Pennsylvania · Public charity
Charcot-Marie-Tooth Association
Cmta awards research fellowships and grants for research on charcot-marie-tooth diesease. Cmta also hosts bi-annual meetings of all researchers receiving its funding to promote knowledge exchange and synergy. It uses the services of a medical research consultant to oversee the selection of the receipients of the research funding and tp…
- $3.3M
- Granted FY2025(still arriving)
- 12
- Itemized grants FY2025
- 12
- Organizations funded FY2024
- 33%
- First-time grantees FY2024
- Itemized, FY2025
- $2.9M
- The rest is grants the schedule does not break out
- Median grant, FY2025
- $90,860
- Largest grant, FY2025
- $1,045,708
- Organizations funded a year
- 7 to 14
- FY2017 to FY2024
- States reached, FY2025
- 9
- Total assets, FY2025
- $8.1M
How open it is to new grantees
In FY2024, 33% of the organizations Charcot-Marie-Tooth Association funded were first-time grantees, receiving 8% of its grant dollars.
New vs renewed · share of each year
In FY2024, 92% of grant dollars renewed an existing relationship; $125k went to new ones.
Where new relationships form · theme of each grantee’s first grant
How this is measured
The numbers by year
| Fiscal year | Organizations funded | To those organizations | First-time grantees |
|---|---|---|---|
| FY2025still arriving | 11 | $2.8M | 55% |
| FY2024 | 12 | $1.6M | 33% |
| FY2023 | 14 | $2.8M | 14% |
| FY2022 | 14 | $3.2M | 36% |
| FY2020 | 13 | $2.1M | 38% |
| FY2019 | 7 | $1.7M | 29% |
| FY2018 | 10 | $789k | 60% |
| FY2017 | 8 | $364k | n/a |
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.
Where its grants go
Grant dollars by states, across the years we hold.
Which US states its grants reach
Top grantees
Largest recipients by total granted, FY2017 to FY2025, and the share of each one’s budget the grants supplied at peak.
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Psychogenics Inc | $6,948,928 | 8 | n/a |
| State University of Iowa | $1,825,300 | 8 | n/a |
| University of Rochester | $1,407,376 | 5 | 0% |
| University of Miami | $637,937 | 8 | 0% |
| Charles River Laboratories International Inc | $443,271 | 5 | n/a |
| The Genesis Project USA | $423,000 | 1 | n/a |
| Nationwide Childrens Hospital Inc | $348,344 | 1 | n/a |
| University of Wisconsin Madison | $322,463 | 9 | n/a |
| The University of Texas Southwestern Medical Cente | $306,510 | 3 | n/a |
| The J David Gladstone Institutes | $300,000 | 1 | n/a |
Show all 32 grantees
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Psychogenics Inc | $6,948,928 | 8 | n/a |
| State University of Iowa | $1,825,300 | 8 | n/a |
| University of Rochester | $1,407,376 | 5 | 0% |
| University of Miami | $637,937 | 8 | 0% |
| Charles River Laboratories International Inc | $443,271 | 5 | n/a |
| The Genesis Project USA | $423,000 | 1 | n/a |
| Nationwide Childrens Hospital Inc | $348,344 | 1 | n/a |
| University of Wisconsin Madison | $322,463 | 9 | n/a |
| The University of Texas Southwestern Medical Cente | $306,510 | 3 | n/a |
| The J David Gladstone Institutes | $300,000 | 1 | n/a |
| The Research Foundation for The State University of New York | $291,366 | 6 | 0% |
| University of California San Francisco | $259,705 | 3 | n/a |
| The Jackson Laboratory | $189,775 | 5 | 0% |
| The Cleveland Clinic Foundation Group Return | $156,721 | 6 | 0% |
| Cedars-Sinai Medical Center | $144,042 | 2 | 0% |
| Albany Med Health System | $140,670 | 1 | n/a |
| Regents of the University of California | $138,852 | 1 | n/a |
| University at Buffalo Foundation Inc | $133,354 | 2 | 0% |
| The Ohio State University | $128,018 | 3 | n/a |
| The Board of Trustees of the University of Illinois | $127,305 | 3 | n/a |
| Envigo Rms LLC | $125,322 | 3 | n/a |
| Genezyme Corporation | $125,000 | 1 | n/a |
| University of California San Diego | $90,860 | 1 | n/a |
| The Genesis Project Inc | $50,000 | 2 | 27% |
| Curators of the University of Missouri | $44,620 | 1 | n/a |
| New York STEM Cell Foundation Inc | $35,675 | 2 | 0% |
| Muscular Dystrophy Association Inc | $28,897 | 1 | 0% |
| Memorial Sloan-Kettering Cancer Center | $24,950 | 1 | 0% |
| Henry M Jackson Foundation | $20,000 | 1 | 3% |
| Children's National | $10,000 | 1 | 0% |
| Arq Genetics LLC | $9,610 | 1 | n/a |
| University of South Florida | $8,000 | 1 | n/a |
Plus 6 recipients with no EIN on record ($159k), not named here.
Where it is load-bearing
Charcot-Marie-Tooth Association supplied at least a quarter of the budget for 1 of its grantees at some point. The chart plots its 13 largest grantees; load-bearing ones sit top left.
Tap a dot to name the grantee.
How this is measured
Co-funders
Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.
Open a dossier: Renaissance Charitable Foundation Inc · National Philanthropic Trust · Vanguard Charitable Endowment Program · American Online Giving Foundation Inc · Donor Advised Charitable Giving Inc · Fidelity Investments Charitable Gift Fund
How this is measured
Warm introductions · Powered by PlinthPlus
How do I get to Charcot-Marie-Tooth Association?
Find your warmest path to Charcot-Marie-Tooth Association through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.
Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.
About Charcot-Marie-Tooth Association
- How much does Charcot-Marie-Tooth Association give?
- Charcot-Marie-Tooth Association reported 12 itemized grants totaling $2,902,198, out of $3,342,651 in total grant expense reported on the return in its FY2025 IRS filing. It funded between 7 and 14 organizations a year over FY2017 to FY2024.
- What does Charcot-Marie-Tooth Association fund?
- By grant dollars over FY2017 to FY2025, its largest causes are Health (80%), Education (13%), Science & Tech (4%).
- Who are Charcot-Marie-Tooth Association's largest grantees?
- By total granted over FY2017 to FY2025: Psychogenics Inc ($6.9M), State University of Iowa ($1.8M), University of Rochester ($1.4M).
- Does Charcot-Marie-Tooth Association fund new organizations?
- In FY2024, 33% of the organizations it funded were first-time grantees.
- Which funders back the same organizations as Charcot-Marie-Tooth Association?
- Its strongest co-funders, measured against what their size predicts, include Renaissance Charitable Foundation Inc, National Philanthropic Trust, Vanguard Charitable Endowment Program.
- Where is Charcot-Marie-Tooth Association based?
- Charcot-Marie-Tooth Association is based in PA.
Play a game based on Charcot-Marie-Tooth Association’s filings →