California · Public charity
Epidermolysis Bullosa Medical Research Foundation
The primary purpose of the organization is to fund medical research to find a cure for epidermolysis bullosa. EPIDERMOLYSIS BULLOSA MEDICAL RESEARCH FOUNDATION funds various research organizations across the united states & internationally for children's health.
- $345k
- Granted FY2024(still arriving)
- 5
- Itemized grants FY2024
- 1
- Organizations funded FY2023
- 0%
- First-time grantees FY2023
- Itemized, FY2024
- $322k
- The rest is grants the schedule does not break out
- Median grant, FY2024
- $13,595
- Largest grant, FY2024
- $223,943
- Organizations funded a year
- 1 to 10
- FY2017 to FY2023
- States reached, FY2024
- 4
- Total assets, FY2024
- $4.2M
How open it is to new grantees
In FY2023, 0% of the organizations Epidermolysis Bullosa Medical Research Foundation funded were first-time grantees, receiving 0% of its grant dollars.
New vs renewed · share of each year
In FY2023, 100% of grant dollars renewed an existing relationship; $0 went to new ones.
Where new relationships form · theme of each grantee’s first grant
How this is measured
The numbers by year
| Fiscal year | Organizations funded | To those organizations | First-time grantees |
|---|---|---|---|
| FY2024still arriving | 4 | $312k | 25% |
| FY2023 | 1 | $117k | 0% |
| FY2022 | 4 | $167k | 50% |
| FY2021 | 4 | $391k | 0% |
| FY2020 | 5 | $381k | 20% |
| FY2019 | 10 | $2.4M | 60% |
| FY2018 | 10 | $1.4M | 80% |
| FY2017 | 7 | $1.2M | n/a |
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.
Where its grants go
Grant dollars by states, across the years we hold.
Which US states its grants reach
Top grantees
Largest recipients by total granted, FY2017 to FY2024, and the share of each one’s budget the grants supplied at peak.
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Regents of the University of Colorado | $1,532,093 | 6 | n/a |
| Regents of the University of California | $1,037,050 | 2 | n/a |
| Fibrx Derm Inc Co Medna Partners LLC | $875,000 | 1 | n/a |
| Fibrocell Science Inc | $525,000 | 2 | n/a |
| Krystal Biotech Inc | $385,000 | 1 | n/a |
| Lucile Packard Foundation for Children's Health | $367,705 | 1 | 0% |
| University of Minnesota | $333,333 | 1 | n/a |
| Children's Hospital Medical Center | $243,714 | 5 | 0% |
| Tufts Medical Center | $168,158 | 1 | n/a |
| Phoenix Children's Hospital | $142,707 | 3 | 0% |
Show all 25 grantees
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Regents of the University of Colorado | $1,532,093 | 6 | n/a |
| Regents of the University of California | $1,037,050 | 2 | n/a |
| Fibrx Derm Inc Co Medna Partners LLC | $875,000 | 1 | n/a |
| Fibrocell Science Inc | $525,000 | 2 | n/a |
| Krystal Biotech Inc | $385,000 | 1 | n/a |
| Lucile Packard Foundation for Children's Health | $367,705 | 1 | 0% |
| University of Minnesota | $333,333 | 1 | n/a |
| Children's Hospital Medical Center | $243,714 | 5 | 0% |
| Tufts Medical Center | $168,158 | 1 | n/a |
| Phoenix Children's Hospital | $142,707 | 3 | 0% |
| Trustees of Tufts College | $138,770 | 1 | 0% |
| Corium International Inc | $98,500 | 1 | n/a |
| Rna Derm Therapeutics Inc | $93,750 | 1 | n/a |
| Thomas Jefferson University | $87,272 | 1 | 0% |
| Seattle Children's Hospital | $69,736 | 1 | 0% |
| Tufts Medical Center Parent Inc | $60,000 | 1 | n/a |
| The Children's Hospital of Philadelphia | $36,884 | 3 | 0% |
| Northwestern University | $31,595 | 4 | 0% |
| Society for Pediatric Dermatology | $30,500 | 3 | 1% |
| Tufts Medical Center Group Return | $19,163 | 1 | 0% |
| Oregon Health & Science University Foundation | $12,500 | 1 | 0% |
| University of Massachusetts | $10,625 | 1 | n/a |
| Trustees of Columbia University in the City of New York | $7,452 | 1 | n/a |
| Northwestern University Settlement Association | $6,000 | 1 | 0% |
| Ascension Seton | $5,270 | 1 | n/a |
Where it is load-bearing
Each grantee by its size and the share of its budget Epidermolysis Bullosa Medical Research Foundation supplied at peak.
Tap a dot to name the grantee.
How this is measured
Co-funders
Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.
Open a dossier: National Philanthropic Trust · Donor Advised Charitable Giving Inc
How this is measured
Compare Epidermolysis Bullosa Medical Research Foundation with peer funders
Warm introductions · Powered by PlinthPlus
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About Epidermolysis Bullosa Medical Research Foundation
- How much does Epidermolysis Bullosa Medical Research Foundation give?
- Epidermolysis Bullosa Medical Research Foundation reported 5 itemized grants totaling $321,696, out of $344,866 in total grant expense reported on the return in its FY2024 IRS filing. It funded between 1 and 10 organizations a year over FY2017 to FY2023.
- What does Epidermolysis Bullosa Medical Research Foundation fund?
- By grant dollars over FY2017 to FY2024, its largest causes are Health (38%), Science & Tech (38%), Education (23%).
- Who are Epidermolysis Bullosa Medical Research Foundation's largest grantees?
- By total granted over FY2017 to FY2024: Regents of the University of Colorado ($1.5M), Regents of the University of California ($1.0M), Fibrx Derm Inc Co Medna Partners LLC ($875k).
- Does Epidermolysis Bullosa Medical Research Foundation fund new organizations?
- In FY2023, 0% of the organizations it funded were first-time grantees.
- Which funders back the same organizations as Epidermolysis Bullosa Medical Research Foundation?
- Its strongest co-funders, measured against what their size predicts, include National Philanthropic Trust, Donor Advised Charitable Giving Inc.
- Where is Epidermolysis Bullosa Medical Research Foundation based?
- Epidermolysis Bullosa Medical Research Foundation is based in CA.
Play a game based on Epidermolysis Bullosa Medical Research’s filings →