· Public charity
Angelman Syndrome Foundation Inc
The foundation provides educational tools, information and support to individuals concerned with those affected by angelman syndrome.
What you funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year — across FY2017–2025.
Where the money goes
Your grants by size, and where they go.
The 8 grants below total $1,173,418 — the rows itemised in this filing. The $1,298,418 headline is the total grant expense reported on the return, so the remaining $125,000 is giving the schedule does not break out: grants under the $5,000 itemisation floor, grants to individuals, and grants reported on other schedules. Every figure below describes the itemised rows only.
By grant size · FY2025
- $10k–50k1 grant · $12k
- $50k–250k6 grants · $773k
- $250k+1 grant · $389k
| Recipient | Amount |
|---|---|
| REGENTS UNIVERSITY OF CALIFORNIA | $388,725 |
| UNIVERSITY OF NORTH CAROLINA | $200,018 |
| VANDERBUILT UNIVERSITY MEDICAL CTR | $167,074 |
| NEW YORK UNIVERSITY | $125,000 |
| UNIVERSITY OF CONNECTICUT HEALTH | $100,000 |
| UNIVERSITY OF MASSACHUSETTS | $100,000 |
| FAST | $80,726 |
| CHILDREN'S MERCY HOSPITAL | $11,875 |
Do your dollars go where the need is?
Each grant placed by the hardship in its grantee’s ZIP, then read against the area’s typical level.
Dollar for dollar, your grants (FY17–25) land where the poverty rate runs at 13%, against an area that typically sits at 12%. 73% of your dollars go to grantees based in above-average-need neighborhoods. Most of your grants land in higher-need ZIPs.
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty linein the grantee’s ZIP, averaged from the tracts in that ZIP; grantee ZIP can differ from where services are delivered.
Which US states your grants reach
US grants placed by each grantee’s ZIP, which can differ from where services are actually delivered. Need from public data — U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA — shown as context about the area, never attributed to your giving.
Who you back again
Which organizations you funded more than once, and which you funded a single time. Each grantee is matched to its own filings.
And the relationships you keep tend to grow: grantees you re-up on have seen median revenue of +44% since the first grant, against +39% for the ones you funded once.
13 repeat relationships — 5 still active in FY2025, 8 since wound down; 3 grantees were first funded in FY2025 (too recent to call).
How the two cohorts compare
Organizations
Total granted
Median revenue growth · since first grant
Still filing today
New vs renewed · share of each year
In FY2025, 44% of grant dollars renewed an existing relationship; $656k went to new ones.
Where new relationships form · theme of each grantee’s first grant
First-time = a grantee’s first year in your filing window; renewed = funded in an earlier year too. As a portfolio matures the renewed share naturally climbs — once funded, an org stays “renewable” — so the signal is the years that buck it (a new-grantee intake wave). The earliest year is left-censored: relationships that predate the data read as “new.” Theme is the grantee’s IRS cause.
Backed again, and grew
WASHINGTON UNIVERSITY2× · 2019–2020 · $200k · revenue +44%- RTResearch Triangle Institute2× · 2019–2024 · $190k · revenue +45%
- CHChildren's Hospital Corporation2× · 2017–2018 · $113k · revenue +69%
Funded once
- UOUNIVERSITY OF CALIFORNIA- DAVISone grant, 2024 · $359k
- UOUNIVERSITY OF CONNECTICUTone grant, 2018 · $155k
- FFFOUNDATION FOR ANGELMAN SYNDROMEone grant, 2023 · $143k
Repeat = funded in two or more distinct years; growth and survival are read from each grantee’s own subsequent IRS filings.
The map has a center of gravity: the average direction from the rest of the sector toward the organizations the foundation funds — the shape of its giving. Scoring every nonprofit along that direction surfaces the ones that look most like the portfolio. These are the closest matchesthat aren’t grantees — a resemblance in what they say they do, not a recommendation.
Ann & robert h. lurie children's hospital of chicago is dedicated to the health and well-being of all children. as the pediatric teaching facility for northwestern university feinberg school of medicine, this commitment drives us to be a…
University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…
Mass general brigham incorporated is developing an integrated health care delivery system throughout the region that offers patients a continuum of coordinated, high-quality care.
The children's hospital of philadelphia, the oldest hospital in the united states dedicated exclusively to pediatrics, strives to be the world leader in the advancement of health care for children by integrating excellent patient care,…
Thomas jefferson university ("tju") is a comprehensive university with preeminence in transdisciplinary, experiential professional education, research and discovery, delivering exceptional value for the 21st century students with…
University health is an academic health center providing accessible, state-of-the-art quality healthcare to our community regardless of the ability to pay.
See Form 990, Part I, Line 1, Description of Organization Mission.
As a leading research university with a distinctive commitment to undergraduate education, Rice University aspires to path breaking research, unsurpassed teaching, and contributions to the betterment of our world. It seeks to fulfill this…
Our mission at the university of chicago medicine is to provide superior health care through rigorous research, innovative education, and comprehensive care and healing. in partnership with our colleagues, we pursue life-changing…
Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o
For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…
The central mission of the university of southern california is the development of human beings and society as a whole through the cultivation and enrichment of the human mind and spirit. the principal means by which our mission is…
For reference, the grantee most central to the portfolio’s shape is Texas Children's Hospital and the most unlike its peers is Foundation for Angelman Syndrome Therapeutics. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
11 grantees tracked through their own filings, 2017–2025.
Each one resolved to its own IRS returns and tracked year by year — your grant beside their revenue from every source. Association, dated; never a causal claim.
Counted here: distinct organizations you funded across 2017–2025, not grant rows in a single year — so this will not match the grant count on the cover. 11 of the 30 grantees resolved in that span have returns of their own we could reconcile; the rest are funded organizations whose filings we could not track year by year.
Where your money sits — by cause, then by grantee
Each org by its size and your share of it — top-left is where you’re load-bearing
Go grantee by grantee — a decade per org, and how each moved after you funded them
A decade per grantee — revenue shaded, your grants as bars, all rows on one timeline.
- Who funds New York University ↗
- Who funds BROWN UNIVERSITY ↗
- Who funds WASHINGTON UNIVERSITY ↗
- Who funds Research Triangle Institute ↗
- Who funds Vanderbilt University Medical Center ↗
- Who funds Children's Hospital Corporation ↗
- Who funds The Children's Mercy Hospital ↗
- Who funds Children's Hospital Los Angeles ↗
- Who funds FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS ↗
- Who funds Texas Children's Hospital ↗
- Who funds Rush University Medical Center ↗
Government reliance of your grantees
Every dot is one organization Angelman Syndrome Foundation Inc funds. Left–right is the share of its income from government; up–down is the share from you. Bigger dots raise more. Filter to federal or a single department — and drag the year to watch it move.
- Children's Hospital Corporation — 10% of income from government
Government income is each org’s traced federal awards (USASpending — grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that your grant caused the public funding. Coverage is precision-first — a floor, not a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12–24 months.