Skip to content
Angelman Syndrome Foundation Inc at a glanceMostly funded, not a grantmaker: see who funds it →

· Public charity

Angelman Syndrome Foundation Inc

The foundation provides educational tools, information and support to individuals concerned with those affected by angelman syndrome.

$1.3M
Granted FY2025still arriving
8
Grants FY2025still arriving
8
States reached
$389k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
01What it funds
0198% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.

Science & Tech$2.5MHealth$1.9MEducation$1.7MInternational$97kOther$0
02FY2025 · 8 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 8 grants below total $1,173,418, the rows itemized in this filing. The $1,298,418 headline is the total grant expense on the return; the other $125,000 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.

By grant size · FY2025

  • $10k–50k1 grant · $12k
  • $50k–250k6 grants · $773k
  • $250k+1 grant · $389k
$125,000
Median grant
8
States reached
$2.6M
Total assets
Largest grants
RecipientAmount
REGENTS UNIVERSITY OF CALIFORNIA$388,725
UNIVERSITY OF NORTH CAROLINA$200,018
VANDERBUILT UNIVERSITY MEDICAL CTR$167,074
NEW YORK UNIVERSITY$125,000
UNIVERSITY OF MASSACHUSETTS$100,000
UNIVERSITY OF CONNECTICUT HEALTH$100,000
FAST$80,726
CHILDREN'S MERCY HOSPITAL$11,875
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY17–25) land where the poverty rate runs at 13%, against an area that typically sits at 12%. 73% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 12%UNIVERSITY OF MASSACHUSETTS: $100k → 12%BOSTON CHILDRENS HOSPITAL: $100k → 16%RADY CHILDREN'S HOSPITAL: $50k → 11%UNIVERSITY OF CALIFORNIA - DAVIS: $359k → 12%CHILDRENS HOSPITAL - LA: $86k → 14%REGENTS UNIVERSITY OF CALIFORNIA: $389k → 16%NYU LANGONE EPILEPSY CENTER: $50k → 17%FAST: $81k → 10%UNIVERSITY OF TEXAS SOUTHWESTERN: $100k → 14%TEXAS CHILDREN'S HOSPITAL: $50k → 16%CHILDRENS NATIONAL HOSPITAL: $69k → 14%CHILDREN'S MERCY - KANSAS CITY: $100k → 8%WASHINGTON UNIVERSITY: $100k → 11%UNIVERSITY OF CONNECTICUT HEALTH: $100k → 9%UNIVERSITY OF CONNECTICUT HEALTH: $100k → 11%VANDERBUILT UNIVERSITY MEDICAL CTR: $167k → 14%RTI INTERNATIONAL: $176k → 11%UNIVERSITY OF NORTH CAROLINA: $400k → 13%BROWN UNIVERSITY: $100k → 14%PURDUE UNIVERSITY: $100k → 19%FAST: $154k → 8%RUSH UNIVERSITY MEDICAL CENTER: $50k → 14%RTI INTERNATIONAL: $97k → 8%BOSTON CHILDRENS HOSPITAL: $13k → 16%UCLA: $14k → 14%NEW YORK UNIVERSITY: $125k → 17%FOUNDATION FOR ANGELMAN SYNDROME: $78k → 10%CHILDRENS NATIONAL HOSPITAL: $69k → 14%WASHINGTON UNIVERSITY: $100k → 11%UNIVERSITY OF CONNECTICUT HEALTH: $97k → 11%VANDERBUILT UNIVERSITY: $37k → 14%RTI INTERNATIONAL: $14k → 11%UNIVERSITY OF NORTH CAROLINA: $300k → 13%BROWN UNIVERSITY: $100k → 14%PURDUE UNIVERSITY: $50k → 19%FOUNDATION FOR ANGELMAN SYNDROME: $143k → 8%HMJ FOUNDATION: $75k → 8%MASSACHUSETTS GENERAL HOSPITAL: $80k → 16%NEW YORK UNIVERSITY: $125k → 17%UNIVERSITY OF NORTH CAROLINA: $297k → 13%HMJ FOUNDATION: $75k → 8%UNIVERSITY OF NORTH CAROLINA: $223k → 13%UNIVERSITY OF NORTH CAROLINA: $200k → 13%UNIVERSITY OF NORTH CAROLINA: $139k → 13%UNIVERSITY OF NORTH CAROLINA: $101k → 13%UNIVERSITY OF NORTH CAROLINA: $100k → 13%UNIVERSITY OF NORTH CAROLINA: $55k → 13%UNIVERSITY OF NORTH CAROLINA: $45k → 13%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

IL
NY
MA
OR
IN
CT
RI
CA
MO
MD
TN
NC
DC
GA
TX
How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

68%of every dollar goes to organizations it has funded before.
$4.2M · 13 repeat orgs$1.9M to everyone else

13 repeat relationships: 5 still active in FY2025, 8 since wound down; 3 grantees were first funded in FY2025 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

13
13

Total granted

$4.2M
$1.3M

Median revenue growth · since first grant

+30%
+39%

Still filing today

38%
31%

New vs renewed · share of each year

In FY2025, 44% of grant dollars renewed an existing relationship; $656k went to new ones.

50%100%’17’18’19’20’21’22’23’24’25
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’22’23’24’25
HealthEducationScience & TechOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • WASHINGTON UNIVERSITY
    2× · 2019–2020 · $200k · revenue +44%
  • RT
    Research Triangle Institute
    2× · 2019–2024 · $190k · revenue +30%
  • CH
    Children's Hospital Corporation
    2× · 2017–2018 · $113k · revenue +91%

Funded once

  • UO
    UNIVERSITY OF CALIFORNIA- DAVIS
    one grant, 2024 · $359k
  • UO
    UNIVERSITY OF CONNECTICUT
    one grant, 2018 · $155k
  • FF
    FOUNDATION FOR ANGELMAN SYNDROME
    one grant, 2023 · $143k
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
Rhode Island Hospital

As a founding hospital in the brown university health system, rih is committed to its mission: delivering health with care.

Health
2
Ann & Robert H Lurie Children's Hospital of Chicago

Ann & robert h. lurie children's hospital of chicago is dedicated to the health and well-being of all children. as the pediatric teaching facility for northwestern university feinberg school of medicine, this commitment drives us to be a…

Health
3
Fred Hutchinson Cancer Center

Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o

Health
4
University of Minnesota Physicians

University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…

Health
5
University of Miami

See Form 990, Part I, Line 1, Description of Organization Mission.

Education
6
Mass General Brigham Incorporated & Affiliates Group Return

Mass general brigham incorporated is developing an integrated health care delivery system throughout the region that offers patients a continuum of coordinated, high-quality care.

Health
7
Truman Medical Center Incorporated

University health is an academic health center providing accessible, state-of-the-art quality healthcare to our community regardless of the ability to pay.

Health
8
The Johns Hopkins Hospital

For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…

Health
9
Thomas Jefferson University

Thomas jefferson university ("tju") is a comprehensive university with preeminence in transdisciplinary, experiential professional education, research and discovery, delivering exceptional value for the 21st century students with…

Education
10
William Marsh Rice University

As a leading research university with a distinctive commitment to undergraduate education, Rice University aspires to path breaking research, unsurpassed teaching, and contributions to the betterment of our world. It seeks to fulfill this…

Education
11
Children's Health Care

We champion the health needs of children and families. we are committed to improving children's health by providing the highest-quality, family centered care, advanced through research and education.

Health
12
Cedars-Sinai Medical Center

As a leading academic healthcare organization, our mission is to elevate the health status of the communities we serve.(see schedule o for continuation)(continued)-we deliver exceptional healthcare enhanced by research and education-we…

Health
How this is measured
The grantee most central to the portfolio’s shape is Rush University Medical Center; the most unlike its peers is Foundation for Angelman Syndrome Therapeutics. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

11 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 11 of the 30 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
0
Early backer (in before they grew)
11/11
Grantees still filing
8/11
Grew since first funded

Where the money sits, by cause and then by grantee

UNIVERSITY OF NORTH CAROLINA: $1,859,700 · OtherUNIVERSITY OF NORTH CAROLINAUNIVERSITY OF CONNECTICUT HEALTH CENTER: $397,126 · OtherUNIVERSITY OF CONNECTICUT HEALTH CENTERREGENTS UNIV OF CALIFORNIA: $388,725 · OtherREGENTS UNIV OF CALIFORNIAUNIVERSITY OF CALIFORNIA- DAVIS: $359,000 · OtherUNIVERSITY OF CALIFORNIA- DAVISMASSACHUSETTS GENERAL HOSPITAL: $270,682 · OtherMASSACHUSETTS GENERAL HOSPITALFAST: $234,726 · Other+13 more: $1,263,181 · Other+13 moreVanderbilt University Medical Center: $167,074 · HealthVanderbilt …Children's Hospital Corporation: $112,999 · HealthChildren's …The Children's Mercy Hospital: $111,762 · HealthThe Childre…Children's Hospital Los Angeles: $86,338 · HealthChildren's …FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS: $78,493 · HealthFOUNDATION …Rush University Medical Center: $50,000 · HealthRush Univer…Texas Children's Hospital: $50,000 · HealthTexas Child…New York University: $250,000 · EducationWASHINGTON UNIVERSITY: $200,000 · EducationBROWN UNIVERSITY: $200,000 · Community ImprovementResearch Triangle Institute: $189,874 · Science & Tech
Other$4,773,140Health$656,666Education$450,000Community Improvement$200,000Science & Tech$189,874

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$100Mgrantee revenue →↑ funder's share of their budgetNew York University: $250,000 over 2y, 0.0% of budgetBROWN UNIVERSITY: $200,000 over 2y, 0.0% of budgetWASHINGTON UNIVERSITY: $200,000 over 2y, 0.0% of budgetResearch Triangle Institute: $189,874 over 2y, 0.0% of budgetVanderbilt University Medical Center: $167,074 over 1y, 0.0% of budgetChildren's Hospital Corporation: $112,999 over 2y, 0.0% of budgetThe Children's Mercy Hospital: $111,762 over 2y, 0.0% of budgetChildren's Hospital Los Angeles: $86,338 over 1y, 0.0% of budgetFOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS: $78,493 over 1y, 1.5% of budgetRush University Medical Center: $50,000 over 1y, 0.0% of budgetTexas Children's Hospital: $50,000 over 1y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

  • Who funds New York University ↗
  • Who funds BROWN UNIVERSITY ↗
  • Who funds WASHINGTON UNIVERSITY ↗
  • Who funds Research Triangle Institute ↗
  • Who funds Vanderbilt University Medical Center ↗
  • Who funds Children's Hospital Corporation ↗
  • Who funds The Children's Mercy Hospital ↗
  • Who funds Children's Hospital Los Angeles ↗
  • Who funds FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS ↗
  • Who funds Rush University Medical Center ↗
  • Who funds Texas Children's Hospital ↗

How much its grantees rely on government

Each dot is one organization Angelman Syndrome Foundation Inc funds: left to right is the share of its income from government, bottom to top the share from Angelman Syndrome Foundation Inc. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 00%0%1%3%5%funder's share of their income ↑0%23%45%68%90%share of the org’s income from government →median 10%
  • Children's Hospital Corporation: 10% of income from government
no gov moneyreceives it· size = income
0get no government money at all
0rely on government for over half their income
⤢ axis zoomed · 0–90%
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 30 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

Play a game based on Angelman Syndrome’s filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home