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Epidermolysis Bullosa Medical Research Foundation at a glanceMostly funded, not a grantmaker: see who funds it →

· Public charity

Epidermolysis Bullosa Medical Research Foundation

The primary purpose of the organization is to fund medical research to find a cure for epidermolysis bullosa.

$345k
Granted FY2024still arriving
5
Grants FY2024still arriving
4
States reached
$224k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
05Through PlinthRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.

Health$3.3MScience & Tech$3.2MEducation$2.0MRecreation & Sports$32kHuman Services$6k
02FY2024 · 5 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 5 grants below total $321,696, the rows itemized in this filing. The $344,866 headline is the total grant expense on the return; the other $23,170 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.

By grant size · FY2024

  • Under $10k2 grants · $17k
  • $10k–50k1 grant · $14k
  • $50k–250k2 grants · $291k
$13,595
Median grant
4
States reached
$4.2M
Total assets
Largest grants
RecipientAmount
REGENTS OF THE UNIVERSITY OF COLORADO$223,943
CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER$66,934
NORTHWESTERN UNIVERSITY$13,595
COLUMBIA UNIVERSITY$9,772
TRUSTEES OF COLUMBIA UNIVERSITY$7,452
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Its human-services grants (FY18–18, $6k) land where the poverty rate runs at 14%, against an area that typically sits at 10%. 100% of those dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 10%NORTHWESTERN UNIVERSITY: $6k → 14%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

WA
MN
IL
MI
NY
MA
OR
IN
OH
PA
CA
CO
AZ
TX
How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

57%of every dollar goes to organizations it has funded before.
$3.6M · 8 repeat orgs$2.7M to everyone else

8 repeat relationships: 3 still active in FY2024, 5 since wound down; 1 grantees were first funded in FY2024 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

8
16

Total granted

$3.6M
$2.7M

Median revenue growth · since first grant

+47%
+82%

Still filing today

63%
50%

New vs renewed · share of each year

In FY2024, 98% of grant dollars renewed an existing relationship; $7k went to new ones.

50%100%’17’18’19’20’21’22’23’24
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’22’23’24
HealthEducationRecreation & SportsHuman ServicesOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • CH
    CHILDREN'S HOSPITAL MEDICAL CENTER
    5× · 2018–2024 · $244k · revenue +47%
  • PC
    Phoenix Children's Hospital
    3× · 2019–2023 · $143k · revenue +67%
  • TC
    THE CHILDREN'S HOSPITAL OF PHILADELPHIA
    3× · 2019–2021 · $37k · revenue +59%

Funded once

  • FD
    FIBRX DERM INC CO MEDNA PARTNERS LLC
    one grant, 2019 · $875k
  • KB
    KRYSTAL BIOTECH INC
    one grant, 2018 · $385k
  • LP
    LUCILE PACKARD FOUNDATION FOR CHILDREN'S HEALTH
    one grant, 2017 · $368k · revenue -33%
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
Southern California University of Health Sciences

The mission of southern california university of health sciences (scu) is to educate students as competent, caring and successful practitioners of integrative healthcare. the university is committed to providing excellence in academics,…

Education
2
Rush University Medical Center

The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.

Health
3
University of Minnesota Physicians

University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…

Health
4
Children's Hospital & Research Center At Oakland

The mission of children's hospital & research center at oakland is to protect and advance the health and well-being of children through clinical care, teaching and research.

Health
5
Truman Medical Center Incorporated

University health is an academic health center providing accessible, state-of-the-art quality healthcare to our community regardless of the ability to pay.

Health
6
New York University

Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.

Education
7
Children's Health Care

We champion the health needs of children and families. we are committed to improving children's health by providing the highest-quality, family centered care, advanced through research and education.

Health
8
Ann & Robert H Lurie Children's Hospital of Chicago

Ann & robert h. lurie children's hospital of chicago is dedicated to the health and well-being of all children. as the pediatric teaching facility for northwestern university feinberg school of medicine, this commitment drives us to be a…

Health
9
University of Chicago Medical Center

Our mission at the university of chicago medicine is to provide superior health care through rigorous research, innovative education, and comprehensive care and healing. in partnership with our colleagues, we pursue life-changing…

Health
10
Stc Healthcare Partners Llc

Website: https://towerhealth.org/locations/st-christophers-hospital- children stc opco, llc (st. christopher's hospital for children) provides a full range of high-quality healthcare services to all children and youth up to age 21 who seek…

Health
11
Methodist Healthcare-Memphis Hospitals

Methodist le bonheur healthcare, in partnership with its medical staffs, will collaborate with patients and their families to be the leader in providing high quality, cost-effective patient-and family-centered care. services will be…

Health
12
East Tennessee Children's Hospital Association Inc

East tennessee children's hospital is a free-standing, independent, not-for-profit pediatric health care system which serves the east tennessee region. children's hospital is certified by the state of tennessee as a comprehensive regional…

Health
How this is measured
The grantee most central to the portfolio’s shape is Lucile Packard Foundation for Children's Health; the most unlike its peers is Society for Pediatric Dermatology. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

16 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 16 of the 28 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
1
Early backer (in before they grew)
16/16
Grantees still filing
15/16
Grew since first funded

Where the money sits, by cause and then by grantee

REGENTS OF THE UNIVERSITY OF COLORADO: $1,532,093 · OtherREGENTS OF THE UNIVERSITY OF COLORADOREGENTS OF THE UNIVERSITY OF CALIFORNIA: $1,037,050 · OtherREGENTS OF THE UNIVERSITY OF CALIFORNIAFIBRX DERM INC CO MEDNA PARTNERS LLC: $875,000 · OtherFIBRX DERM INC CO MEDNA PARTNERS LLCFIBROCELL SCIENCE INC: $525,000 · OtherFIBROCELL SCIENCE INCKRYSTAL BIOTECH INC: $385,000 · OtherKRYSTAL BIOTECH INCUNIVERSITY OF MINNESOTA: $333,333 · OtherUNIVERSITY OF MINNESOTA+8 more: $462,918 · Other+8 moreTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $1,688,147 · EducationTHE BOARD OF TRUSTEES OF THE LEL…THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK: $276,503 · EducationTHE TRUSTEES OF COLUMBIA UNIVERS…UNIVERSITY OF SOUTHERN CALIFORNIA: $225,406 · EducationUNIVERSITY OF SOUTHERN CALIFORNI…Trustees of Tufts College: $138,770 · EducationTrustees of Tufts CollegeTHOMAS JEFFERSON UNIVERSITY: $87,272 · Education+1 more: $12,500 · EducationLUCILE PACKARD FOUNDATION FOR CHILDREN'S HEALTH: $367,705 · HealthLUCILE PACK…CHILDREN'S HOSPITAL MEDICAL CENTER: $243,714 · HealthCHILDREN'S …Phoenix Children's Hospital: $142,707 · HealthPhoenix Chi…SEATTLE CHILDREN'S HOSPITAL: $69,736 · HealthSEATTLE CHI…THE CHILDREN'S HOSPITAL OF PHILADELPHIA: $36,884 · HealthSOCIETY FOR PEDIATRIC DERMATOLOGY: $30,500 · HealthNorthwestern University: $31,595 · Recreation & SportsNORTHWESTERN UNIVERSITY SETTLEMENT ASSOCIATION: $6,000 · Human Services
Other$5,150,394Education$2,428,598Health$891,246Recreation & Sports$31,595Human Services$6,000

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$10M$100Mgrantee revenue →↑ funder's share of their budgetTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $1,688,147 over 6y, 0.0% of budgetLUCILE PACKARD FOUNDATION FOR CHILDREN'S HEALTH: $367,705 over 1y, 0.2% of budgetTHE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK: $276,503 over 6y, 0.0% of budgetCHILDREN'S HOSPITAL MEDICAL CENTER: $243,714 over 5y, 0.0% of budgetUNIVERSITY OF SOUTHERN CALIFORNIA: $225,406 over 2y, 0.0% of budgetPhoenix Children's Hospital: $142,707 over 3y, 0.0% of budgetTrustees of Tufts College: $138,770 over 1y, 0.0% of budgetTHOMAS JEFFERSON UNIVERSITY: $87,272 over 1y, 0.0% of budgetSEATTLE CHILDREN'S HOSPITAL: $69,736 over 1y, 0.0% of budgetTHE CHILDREN'S HOSPITAL OF PHILADELPHIA: $36,884 over 3y, 0.0% of budgetNorthwestern University: $31,595 over 4y, 0.0% of budgetSOCIETY FOR PEDIATRIC DERMATOLOGY: $30,500 over 3y, 1.0% of budgetTUFTS MEDICAL CENTER GROUP RETURN: $19,163 over 1y, 0.0% of budgetOREGON HEALTH & SCIENCE UNIVERSITY FOUNDATION: $12,500 over 1y, 0.0% of budgetNORTHWESTERN UNIVERSITY SETTLEMENT ASSOCIATION: $6,000 over 1y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.

National Philanthropi…Donor Advised Charita…
National Philanthropic TrustPA7× affinity4 shared granteesties to 1 of 1Hover any node to trace its alignments.Compare side by side →

Open a dossier: National Philanthropic Trust · Donor Advised Charitable Giving Inc

How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

How much its grantees rely on government

Each dot is one organization Epidermolysis Bullosa Medical Research Foundation funds: left to right is the share of its income from government, bottom to top the share from Epidermolysis Bullosa Medical Research Foundation. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 00%0%1%3%5%funder's share of their income ↑0%5%10%15%20%share of the org’s income from government →median 13%
  • Trustees of Tufts College: 13% of income from government
  • Oregon Health & Science University Foundation: 1% of income from government
no gov moneyreceives it· size = income
0get no government money at all
4report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
⤢ axis zoomed · 0–20%
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.
05Through Plinth

Warm introductions · Powered by PlinthPlus

How do I get to Epidermolysis Bullosa Medical Research Foundation?

Find your warmest path to Epidermolysis Bullosa Medical Research Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 28 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

Play a game based on Epidermolysis Bullosa Medical Research’s filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home