Michigan · Nonprofit
TRISOMY 18 SUPPORT INC DBA TRISOMY 18 FOUNDATION
TRISOMY 18 SUPPORT INC DBA TRISOMY 18 FOUNDATION (Michigan) receives grants from 11 organizations whose IRS filings report $100,272 to it, the largest being ALISANN AND TERRY COLLINS FOUNDATION ($60,471). 4 of them have funded it in more than one year.
- Revenue FY2025
- $90k
- Funders on record
- 11
- Grants received
- $100k
- Net assets
- $61k
What Trisomy 18 Support Inc Dba Trisomy 18 Foundation does
Mission
Trisomy 18 foundation is dedicated to accelerating research into the causes and treatments of trisomy 18, and supporting all families impacted by a trisomy 18 diagnosis.
As stated on its FY2025 Form 990.
Program
Education and support programs: trisomy 18's nationally-recognized program supports and educates both patient families and medical providers who treat families and children with trisomy 18 though direct service calls to support program staff, workshops, public presentations, educational materials and technology enabled peer support programs.the research advocacy and public engagement program: this program supports constituent engagement in the research and health policy-making process at federal and state level on legislative and regulatory initiatives that impact the lives of families and their children with trisomy 18.this program involves and engages the public in national awareness campaigns to support our cause to make trisomy 18 a preventable and treatable condition so that less families lose their precious newborns and infants to this condition. Volunteers are supported in hosting special awareness and fundraising events benefitting the foundation in locations across the united states. These events help develop and expand philanthropic partnerships to accelerate progress toward treatments and improved health outcomes for children impacted by trisomy 18 diagnosis.
$60,111 spent100% of program spending
The program described on its FY2024 Form 990. Program spending in total: $60,111.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $65k to $123k (+88%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2021 10%. Grants only. Government contracts and fees sit inside program revenue.
100% of TRISOMY 18 SUPPORT INC DBA TRISOMY 18 FOUNDATION’s revenue is contributions — more reliant on donations than three-quarters of its peers (100% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Kristine Shaughnessy
Executive director
As listed on its FY2025 Form 990.
Who funds it, year by year
2020 → 2023: the base broadened from 4 funders to 5 funders, grant income rose $18k → $31k.
3 of 11 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 28% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of TRISOMY 18 SUPPORT INC DBA TRISOMY 18 FOUNDATION’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
TRISOMY 18 SUPPORT INC DBA TRISOMY 18 FOUNDATION leans on a few funders — its largest provides 60% of grant income and the top three 91%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
28% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund TRISOMY 18 SUPPORT INC DBA TRISOMY 18 FOUNDATION.
Largest funder’s share by year: 2020 54% · 2021 86% · 2022 75% · 2023 64% — growing more concentrated.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
50% of TRISOMY 18 SUPPORT INC DBA TRISOMY 18 FOUNDATION's funders are still giving 3 years after their first grant; 36% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
TRISOMY 18 SUPPORT INC DBA TRISOMY 18 FOUNDATION draws 100% of its grant income from funders outside Michigan, across 7 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $28k arriving through sponsors registered in 3 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
TRISOMY 18 SUPPORT INC DBA TRISOMY 18 FOUNDATION runs a healthier operating margin than half of the 6,360 health nonprofits its size.
this organization peer median middle 50% of peers· 6,360 health nonprofits under $100k, FY2025
Organizations like TRISOMY 18 SUPPORT INC DBA TRISOMY 18 FOUNDATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Michigan
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
70% of spending goes to programs.
Governance
Public support
100%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for TRISOMY 18 SUPPORT INC DBA TRISOMY 18 FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds TRISOMY 18 SUPPORT INC DBA TRISOMY 18 FOUNDATION?
- TRISOMY 18 SUPPORT INC DBA TRISOMY 18 FOUNDATION (Michigan) receives grants from 11 organizations whose IRS filings report $100,272 to it, the largest being ALISANN AND TERRY COLLINS FOUNDATION ($60,471). 4 of them have funded it in more than one year.
- How many funders does TRISOMY 18 SUPPORT INC DBA TRISOMY 18 FOUNDATION have?
- IRS filings report 11 organizations giving $100,272 in grants to TRISOMY 18 SUPPORT INC DBA TRISOMY 18 FOUNDATION, 4 of which have funded it in more than one year.
- Who is the largest funder of TRISOMY 18 SUPPORT INC DBA TRISOMY 18 FOUNDATION?
- ALISANN AND TERRY COLLINS FOUNDATION is the largest funder on record, with $60,471 in grants. The full list of funders is on this page.
- How can an organization like TRISOMY 18 SUPPORT INC DBA TRISOMY 18 FOUNDATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Michigan. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 11 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing