South Carolina · Public charity
Cure Sanfilippo Foundation
To accelerate scientific development and access to a cure or therapeutic options for all affected by Sanfilippo syndrome, drive advocacy to improve care and outcomes, and empower families with information, guidance, and support to navigate the journey.
- $644k
- Granted FY2024(still arriving)
- 4
- Itemized grants FY2024
- 7
- Organizations funded FY2023
- 0%
- First-time grantees FY2023
- Itemized, FY2024
- $256k
- The rest is grants the schedule does not break out
- Median grant, FY2024
- $49,976
- Largest grant, FY2024
- $120,000
- Organizations funded a year
- 3 to 7
- FY2017 to FY2023
- States reached, FY2024
- 3
- Total assets, FY2024
- $14M
How open it is to new grantees
In FY2023, 0% of the organizations Cure Sanfilippo Foundation funded were first-time grantees, receiving 0% of its grant dollars.
New vs renewed · share of each year
In FY2023, 100% of grant dollars renewed an existing relationship; $0 went to new ones.
Where new relationships form · theme of each grantee’s first grant
How this is measured
The numbers by year
| Fiscal year | Organizations funded | To those organizations | First-time grantees |
|---|---|---|---|
| FY2024still arriving | 3 | $256k | 33% |
| FY2023 | 7 | $456k | 0% |
| FY2022 | 7 | $1.2M | 14% |
| FY2021 | 7 | $1.6M | 43% |
| FY2020 | 7 | $2.5M | 43% |
| FY2019 | 6 | $572k | 67% |
| FY2018 | 6 | $407k | 67% |
| FY2017 | 3 | $166k | n/a |
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.
Where its grants go
Grant dollars by states, across the years we hold.
Which US states its grants reach
Top grantees
Largest recipients by total granted, FY2017 to FY2024, and the share of each one’s budget the grants supplied at peak.
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| ReMotor Therapeutics | $1,399,500 | 2 | n/a |
| University of North Carolina at Chapel Hill | $921,612 | 5 | n/a |
| Lundquist Institute for Biomedical Innovation at Harbor-Ucla Medical Center | $815,985 | 6 | 0% |
| Regents of the University of California | $459,626 | 5 | n/a |
| The University of North Carolina at Chapel Hill Foundation Inc | $300,000 | 1 | 1% |
| Phoenix Nest | $280,250 | 3 | n/a |
| Nationwide Childrens Hospital Inc | $209,865 | 2 | n/a |
| Albert Einstein College of Medicine | $200,000 | 3 | 0% |
| Clemson University | $170,000 | 3 | n/a |
| University of California Davis | $110,605 | 3 | n/a |
Show all 16 grantees
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| ReMotor Therapeutics | $1,399,500 | 2 | n/a |
| University of North Carolina at Chapel Hill | $921,612 | 5 | n/a |
| Lundquist Institute for Biomedical Innovation at Harbor-Ucla Medical Center | $815,985 | 6 | 0% |
| Regents of the University of California | $459,626 | 5 | n/a |
| The University of North Carolina at Chapel Hill Foundation Inc | $300,000 | 1 | 1% |
| Phoenix Nest | $280,250 | 3 | n/a |
| Nationwide Childrens Hospital Inc | $209,865 | 2 | n/a |
| Albert Einstein College of Medicine | $200,000 | 3 | 0% |
| Clemson University | $170,000 | 3 | n/a |
| University of California Davis | $110,605 | 3 | n/a |
| Perlara Pbc | $100,000 | 1 | n/a |
| University of Florida | $64,678 | 3 | n/a |
| Pennsylvania State University | $60,000 | 2 | n/a |
| University of Georgia | $49,976 | 1 | n/a |
| Research Triangle Institute | $46,093 | 2 | 0% |
| Regents of the University of California at San Diego | $32,595 | 1 | n/a |
Plus 3 recipients with no EIN on record ($2.0M), not named here.
Co-funders
Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.
Open a dossier: American Endowment Foundation · Morgan Stanley Global Impact Funding Trust Inc · National Philanthropic Trust · Vanguard Charitable Endowment Program · Donor Advised Charitable Giving Inc · Fidelity Investments Charitable Gift Fund
How this is measured
Warm introductions · Powered by PlinthPlus
How do I get to Cure Sanfilippo Foundation?
Find your warmest path to Cure Sanfilippo Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.
Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.
About Cure Sanfilippo Foundation
- How much does Cure Sanfilippo Foundation give?
- Cure Sanfilippo Foundation reported 4 itemized grants totaling $255,541, out of $643,960 in total grant expense reported on the return in its FY2024 IRS filing. It funded between 3 and 7 organizations a year over FY2017 to FY2023.
- What does Cure Sanfilippo Foundation fund?
- By grant dollars over FY2017 to FY2024, its largest causes are Health (85%), Education (13%), Religion (1%).
- Who are Cure Sanfilippo Foundation's largest grantees?
- By total granted over FY2017 to FY2024: ReMotor Therapeutics ($1.4M), University of North Carolina at Chapel Hill ($922k), Lundquist Institute for Biomedical Innovation at Harbor-Ucla Medical Center ($816k).
- Does Cure Sanfilippo Foundation fund new organizations?
- In FY2023, 0% of the organizations it funded were first-time grantees.
- Which funders back the same organizations as Cure Sanfilippo Foundation?
- Its strongest co-funders, measured against what their size predicts, include American Endowment Foundation, Morgan Stanley Global Impact Funding Trust Inc, National Philanthropic Trust.
- Where is Cure Sanfilippo Foundation based?
- Cure Sanfilippo Foundation is based in SC.
Play a game based on Cure Sanfilippo’s filings →