· Public charity
Friedreich's Ataxia Research Alliance
To marshal and focus the resources and relationships needed to cure fa by raising funds for research, promoting public awareness and aligning scientists, patients, clinicians, government agencies and pharmaceutical companies dedicated to curing fa and related disorders.
What you funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year — across FY2017–2024.
Where the money goes
Your grants by size, and where they go.
The 32 grants below total $7,105,812 — the rows itemised in this filing. The $10,467,810 headline is the total grant expense reported on the return, so the remaining $3,361,998 is giving the schedule does not break out: grants under the $5,000 itemisation floor, grants to individuals, and grants reported on other schedules. Every figure below describes the itemised rows only.
By grant size · FY2024
- Under $10k3 grants · $20k
- $10k–50k3 grants · $93k
- $50k–250k17 grants · $2.0M
- $250k+9 grants · $5.0M
| Recipient | Amount |
|---|---|
| THE BROAD INSTITUTE | $1,945,086 |
| CHILDREN'S HOSPITAL OF PHILADELPHIA RESEARCH INSTITUTE | $713,919 |
| CHILDREN'S HOSPITAL OF PHILADELPHIA FOUNDATION | $500,000 |
| UNIVERSITY OF FLORIDA | $359,182 |
| REGENTS OF THE UNIVERSITY OF MINNESOTA | $339,615 |
| MASSACHUSETTS GENERAL HOSPITAL | $313,988 |
| UNIVERSITY OF MASSACHUSETTS | $300,000 |
| WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY | $274,855 |
| STANFORD UNIVERSITY | $250,000 |
| VESIGEN INC | $204,136 |
| THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO | $194,830 |
| STEALTH BIOTHERAPEUTICS INC | $185,182 |
| THE REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS | $150,000 |
| RGENTA THERAPEUTICS INC | $125,000 |
| COLUMBIA UNIVERSITY | $125,000 |
Do your dollars go where the need is?
Each grant placed by the hardship in its grantee’s ZIP, then read against the area’s typical level.
Dollar for dollar, your grants (FY17–24) land where the poverty rate runs at 14%, against an area that typically sits at 10%. 68% of your dollars go to grantees based in above-average-need neighborhoods. Most of your grants land in higher-need ZIPs.
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty linein the grantee’s ZIP, averaged from the tracts in that ZIP; grantee ZIP can differ from where services are delivered.
Which US states your grants reach
Grants abroad, by region — $3.3M on the FY2024 return
Schedule F, as filed: 4 regions, $3.3M to organizations and $40k to individuals. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.
Stated purpose: MEDICAL RESEARCH · FARA FELLOWS AWARDS
Stated purpose: MEDICAL RESEARCH
Stated purpose: MEDICAL RESEARCH
Stated purpose: MEDICAL RESEARCH
US grants placed by each grantee’s ZIP, which can differ from where services are actually delivered. Need from public data — U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA — shown as context about the area, never attributed to your giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
Who you back again
Which organizations you funded more than once, and which you funded a single time. Each grantee is matched to its own filings.
And the relationships you keep tend to grow: grantees you re-up on have seen median revenue of +67% since the first grant, against +51% for the ones you funded once.
43 repeat relationships — 22 still active in FY2024, 21 since wound down; 8 grantees were first funded in FY2024 (too recent to call).
How the two cohorts compare
Organizations
Total granted
Median revenue growth · since first grant
Still filing today
New vs renewed · share of each year
In FY2024, 84% of grant dollars renewed an existing relationship; $1.1M went to new ones.
Where new relationships form · theme of each grantee’s first grant
First-time = a grantee’s first year in your filing window; renewed = funded in an earlier year too. As a portfolio matures the renewed share naturally climbs — once funded, an org stays “renewable” — so the signal is the years that buck it (a new-grantee intake wave). The earliest year is left-censored: relationships that predate the data read as “new.” Theme is the grantee’s IRS cause.
Backed again, and grew
- TBThe Broad Institute Inc5× · 2020–2024 · $9.8M · revenue +44%
- TCTHE CHILDREN'S HOSPITAL OF PHILADELPHIA8× · 2017–2024 · $9.2M · revenue +88%
UNIVERSITY OF ROCHESTER8× · 2017–2024 · $2.2M · revenue +81%
Funded once
- DTDESIGN THERAPEUTICSone grant, 2019 · $400k
- UOUNIVERSITY OF UTAHone grant, 2018 · $300k
DUKE UNIVERSITYgraduatedone grant, 2017 · $100k · revenue +51%
Repeat = funded in two or more distinct years; growth and survival are read from each grantee’s own subsequent IRS filings.
The map has a center of gravity: the average direction from the rest of the sector toward the organizations the foundation funds — the shape of its giving. Scoring every nonprofit along that direction surfaces the ones that look most like the portfolio. These are the closest matchesthat aren’t grantees — a resemblance in what they say they do, not a recommendation.
Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.
We educate the next generation of leaders to improve the health of our society.
Drexel university fulfills its founder's vision of preparing each new generation of students for productive professional and civic lives while also focusing its collective expertise on solving society's greatest problems. drexel is an…
Thomas jefferson university ("tju") is a comprehensive university with preeminence in transdisciplinary, experiential professional education, research and discovery, delivering exceptional value for the 21st century students with…
For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…
The central mission of the university of southern california is the development of human beings and society as a whole through the cultivation and enrichment of the human mind and spirit. the principal means by which our mission is…
See Form 990, Part I, Line 1, Description of Organization Mission.
Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o
University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…
Mass general brigham incorporated is developing an integrated health care delivery system throughout the region that offers patients a continuum of coordinated, high-quality care.
The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.
As a leading research university with a distinctive commitment to undergraduate education, Rice University aspires to path breaking research, unsurpassed teaching, and contributions to the betterment of our world. It seeks to fulfill this…
For reference, the grantee most central to the portfolio’s shape is Johns Hopkins University and the most unlike its peers is Critical Path Institute. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
For each theme you fund, this compares how the sector’s money is shifting with how your own giving is shifting.
Sector change and giving change are each shown relative to their own range, growing (right) or shrinking (left); both normalized, so inflation isn’t mistaken for growth.
Your grantees are a median of 52 years old; the field is 16. You back the established end — and your money leans older still.
The field is 22% startups (under 5 years old) — 0% of your grantees by number, and just 0% of your money.
The orgs you fund almost never close — 0.0% lost their exemption, against 13% of the field you don’t fund.
Age = years since IRS exemption (a founding proxy). “Closed” = auto-revocation for 3 years of non-filing — a floor on closure, not proof, and bigger established orgs lapse least. Association, not causation.
30 grantees tracked through their own filings, 2017–2025.
Each one resolved to its own IRS returns and tracked year by year — your grant beside their revenue from every source. Association, dated; never a causal claim.
Counted here: distinct organizations you funded across 2017–2025, not grant rows in a single year — so this will not match the grant count on the cover. 30 of the 67 grantees resolved in that span have returns of their own we could reconcile; the rest are funded organizations whose filings we could not track year by year.
Where your money sits — by cause, then by grantee
Each org by its size and your share of it — top-left is where you’re load-bearing
Go grantee by grantee — a decade per org, and how each moved after you funded them
A decade per grantee — revenue shaded, your grants as bars, all rows on one timeline.
- Who funds The Broad Institute Inc ↗
- Who funds THE CHILDREN'S HOSPITAL OF PHILADELPHIA ↗
- Who funds UNIVERSITY OF ROCHESTER ↗
- Who funds THE CHILDREN'S HOSPITAL OF PHILADELPHIA FOUNDATION ↗
- Who funds TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA ↗
- Who funds THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY ↗
- Who funds THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK ↗
- Who funds UNIVERSITY OF MASSACHUSETTS AMHERST FOUNDATION INC ↗
- Who funds ALBANY RESEARCH INSTITUTE INC ↗
- Who funds University of South Florida Foundation Inc ↗
- Who funds Baylor College of Medicine ↗
- Who funds CALIFORNIA INSTITUTE OF TECHNOLOGY ↗
- Who funds MASS GENERAL BRIGHAM INCORPORATED ↗
- Who funds CRITICAL PATH INSTITUTE ↗
- Who funds UNIVERSITY OF PITTSBURGH ↗
- Who funds THOMAS JEFFERSON UNIVERSITY HOSPITALS INC ↗
- Who funds Winifred Masterson Burke Medical Research ↗
- Who funds ST JUDE CHILDREN'S RESEARCH HOSPITAL INC ↗
The grantmakers whose grantees overlap with yours far more than size alone predicts. Each orbits closer the stronger the alignment; the arcs between them show where they also fund each other. Here it reads as a set of overlaps that mostly run through you, not between each other.
Open a dossier: Amazonsmile Foundation
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. A research starting point: overlap is association, not proof of shared intent.
Government reliance of your grantees
Every dot is one organization Friedreich's Ataxia Research Alliance funds. Left–right is the share of its income from government; up–down is the share from you. Bigger dots raise more. Filter to federal, a single department, or state — and drag the year to watch it move.
- The Broad Institute Inc — 19% of income from government
- Johns Hopkins University — 12% of income from government
- Yale University — 12% of income from government
- President and Fellows of Harvard College — 7% of income from government
- Whitehead Institute for Biomedical Research — 7% of income from government
- Trustees of Boston College — 3% of income from government
Government income is each org’s traced federal awards (USASpending — grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that your grant caused the public funding. Coverage is precision-first — a floor, not a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12–24 months.
Warm introductions · Powered by PlinthPlus
How do I get to Friedreich's Ataxia Research Alliance?
Find your warmest path to Friedreich's Ataxia Research Alliance through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.
Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.