How much does Friedreich's Ataxia Research Alliance give?

Friedreich's Ataxia Research Alliance reported 32 itemized grants totaling $7,105,812, out of $10,467,810 in total grant expense reported on the return in its FY2024 IRS filing. It funded between 18 and 27 organizations a year over FY2017 to FY2023.

What does Friedreich's Ataxia Research Alliance fund?

By grant dollars over FY2017 to FY2024, its largest causes are Health (100%).

Who are Friedreich's Ataxia Research Alliance's largest grantees?

By total granted over FY2017 to FY2024: The Broad Institute Inc ($9.8M), The Children's Hospital of Philadelphia ($9.2M), University of Florida ($2.6M).

Does Friedreich's Ataxia Research Alliance fund new organizations?

In FY2023, 19% of the organizations it funded were first-time grantees.

Which funders back the same organizations as Friedreich's Ataxia Research Alliance?

Its strongest co-funders, measured against what their size predicts, include Amazonsmile Foundation.

Where is Friedreich's Ataxia Research Alliance based?

Friedreich's Ataxia Research Alliance is based in VA.

Foundation Dossiers Mostly funded, not a grantmaker: see who funds it →

Virginia · Public charity

Friedreich's Ataxia Research Alliance

To marshal and focus the resources and relationships needed to cure fa by raising funds for research, promoting public awareness and aligning scientists, patients, clinicians, government agencies and pharmaceutical companies dedicated to curing fa and related disorders.

$10M
Granted FY2024(still arriving): 32
Itemized grants FY2024: 21
Organizations funded FY2023: 19%
First-time grantees FY2023

Read the full brief

Itemized, FY2024: $7.1M; The rest is grants the schedule does not break out
Median grant, FY2024: $124,922
Largest grant, FY2024: $1,945,086
Organizations funded a year: 18 to 27; FY2017 to FY2023
States reached, FY2024: 13
Total assets, FY2024: $6.9M

How open it is to new grantees

In FY2023, 19% of the organizations Friedreich's Ataxia Research Alliance funded were first-time grantees, receiving 3% of its grant dollars.

New vs renewed · share of each year

In FY2023, 97% of grant dollars renewed an existing relationship; $192k went to new ones.

RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

HealthEducationOther

How this is measured

First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

The numbers by year

Fiscal year	Organizations funded	To those organizations	First-time grantees
FY2024still arriving	30	$6.7M	27%
FY2023	21	$6.5M	19%
FY2022	23	$6.7M	26%
FY2021	22	$4.9M	23%
FY2020	18	$4.6M	17%
FY2019	18	$4.1M	11%
FY2018	24	$4.3M	29%
FY2017	27	$5.0M	n/a

100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.

Health$46M

Where its grants go

Grant dollars by states, across the years we hold.

Which US states its grants reach

Top grantees

Largest recipients by total granted, FY2017 to FY2024, and the share of each one’s budget the grants supplied at peak.

Grantee	Total granted	Years	Share of their budget
The Broad Institute Inc	$9,787,634	5	0%
The Children's Hospital of Philadelphia	$9,203,061	8	0%
University of Florida	$2,625,520	8	n/a
University of Rochester	$2,160,703	8	0%
University of Minnesota	$2,040,476	7	n/a
The Children's Hospital of Philadelphia Foundation	$1,850,000	4	0%
Weill Medical College of Cornell Univers	$1,446,515	7	n/a
University of Alabama at Birmingham	$1,026,722	4	n/a
Regents of the University of California at San Diego	$719,830	5	n/a
The University of Texas Southwestern Medical Cente	$684,756	5	n/a

Show all 61 grantees

All grantees of Friedreich's Ataxia Research Alliance by total granted
Grantee	Total granted	Years	Share of their budget
The Broad Institute Inc	$9,787,634	5	0%
The Children's Hospital of Philadelphia	$9,203,061	8	0%
University of Florida	$2,625,520	8	n/a
University of Rochester	$2,160,703	8	0%
University of Minnesota	$2,040,476	7	n/a
The Children's Hospital of Philadelphia Foundation	$1,850,000	4	0%
Weill Medical College of Cornell Univers	$1,446,515	7	n/a
University of Alabama at Birmingham	$1,026,722	4	n/a
Regents of the University of California at San Diego	$719,830	5	n/a
The University of Texas Southwestern Medical Cente	$684,756	5	n/a
University of Massachusetts Amherst Foundation Inc	$647,535	3	9%
Albany Research Institute Inc	$583,654	6	24%
Regents Univ of California	$576,673	8	n/a
University of California Davis	$540,000	4	n/a
University of South Florida Foundation Inc	$505,009	5	0%
Baylor College of Medicine	$500,000	2	0%
Vesigen Inc	$452,747	2	n/a
Indiana University School of Medicine	$409,374	2	n/a
Design Therapeutics	$400,000	1	n/a
California Institute of Technology	$385,203	4	0%
Stealth Biotherapeutics	$354,572	2	n/a
Mass General Brigham Incorporated	$313,988	1	0%
Critical Path Institute	$306,500	3	1%
Thomas Jefferson University Hospitals Inc	$300,000	2	0%
Arizona State University	$300,000	2	n/a
University of Massachusetts	$300,000	1	n/a
University of Utah	$300,000	1	n/a
University of Pittsburgh	$300,000	2	0%
Unversity of Oklahoma	$297,504	3	n/a
Rector & Visitors of the University of Virginia	$275,000	2	n/a
Winifred Masterson Burke Medical Research	$271,164	4	1%
National Cancer Institute	$249,922	2	n/a
University of Wisconsin Madison	$245,769	2	n/a
University of Oklahoma Health Sciences Center	$214,000	2	n/a
St Jude Children's Research Hospital Inc	$194,748	3	0%
University of South Florida	$186,754	4	n/a
New York University School of Medicine	$175,000	3	n/a
Mass General Brigham Incorporated	$143,750	2	n/a
The Scripps Research Institute	$140,015	2	0%
Q-State Biosciences Inc	$134,312	2	n/a
Rgenta Therapeutics Inc	$125,000	1	n/a
Whitehead Institute for Biomedical Research	$100,000	1	0%
Epicrispr Biotechnologies Inc	$100,000	1	n/a
Duke University	$100,000	1	0%
Johns Hopkins University	$86,175	1	0%
Translate Bio	$86,063	1	n/a
The Highest Road Film LLC	$80,000	1	n/a
Emory University	$79,291	5	0%
Catabasis Pharmaceuticals Inc	$79,000	1	n/a
Trustees of Boston College	$76,000	2	0%
University of Texas	$74,768	1	n/a
State University of Iowa	$43,300	5	n/a
The Ohio State University	$37,500	6	n/a
National Ataxia Foundation Incorporated	$29,750	2	1%
Pfizer Inc	$25,000	1	n/a
Cyagen Biomodels LLC	$24,539	1	n/a
Regents of the University of Colorado	$21,283	3	n/a
Uplifting Athletes Inc	$20,000	2	1%
Curators of the University of Missouri	$19,150	1	n/a
Nationwide Children's Hospital Inc	$9,012	1	5%
Philadelphia University	$2,000	1	0%

Plus 1 recipient with no EIN on record ($20k), not named here.

Each grantee by its size and the share of its budget Friedreich's Ataxia Research Alliance supplied at peak.

Tap a dot to name the grantee.

How this is measured

Share of budget is the funder’s grant in a year over the grantee’s total revenue that year, at its highest across the years we hold; revenue is from all sources. Only grantees confirmed against their own filings, whose grants do not exceed their revenue, are plotted: the largest 25.

Nonprofits that may fit its grantmaking

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a set of overlaps that mostly run through this funder rather than between each other.

Amazonsmile FoundationWA0.9× affinity6 shared granteesties to 0 of 0Hover any node to trace its alignments.Compare side by side →

Open a dossier: Amazonsmile Foundation

How this is measured

Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

Compare Friedreich's Ataxia Research Alliance with peer funders

Warm introductions · Powered by PlinthPlus

How do I get to Friedreich's Ataxia Research Alliance?

Find your warmest path to Friedreich's Ataxia Research Alliance through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

About Friedreich's Ataxia Research Alliance

How much does Friedreich's Ataxia Research Alliance give?: Friedreich's Ataxia Research Alliance reported 32 itemized grants totaling $7,105,812, out of $10,467,810 in total grant expense reported on the return in its FY2024 IRS filing. It funded between 18 and 27 organizations a year over FY2017 to FY2023.
What does Friedreich's Ataxia Research Alliance fund?: By grant dollars over FY2017 to FY2024, its largest causes are Health (100%).
Who are Friedreich's Ataxia Research Alliance's largest grantees?: By total granted over FY2017 to FY2024: The Broad Institute Inc ($9.8M), The Children's Hospital of Philadelphia ($9.2M), University of Florida ($2.6M).
Does Friedreich's Ataxia Research Alliance fund new organizations?: In FY2023, 19% of the organizations it funded were first-time grantees.
Which funders back the same organizations as Friedreich's Ataxia Research Alliance?: Its strongest co-funders, measured against what their size predicts, include Amazonsmile Foundation.
Where is Friedreich's Ataxia Research Alliance based?: Friedreich's Ataxia Research Alliance is based in VA.