INSTITUTE OF TECHNOLOGY ↗
  • Who funds MASS GENERAL BRIGHAM INCORPORATED ↗
  • Who funds CRITICAL PATH INSTITUTE ↗
  • Who funds THOMAS JEFFERSON UNIVERSITY HOSPITALS INC ↗
  • Who funds UNIVERSITY OF PITTSBURGH ↗
  • Who funds Winifred Masterson Burke Medical Research ↗
  • Who funds ST JUDE CHILDREN'S RESEARCH HOSPITAL INC ↗

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a set of overlaps that mostly run through this funder rather than between each other.

Amazonsmile Foundation
Amazonsmile FoundationWA0.9× affinity6 shared granteesties to 0 of 0Hover any node to trace its alignments.Compare side by side →

Open a dossier: Amazonsmile Foundation

How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

How much its grantees rely on government

Each dot is one organization Friedreich's Ataxia Research Alliance funds: left to right is the share of its income from government, bottom to top the share from Friedreich's Ataxia Research Alliance. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 30%1%3%6%10%funder's share of their income ↑0%25%50%75%100%share of the org’s income from government →median 12%
  • The Broad Institute Inc: 19% of income from government
  • Johns Hopkins University: 12% of income from government
  • Yale University: 12% of income from government
  • President and Fellows of Harvard College: 7% of income from government
  • Whitehead Institute for Biomedical Research: 7% of income from government
  • Trustees of Boston College: 3% of income from government
no gov moneyreceives it· size = income
3get no government money at all
4report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.
05Through Plinth

Warm introductions · Powered by PlinthPlus

How do I get to Friedreich's Ataxia Research Alliance?

Find your warmest path to Friedreich's Ataxia Research Alliance through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 67 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

Play a game based on Friedreich's Ataxia Research Alliance’s filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home