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Charcot-Marie-Tooth Association

Cmta awards research fellowships and grants for research on charcot-marie-tooth diesease.

$3.3M
Granted FY2025still arriving
12
Grants FY2025still arriving
9
States reached
$1.0M
Largest
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.

Health$13MEducation$2.1MScience & Tech$619kFood & Nutrition$423k
02FY2025 · 12 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 12 grants below total $2,902,198, the rows itemized in this filing. The $3,342,651 headline is the total grant expense on the return; the other $440,453 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.

By grant size · FY2025

  • Under $10k1 grant · $5k
  • $10k–50k4 grants · $70k
  • $50k–250k3 grants · $284k
  • $250k+4 grants · $2.5M
$90,860
Median grant
9
States reached
$8.1M
Total assets
Largest grants
RecipientAmount
UNIVERSITY OF ROCHESTER$1,045,708
PSYCHOGENICS INC$773,212
THE GENESIS PROJECT FOUNDATION$423,000
JD GLADSTONE INSTITUTES$300,000
ALBANY MEDICAL COLLEGE$140,670
UNIVERSITY OF CALIFORNIA SAN DIEGO$90,860
UNIVERSITY OF PENNSYLVANIA$52,925
UNIVERSITY OF WISCONSIN - MADISON$25,000
HENRY JACKSON FOUNDATION$20,000
CLEVELAND CLINICLERNER RESEARCH INS$15,446
CHILDREN'S NATIONAL MEDICAL CENTER$10,000
THE JACKSON LABORATORY$5,377
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY17–25) land where the poverty rate runs at 15%, against an area that typically sits at 11%. 89% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 11%GENEZYME CORPORATION: $125k → 8%UNIVERSITY OF PENNSYLVANIA: $53k → 22%UNIVERSITY OF CALIFORNIA: $139k → 10%JD GLADSTONE INSTITUTES: $300k → 10%UNIVERSITY OF CALIFORNIA SAN DIEGO: $91k → 11%CEDARS-SINAI MEDICAL CENTER: $72k → 14%UB Foundation Services Inc: $91k → 13%UNIVERSITY OF ROCHESTER: $88k → 14%ALBANY MEDICAL COLLEGE: $141k → 14%Columbia University: $61k → 17%UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER: $41k → 14%THE GENESIS PROJECT FOUNDATION: $423k → 15%UNIV OF IOWA-CARVER: $643k → 15%UNIVERSITY OF WISCONSIN-MADISON: $102k → 10%OHIO STATE UNIVERSITY: $64k → 15%HENRY JACKSON FOUNDATION: $55k → 8%JACKSON LABORATORY: $91k → 11%CHARLES RIVER LABORATORIES: $153k → 8%JD GLADSTONE INSTITUTES: $57k → 10%Cedars-Sinai Medical Center: $72k → 14%UB FOUNDATION SERVICES: $42k → 13%UNIVERSITY OF ROCHESTER: $1.0M → 14%THE GENESIS PROJECT INC: $50k → 15%UNIVERSITY OF IOWA-CARVER: $413k → 15%UNIVERSITY OF WISCONSIN - MADISON: $62k → 10%OHIO STATE UNIVERSITY: $64k → 15%JACKSON LABORATORY: $81k → 11%CHARLES RIVER LABORATORIES: $117k → 8%RESEARCH FOUNDATION FOR THE STATE UNIVERSITY OF NEW YORK: $50k → 13%NEW YORK STEM CELL FOUNDATION INC: $36k → 17%UNIVERSITY OF IOWA-CARVER: $364k → 15%UNIVERSITY OF WISCONSIN-MADISON: $54k → 10%NATIONWIDE CHILDREN'S HOSPITAL: $348k → 15%CHARLES RIVER LABORATORIES: $98k → 8%RESEARCH FOUNDATION FOR THE STATE UNIVERSITY OF NEW YORK: $49k → 13%UNIVERSITY OF ROCHESTER: $242k → 14%PSYCHOGENICS INC: $1.9M → 17%UNIV OF IOWA-CARVER: $165k → 15%CHARLES RIVER LABORATORIES: $75k → 8%PSYCHOGENICS INC: $1.4M → 17%UNIVERSITY OF IOWA: $134k → 15%PSYCHOGENICS INCORPORATED: $969k → 17%University of Iowa-Carver College: $56k → 15%PSYCHOGENICS INCORPORATED: $912k → 17%UNIVERSITY OF IOWA-CARVER: $50k → 15%PSYCHOGENICS INC: $773k → 17%PSYCHOGENICS INC: $684k → 17%PSYCHOGENICS INCORPORATED: $312k → 17%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

ME
IL
WI
NY
MA
IA
OH
PA
CA
MO
MD
AZ
DC
GA
TX
FL

Grants abroad, by region: $380k on the FY2025 return

Schedule F, as filed: 2 regions. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.

Europe (including Iceland and Greenland)$345k · 91% · 1 grant

Stated purpose: CMT RESEARCH

North America (Canada and Mexico)$36k · 9% · 1 grant

Stated purpose: CMT RESEARCH

How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

87%of every dollar goes to organizations it has funded before.
$13M · 16 repeat orgs$2.0M to everyone else

16 repeat relationships: 5 still active in FY2025, 11 since wound down; 6 grantees were first funded in FY2025 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

16
16

Total granted

$13M
$973k

Median revenue growth · since first grant

+55%
+70%

Still filing today

44%
25%

New vs renewed · share of each year

In FY2025, 65% of grant dollars renewed an existing relationship; $985k went to new ones.

50%100%’17’18’19’20’22’23’24’25
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’22’23’24’25
HealthEducationOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • UNIVERSITY OF ROCHESTER
    5× · 2020–2025 · $1.4M · revenue +55%
  • UO
    University of Miami
    8× · 2017–2024 · $638k · revenue +96%
  • TR
    The Research Foundation for The State University of New York
    6× · 2018–2023 · $291k · revenue +56%

Funded once

  • NC
    NATIONWIDE CHILDRENS HOSPITAL INC
    one grant, 2019 · $348k
  • RO
    REGENTS OF THE UNIVERSITY OF CALIFORNIA
    one grant, 2022 · $139k
  • GC
    GENEZYME CORPORATION
    one grant, 2018 · $125k
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
New York University

Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.

Education
2
New York Genome Center Inc

Operate a state-of-the-art, world-class genomic research center that creates and uses advanced genomics to understand the genetic basis of disease. for more information, see schedule o.

Health
3
The Johns Hopkins Hospital

For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…

Health
4
Memorial Sloan-Kettering Cancer Center

Leadership in the prevention, treatment, and cure of cancer through excellence, vision and cost effectiveness in patient care, outreach programs, research, and education.

Health
5
Albany College of Pharmacy and Health Sciences

We educate the next generation of leaders to improve the health of our society.

Education
6
Fred Hutchinson Cancer Center

Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o

Health
7
Drexel University

Drexel university fulfills its founder's vision of preparing each new generation of students for productive professional and civic lives while also focusing its collective expertise on solving society's greatest problems. drexel is an…

Education
8
Hugo W Moser Research Institute At Kennedy Krieger Inc

The hugo w. moser research institute at kennedy krieger, inc. (the "research institute") is an internationally recognized research facility finding answers to problems and injuries that affect a child's developing brain. researchers have…

Science & Tech
9
Sanford Burnham Prebys Medical Discovery Institute

Sanford burnham prebys medical discovery institute's mission is to advance the biomedical sciences by cultivating the next generation of scientific leaders, providing meaningful opportunities for researchers of all backgrounds to learn,…

Health
10
University of Minnesota Physicians

University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…

Health
11
New York Society for the Relief of the Ruptured and Crippled Maintaining the

The mission of hospital for special surgery is to provide the highest quality patient care, improve mobility, and enhance the quality of life for all and to advance the science of orthopedic surgery, rheumatology, and their related…

Health
12
University of Southern California

The central mission of the university of southern california is the development of human beings and society as a whole through the cultivation and enrichment of the human mind and spirit. the principal means by which our mission is…

Education
How this is measured
The grantee most central to the portfolio’s shape is University of Rochester; the most unlike its peers is Henry M Jackson Foundation. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

16 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 16 of the 40 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

1
Load-bearing (≥25% of a budget)
1
Early backer (in before they grew)
16/16
Grantees still filing
12/16
Grew since first funded

Where the money sits, by cause and then by grantee

PSYCHOGENICS INC: $6,948,928 · OtherPSYCHOGENICS INCState University of Iowa: $1,825,300 · OtherState University of IowaCharles River Laboratories International Inc: $443,271 · OtherTHE GENESIS PROJECT USA: $423,000 · Other+21 more: $2,354,211 · Other+21 moreUNIVERSITY OF ROCHESTER: $1,407,376 · EducationUNIVERSITY OF ROCHESTE…University of Miami: $637,937 · EducationUniversity of MiamiTHE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK: $433,195 · EducationTHE TRUSTEES OF COLUMB…The Research Foundation for The State University of New York: $291,366 · EducationThe Research Foundatio…TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $257,764 · EducationTRUSTEES OF THE UNIVER…University at Buffalo Foundation Inc: $133,354 · EducationTHE J DAVID GLADSTONE INSTITUTES: $300,000 · HealthTHE JACKSON LABORATORY: $189,775 · HealthTHE CLEVELAND CLINIC FOUNDATION GROUP RETURN: $156,721 · HealthCEDARS-SINAI MEDICAL CENTER: $144,042 · HealthTHE GENESIS PROJECT INC: $50,000 · HealthNEW YORK STEM CELL FOUNDATION INC: $35,675 · Health+3 more: $63,847 · Health
Other$11,994,710Education$3,160,992Health$940,060

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$1.0M$10M$100Mgrantee revenue →↑ funder's share of their budgetUNIVERSITY OF ROCHESTER: $1,407,376 over 5y, 0.0% of budgetUniversity of Miami: $637,937 over 8y, 0.0% of budgetTHE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK: $433,195 over 4y, 0.0% of budgetThe Research Foundation for The State University of New York: $291,366 over 6y, 0.0% of budgetTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $257,764 over 5y, 0.0% of budgetTHE JACKSON LABORATORY: $189,775 over 5y, 0.0% of budgetTHE CLEVELAND CLINIC FOUNDATION GROUP RETURN: $156,721 over 6y, 0.0% of budgetCEDARS-SINAI MEDICAL CENTER: $144,042 over 2y, 0.0% of budgetUniversity at Buffalo Foundation Inc: $133,354 over 2y, 0.1% of budgetTHE GENESIS PROJECT INC: $50,000 over 2y, 27% of budgetNEW YORK STEM CELL FOUNDATION INC: $35,675 over 2y, 0.1% of budgetMUSCULAR DYSTROPHY ASSOCIATION INC: $28,897 over 1y, 0.0% of budgetMEMORIAL SLOAN-KETTERING CANCER CENTER: $24,950 over 1y, 0.0% of budgetHENRY M JACKSON FOUNDATION: $20,000 over 1y, 3.0% of budgetCHILDREN'S NATIONAL: $10,000 over 1y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

  • Who funds UNIVERSITY OF ROCHESTER ↗
  • Who funds University of Miami ↗
  • Who funds THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK ↗
  • Who funds THE J DAVID GLADSTONE INSTITUTES ↗
  • Who funds The Research Foundation for The State University of New York ↗
  • Who funds TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA ↗
  • Who funds THE JACKSON LABORATORY ↗
  • Who funds THE CLEVELAND CLINIC FOUNDATION GROUP RETURN ↗
  • Who funds CEDARS-SINAI MEDICAL CENTER ↗
  • Who funds University at Buffalo Foundation Inc ↗
  • Who funds THE GENESIS PROJECT INC ↗
  • Who funds NEW YORK STEM CELL FOUNDATION INC ↗
  • Who funds MUSCULAR DYSTROPHY ASSOCIATION INC ↗
  • Who funds MEMORIAL SLOAN-KETTERING CANCER CENTER ↗
  • Who funds HENRY M JACKSON FOUNDATION ↗
  • Who funds CHILDREN'S NATIONAL ↗

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.

Renaissance Charitable Foundation IncIN9.6× affinity4 shared granteesties to 5 of 5Hover any node to trace its alignments.Compare side by side →

Open a dossier: Renaissance Charitable Foundation Inc · National Philanthropic Trust · Vanguard Charitable Endowment Program · American Online Giving Foundation Inc · Donor Advised Charitable Giving Inc · Fidelity Investments Charitable Gift Fund

How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

How much its grantees rely on government

Each dot is one organization Charcot-Marie-Tooth Association funds: left to right is the share of its income from government, bottom to top the share from Charcot-Marie-Tooth Association. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 00%2%8%17%30%funder's share of their income ↑0%25%50%75%100%share of the org’s income from government →median 5%
  • University of Miami: 5% of income from government
no gov moneyreceives it· size = income
0get no government money at all
2report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.
05Through Plinth

Warm introductions · Powered by PlinthPlus

How do I get to Charcot-Marie-Tooth Association?

Find your warmest path to Charcot-Marie-Tooth Association through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 40 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

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