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Massachusetts · Nonprofit

VALERIAS FOUNDATION FOR KCNT1 RESEARCH INC

VALERIAS FOUNDATION FOR KCNT1 RESEARCH INC (Massachusetts) receives grants from 2 organizations whose IRS filings report $500,048 to it, the largest being THE WYSS MEDICAL FOUNDATION INC ($500,000). 1 of them have funded it in more than one year.

Revenue FY2025
$28k
Funders on record
2
Grants received
$500k
Net assets
$379k
1/2 repeat funderspeak grant-dependency 0%
01What it does

What Valerias Foundation for Kcnt1 Research Inc does

Mission

fund research for monogenetic orphan diseases like de novo mutations on the KCNT1 Gene

As stated on its FY2025 Form 990-EZ.

Programs

  1. Grant to N of 1 Collaborative Inc and the Valeria Association to move science and therapy for n of 1 trials, share data etc

    $0 spentof which $10,000 as grants
    0% of program spending
  2. we will raise funds at 2025 Falmouth Road Race. We applied for 20 numbers for non profits. we have received 15. Still (5 more than in 2023). we are planing on raising 15000 USD. we will apply for 2026 falmouth road race and will apply for 20 numbers for non profits again.

    $3,800 spent
    100% of program spending
  3. We have further aims that we cannot disclose since it is confidential. this is still the same as last year

    $0 spentof which $10,000 as grants
    0% of program spending

The 3 programs described on its FY2024 Form 990-EZ. Program spending in total: $3,800.

02The organization over time

The organization over time

Each line starts at 100 in 2022, so what you read is the shape rather than the size: 150 means half as much again as 2022, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.

100 = 20222022 Revenue 100 ($507k) Expenses 100 ($22k) Net assets 100 ($485k)2023 Revenue 2 ($11k) Expenses 341 ($74k) Net assets 91 ($441k)2024 Revenue 2 ($12k) Expenses 138 ($30k) Net assets 87 ($423k)2025 Revenue 5 ($28k) Expenses 101 ($22k) Net assets 78 ($379k)
2022202320242025
Revenue (5)Expenses (101)Net assets (78)Peer revenue range

Balance sheet

Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2022 to 2023, from $485k to $441k (−9%).

$485k
$441k
$423k
$429k
2022202320242025
Total assetsTotal liabilities

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2022
2023
2024
2025
ContributionsProgram revenueInvestmentOther

54% of VALERIAS FOUNDATION FOR KCNT1 RESEARCH INC’s revenue is contributions — about as donation-reliant as the typical peer (100% for the typical peer).

This organization
Typical peer · 12,214 orgs

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 4 reported years ran a deficit.

$485k
’22
−$63k
’23
−$18k
’24
$6k
’25
268
months of
reserve
03Who funds it

Who funds it, year by year

2021 → 2023: the base held at 1 funder, grant income fell $500k → $18.

Funder
'21
'22
'23
total
funders
1
1
1

1 of 2 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 0% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of VALERIAS FOUNDATION FOR KCNT1 RESEARCH INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

VALERIAS FOUNDATION FOR KCNT1 RESEARCH INC leans on a few funders — its largest provides 100% of grant income and the top three 100%; half comes from just 1 funder.

the vertical line marks half of all grant income — 1 funder to its left

100%
largest funder
100%
top three
~1
effective funders

Largest funder’s share by year: 2021 100% · 2022 100% · 2023 100% — broadly stable.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

Where its funders are

VALERIAS FOUNDATION FOR KCNT1 RESEARCH INC draws 100% of its grant income from funders outside Massachusetts, across 1 state in all.

DC

Funder states come from each funder’s own filing. $48 arriving through sponsors registered in 1 state is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Against its field

VALERIAS FOUNDATION FOR KCNT1 RESEARCH INC runs a healthier operating margin than half of the 6,360 health nonprofits its size.

Operating margin20% · above the median
Revenue growth (annualized)−62% · bottom quartile

this organization peer median middle 50% of peers· 6,360 health nonprofits under $100k, FY2025

Organizations like VALERIAS FOUNDATION FOR KCNT1 RESEARCH INC

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In Massachusetts

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Public support

100%

Share of support from the public (Schedule A) — the basis for its public-charity status.

Footprint & structure

Files a return copy in 1 state

MA

Screen this organization

A dated, signed PDF of the compliance screen for VALERIAS FOUNDATION FOR KCNT1 RESEARCH INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

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Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds VALERIAS FOUNDATION FOR KCNT1 RESEARCH INC?
VALERIAS FOUNDATION FOR KCNT1 RESEARCH INC (Massachusetts) receives grants from 2 organizations whose IRS filings report $500,048 to it, the largest being THE WYSS MEDICAL FOUNDATION INC ($500,000). 1 of them have funded it in more than one year.
How many funders does VALERIAS FOUNDATION FOR KCNT1 RESEARCH INC have?
IRS filings report 2 organizations giving $500,048 in grants to VALERIAS FOUNDATION FOR KCNT1 RESEARCH INC, 1 of which have funded it in more than one year.
Who is the largest funder of VALERIAS FOUNDATION FOR KCNT1 RESEARCH INC?
THE WYSS MEDICAL FOUNDATION INC is the largest funder on record, with $500,000 in grants. The full list of funders is on this page.
How can an organization like VALERIAS FOUNDATION FOR KCNT1 RESEARCH INC find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in Massachusetts. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

Play a game about who funds Valerias Foundation for Kcnt1 Research →

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2022–2025), and the filings of 2 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing