· Public charity
Epidermolysis Bullosa Medical Research Foundation
The primary purpose of the organization is to fund medical research to find a cure for epidermolysis bullosa.
What you funded, over time
By grantee IRS cause code (NTEE).
A cause breakdown isn’t shown here: 61% of EPIDERMOLYSIS BULLOSA MEDICAL RESEARCH FOUNDATION’s grantee dollars fall outside its nine largest cause areas, whether because the recipient carries no IRS cause code or because its cause sits in the long tail. A chart would be mostly one residual band and misrepresent the portfolio.
Where the money goes
Your grants by size, and where they go.
The 5 grants below total $321,696 — the rows itemised in this filing. The $344,866 headline is the total grant expense reported on the return, so the remaining $23,170 is giving the schedule does not break out: grants under the $5,000 itemisation floor, grants to individuals, and grants reported on other schedules. Every figure below describes the itemised rows only.
By grant size · FY2024
- Under $10k2 grants · $17k
- $10k–50k1 grant · $14k
- $50k–250k2 grants · $291k
| Recipient | Amount |
|---|---|
| REGENTS OF THE UNIVERSITY OF COLORADO | $223,943 |
| CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER | $66,934 |
| NORTHWESTERN UNIVERSITY | $13,595 |
| COLUMBIA UNIVERSITY | $9,772 |
| TRUSTEES OF COLUMBIA UNIVERSITY | $7,452 |
Do your dollars go where the need is?
Each grant placed by the hardship in its grantee’s ZIP, then read against the area’s typical level.
Your human-services grants (FY18–18, $6k) land where the poverty rate runs at 14%, against an area that typically sits at 10%. 100% of those dollars go to grantees based in above-average-need neighborhoods. Most of your grants land in higher-need ZIPs.
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty linein the grantee’s ZIP, averaged from the tracts in that ZIP; grantee ZIP can differ from where services are delivered.
Which US states your grants reach
US grants placed by each grantee’s ZIP, which can differ from where services are actually delivered. Need from public data — U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA — shown as context about the area, never attributed to your giving.
Who you back again
Which organizations you funded more than once, and which you funded a single time. Each grantee is matched to its own filings.
8 repeat relationships — 3 still active in FY2024, 5 since wound down; 1 grantees were first funded in FY2024 (too recent to call).
How the two cohorts compare
Organizations
Total granted
Median revenue growth · since first grant
Still filing today
New vs renewed · share of each year
In FY2024, 98% of grant dollars renewed an existing relationship; $7k went to new ones.
Where new relationships form · theme of each grantee’s first grant
First-time = a grantee’s first year in your filing window; renewed = funded in an earlier year too. As a portfolio matures the renewed share naturally climbs — once funded, an org stays “renewable” — so the signal is the years that buck it (a new-grantee intake wave). The earliest year is left-censored: relationships that predate the data read as “new.” Theme is the grantee’s IRS cause.
Backed again, and grew
- CHCHILDREN'S HOSPITAL MEDICAL CENTER5× · 2018–2024 · $244k · revenue +47%
- PCPhoenix Children's Hospital3× · 2019–2023 · $143k · revenue +67%
- TCTHE CHILDREN'S HOSPITAL OF PHILADELPHIA3× · 2019–2021 · $37k · revenue +59%
Funded once
- FDFIBRX DERM INC CO MEDNA PARTNERS LLCone grant, 2019 · $875k
- KBKRYSTAL BIOTECH INCone grant, 2018 · $385k
- LPLUCILE PACKARD FOUNDATION FOR CHILDREN'S HEALTHone grant, 2017 · $368k · revenue -33%
Repeat = funded in two or more distinct years; growth and survival are read from each grantee’s own subsequent IRS filings.
The map has a center of gravity: the average direction from the rest of the sector toward the organizations the foundation funds — the shape of its giving. Scoring every nonprofit along that direction surfaces the ones that look most like the portfolio. These are the closest matchesthat aren’t grantees — a resemblance in what they say they do, not a recommendation.
The mission of southern california university of health sciences (scu) is to educate students as competent, caring and successful practitioners of integrative healthcare. the university is committed to providing excellence in academics,…
The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.
University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…
The mission of children's hospital & research center at oakland is to protect and advance the health and well-being of children through clinical care, teaching and research.
University health is an academic health center providing accessible, state-of-the-art quality healthcare to our community regardless of the ability to pay.
Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.
We champion the health needs of children and families. we are committed to improving children's health by providing the highest-quality, family centered care, advanced through research and education.
Ann & robert h. lurie children's hospital of chicago is dedicated to the health and well-being of all children. as the pediatric teaching facility for northwestern university feinberg school of medicine, this commitment drives us to be a…
Our mission at the university of chicago medicine is to provide superior health care through rigorous research, innovative education, and comprehensive care and healing. in partnership with our colleagues, we pursue life-changing…
Website: https://towerhealth.org/locations/st-christophers-hospital- children stc opco, llc (st. christopher's hospital for children) provides a full range of high-quality healthcare services to all children and youth up to age 21 who seek…
Methodist le bonheur healthcare, in partnership with its medical staffs, will collaborate with patients and their families to be the leader in providing high quality, cost-effective patient-and family-centered care. services will be…
East tennessee children's hospital is a free-standing, independent, not-for-profit pediatric health care system which serves the east tennessee region. children's hospital is certified by the state of tennessee as a comprehensive regional…
For reference, the grantee most central to the portfolio’s shape is Lucile Packard Foundation for Children's Health and the most unlike its peers is Society for Pediatric Dermatology. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
16 grantees tracked through their own filings, 2017–2025.
Each one resolved to its own IRS returns and tracked year by year — your grant beside their revenue from every source. Association, dated; never a causal claim.
Counted here: distinct organizations you funded across 2017–2025, not grant rows in a single year — so this will not match the grant count on the cover. 16 of the 28 grantees resolved in that span have returns of their own we could reconcile; the rest are funded organizations whose filings we could not track year by year.
Where your money sits — by cause, then by grantee
Each org by its size and your share of it — top-left is where you’re load-bearing
Go grantee by grantee — a decade per org, and how each moved after you funded them
A decade per grantee — revenue shaded, your grants as bars, all rows on one timeline.
- Who funds THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY ↗
- Who funds LUCILE PACKARD FOUNDATION FOR CHILDREN'S HEALTH ↗
- Who funds THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK ↗
- Who funds CHILDREN'S HOSPITAL MEDICAL CENTER ↗
- Who funds UNIVERSITY OF SOUTHERN CALIFORNIA ↗
- Who funds Phoenix Children's Hospital ↗
- Who funds Trustees of Tufts College ↗
- Who funds THOMAS JEFFERSON UNIVERSITY ↗
- Who funds SEATTLE CHILDREN'S HOSPITAL ↗
- Who funds THE CHILDREN'S HOSPITAL OF PHILADELPHIA ↗
- Who funds Northwestern University ↗
- Who funds SOCIETY FOR PEDIATRIC DERMATOLOGY ↗
- Who funds TUFTS MEDICAL CENTER GROUP RETURN ↗
- Who funds OREGON HEALTH & SCIENCE UNIVERSITY FOUNDATION ↗
- Who funds NORTHWESTERN UNIVERSITY SETTLEMENT ASSOCIATION ↗
- Who funds ASCENSION SETON ↗
The grantmakers whose grantees overlap with yours far more than size alone predicts. Each orbits closer the stronger the alignment; the arcs between them show where they also fund each other. Here it reads as a tightly interlocked camp — most of these funders back each other's grantees too.
Open a dossier: National Philanthropic Trust · Donor Advised Charitable Giving Inc
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. A research starting point: overlap is association, not proof of shared intent.
Government reliance of your grantees
Every dot is one organization Epidermolysis Bullosa Medical Research Foundation funds. Left–right is the share of its income from government; up–down is the share from you. Bigger dots raise more. Filter to federal or a single department — and drag the year to watch it move.
- Trustees of Tufts College — 13% of income from government
- Oregon Health & Science University Foundation — 1% of income from government
Government income is each org’s traced federal awards (USASpending — grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that your grant caused the public funding. Coverage is precision-first — a floor, not a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12–24 months.
Warm introductions · Powered by PlinthPlus
How do I get to Epidermolysis Bullosa Medical Research Foundation?
Find your warmest path to Epidermolysis Bullosa Medical Research Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.
Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.