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ALS Network at a glanceMostly funded, not a grantmaker: see who funds it →

· Public charity

ALS Network

The mission of ALS Network is to partner with the ALS community as we drive the discovery of prevention strategies, treatments, and cures for ALS; provide access to quality care and connection; and promote initiatives to improve health outcomes.

$1.5M
Granted FY2025still arriving
11
Grants FY2025still arriving
1
States reached
$216k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2019 to 2025.

Health$9.2MEducation$100k
02FY2025 · 11 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 11 grants below total $1,388,434, the rows itemized in this filing. The $1,535,124 headline is the total grant expense on the return; the other $146,690 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.
$100,000
Median grant
1
States reached
$16M
Total assets
Largest grants
RecipientAmount
ALS Association Greater Sacramento Chapter$216,336
ALS Association Greater San Diego Chapter$198,164
ALS Association Orange County Chapter$173,934
Cedar-Sinai Medical Center$100,000
UC Davis Multidisciplinary ALS Clinic$100,000
Regents of the University of California Irvine$100,000
Keck Medical of USC ALS Clinic University of Southern California$100,000
Faculty Physicians & Surgeons of LLUSM$100,000
Regents of the University of California Department of Neurosciences$100,000
Regents of the University of California San Francisco$100,000
Forbes Norris ALS Research Center$100,000
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY19–25) land where the poverty rate runs at 12%, against an area that typically sits at 11%. 70% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 11%Regents of the University of California Irvine: $100k → 10%Forbes Norris ALS Research Center: $100k → 10%ALS Association Greater San Diego Chapter: $298k → 11%UC Davis Multidisciplinary ALS Clinic: $100k → 12%Faculty Physicians & Surgeons of LLUSM: $100k → 14%Keck Medical of USC ALS Clinic University of Southern California: $100k → 14%Regents of the University of California Irvine: $100k → 10%Forbes Norris ALS Research Center: $100k → 10%ALS Association Greater San Diego Chapter: $208k → 11%UC Davis Multidisciplinary ALS Clinic: $100k → 12%Faculty Physicians & Surgeons of LLUSM: $100k → 14%Keck Medical of USC ALS Clinic University of Southern California: $100k → 14%Regents of the University of California Irvine: $100k → 10%Forbes Norris ALS Research Center: $100k → 10%ALS Association Greater San Diego Chapter: $198k → 11%UC Davis Multidisciplinary ALS Clinic: $100k → 12%Faculty Physicians & Surgeons of LLUSM: $100k → 14%Keck Medical of USC ALS Clinic University of Southern California: $100k → 14%Regents of the University of California Irvine: $100k → 10%Forbes Norris ALS Research Center: $100k → 10%ALS Association Greater San Diego Chapter: $198k → 11%UC Davis Multidisciplinary ALS Clinic: $100k → 12%Faculty Physicians & Surgeons of LLUSM: $100k → 14%University of Southern California: $100k → 14%Regents of the University of California Irvine: $100k → 10%Forbes Norris ALS Research Center: $100k → 10%ALS Association Greater San Diego Chapter: $152k → 11%UC Davis Multidisciplinary ALS Clinic: $100k → 12%Faculty Physicians & Surgeons of LLUSM: $100k → 14%Keck Medical of USC ALS Clinic University of Southern California: $100k → 14%Regents of the University of California Irvine: $100k → 10%Forbes Norris ALS Research Center: $100k → 10%ALS Association Greater San Diego Chapter: $126k → 11%UC Davis Multidisciplinary ALS Clinic: $100k → 12%Faculty Physicians & Surgeons of LLUSM: $100k → 14%Keck Medical of USC ALS Clinic University of Southern California: $100k → 14%ALS Association Orange County Chapter: $274k → 10%ALS Association Greater Sacramento Chapter: $317k → 12%ALS Association Orange County Chapter: $182k → 10%ALS Association Greater Sacramento Chapter: $227k → 12%ALS Association Orange County Chapter: $174k → 10%ALS Association Greater Sacramento Chapter: $216k → 12%ALS Association Orange County Chapter: $174k → 10%ALS Association Greater Sacramento Chapter: $216k → 12%ALS Association Orange County Chapter: $152k → 10%ALS Association Greater Sacramento Chapter: $152k → 12%ALS Association Orange County Chapter: $126k → 10%ALS Association Greater Sacramento Chapter: $126k → 12%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.
How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

100%of every dollar goes to organizations it has funded before.
$8.7M · 10 repeat orgs$0 to everyone else

10 repeat relationships: 10 still active in FY2025, 0 since wound down.

How the two cohorts compare

Re-uppedFunded once

Organizations

10
0

Total granted

$8.7M
$0

Still filing today

60%
0%

New vs renewed · share of each year

In FY2025, 100% of grant dollars renewed an existing relationship; $0 went to new ones.

50%100%’19’20’21’22’23’24’25
RenewedFirst-time
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • CEDARS-SINAI MEDICAL CENTER
    7× · 2019–2025 · $700k · revenue +50%
  • SB
    SUTTER BAY MEDICAL FOUNDATION
    7× · 2019–2025 · $700k · revenue +38%
  • FP
    Faculty Physicians & Surgeons of LLUSM
    7× · 2019–2025 · $700k · revenue +56%

Funded once

    How this is measured

    Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

    04Its field
    04the grantee network

    7 grantees tracked through their own filings, 2017–2025.

    Each grant beside the grantee’s revenue from every source, year by year.

    How this is measured

    Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 7 of the 11 grantees resolved in that span have returns of their own we could reconcile.

    Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

    2
    Load-bearing (≥25% of a budget)
    0
    Early backer (in before they grew)
    7/7
    Grantees still filing
    3/7
    Grew since first funded

    Where the money sits, by cause and then by grantee

    ALS UNITED GREATER SAN DIEGO: $1,280,356 · HealthALS UNITED GREATER SAN DIEGOALS UNITED ORANGE COUNTY: $1,182,236 · HealthALS UNITED ORANGE COUNTYCEDARS-SINAI MEDICAL CENTER: $700,000 · HealthCEDARS-SINAI MEDICAL CENTERSUTTER BAY MEDICAL FOUNDATION: $700,000 · HealthSUTTER BAY MEDICAL FOUNDATIONFaculty Physicians & Surgeons of LLUSM: $700,000 · HealthFaculty Physicians & Surgeons of LLUSMAMYOTROPHIC LATERAL SCLEROSIS ASSOC GREATER SACRAMENTO CHAPTER: $1,354,269 · OtherAMYOTROPHIC LATERAL SCLEROSIS ASSOC GREATER SACRAM…REGENTS OF THE UNIVERSITY OF CALIFORNIA AT IRVINE: $700,000 · OtherREGENTS OF THE UNIVERSITY OF CALIFORNIA AT IRVINEREGENTS OF THE UNIVERSITY OF CALIFORNIA AT SAN DIEGO: $700,000 · OtherREGENTS OF THE UNIVERSITY OF CALIFORNIA AT SAN DIE…UNIVERSITY OF CALIFORNIA DAVIS: $700,000 · OtherUNIVERSITY OF CALIFORNIA DAVISUNIVERSITY OF CALIFORNIA SAN FRANCISCO: $700,000 · OtherUNIVERSITY OF CALIFORNIA SAN FRANCISCOUNIVERSITY OF SOUTHERN CALIFORNIA: $600,000 · Education
    Health$4,562,592Other$4,154,269Education$600,000

    Each grantee by its size and the funder’s share of it; top left is load-bearing

    25%50%75%100%$1.0M$10M$100Mgrantee revenue →↑ funder's share of their budgetAMYOTROPHIC LATERAL SCLEROSIS ASSOC GREATER SACRAMENTO CHAPTER: $1,354,269 over 7y, 25% of budgetALS UNITED GREATER SAN DIEGO: $1,280,356 over 7y, 37% of budgetALS UNITED ORANGE COUNTY: $1,182,236 over 7y, 21% of budgetCEDARS-SINAI MEDICAL CENTER: $700,000 over 7y, 0.0% of budgetSUTTER BAY MEDICAL FOUNDATION: $700,000 over 7y, 0.0% of budgetFaculty Physicians & Surgeons of LLUSM: $700,000 over 7y, 0.0% of budgetUNIVERSITY OF SOUTHERN CALIFORNIA: $600,000 over 6y, 0.0% of budget
    Grantee by grantee: a decade per organization, before and after funding

    A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

    • Who funds AMYOTROPHIC LATERAL SCLEROSIS ASSOC GREATER SACRAMENTO CHAPTER ↗
    • Who funds ALS UNITED GREATER SAN DIEGO ↗
    • Who funds ALS UNITED ORANGE COUNTY ↗
    • Who funds CEDARS-SINAI MEDICAL CENTER ↗
    • Who funds SUTTER BAY MEDICAL FOUNDATION ↗
    • Who funds Faculty Physicians & Surgeons of LLUSM ↗
    • Who funds UNIVERSITY OF SOUTHERN CALIFORNIA ↗

    Co-funders

    Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.

    Amyotrophic Lateral S…American Online Givin…
    Amyotrophic Lateral Sclerosis AssnVA13.8× affinity4 shared granteesties to 1 of 1Hover any node to trace its alignments.Compare side by side →

    Open a dossier: Amyotrophic Lateral Sclerosis Assn · American Online Giving Foundation Inc

    How this is measured
    Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

    How much its grantees rely on government

    Each dot is one organization ALS Network funds: left to right is the share of its income from government, bottom to top the share from ALS Network. Bigger dots raise more.

    2024
    ’20’21’22’23’24’25
    no gov · 00%6%25%56%100%funder's share of their income ↑0%4%8%11%15%share of the org’s income from government →
      no gov moneyreceives it· size = income
      0get no government money at all
      2report government grants on their 990 we could not trace to a source (not plotted)
      0rely on government for over half their income
      ⤢ axis zoomed · 0–15%
      typical government reliance, FY20–25
      How this is measured
      Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.

      On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 11 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

      How this is measured
      Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

      Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

      Source object · view filing

      Play a game based on ALS Network’s filings →

      More from the funding graph

      The unnamed billions
      grants reported with no recipient in the public record
      The regranting layer
      51% of grant dollars land in the regranting layer
      The DAF merry-go-round
      $9.7B circulates between donor-advised funds
      The endowment market
      who holds foundation money, and what just moved
      The camps
      funders cluster by geography, not ideology
      By state
      where grant money is based, and what stays home