Oregon · Nonprofit
SOCIETY FOR INHERITED METABOLIC DISORDERS
SOCIETY FOR INHERITED METABOLIC DISORDERS (Oregon) receives grants from 1 organization whose IRS filings report $1,546,000 to it, the largest being MARIN COMMUNITY FOUNDATION ($1,546,000). 1 of them have funded it in more than one year, and 100% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $761k
- Funders on record
- 1
- Grants received
- $1.5M
- Net assets
- $1.1M
What Society for Inherited Metabolic Disorders does
Mission
To increase knowledge of and promote research in inborn errors of metabolism in humans, and to stimulate interactions between clinicians and investigators in inborn errors of metabolism. To seek to foster training and maintenance of a core of qualified physicians, fellows, nutritionists, nurses and laboratory staff.
As stated on its FY2025 Form 990.
Programs
During the year ended june 30, 2024, Society for Inherited Metabolic Disorders ("the organization") continued to conduct its metabolic courses for young trainees in the field of inborn errors of metabolism and genetics. The north american metabolic academy (nama 1.0) was held during the fiscal year.
$473,494 spent$166,528 earned by the program47% of program spendingThe 2024 simd annual meeting was held april 14-17, 2024 in charlotte, nc. There were a total of 625 attendees from all over the world. It was a three-day conference which included a joint session with the genetic metabolic dietitians international society held after our meeting. This annual conference gives an opportunity for doctors, trainees, genetic counselors, nurses, dieticians and others a chance to meet to discuss diagnosis and treatments for the rare metabolic disorders that they treat. There are 12 travel awards offered to jr. Faculty that come and talk about their research, and 168 posters displayed for the entire meeting with a poster session and reception one evening. Attendees visit the exhibitors during breaks to learn more about their products for children with metabolic disorders.
$405,325 spent$613,080 earned by the program41% of program spendingAlso during the year, the organization continued to provide iembase, an extensive system providing both an online knowledgebase and a smart system (artificial intelligence) for curation and diagnosis support for inborn errors of metabolism.
$63,824 spent6% of program spendingThe organization also continued its membership program and publication of a medical journal.
$54,864 spent6% of program spending
The 4 programs described on its FY2023 Form 990, listed largest first by expense. Program spending in total: $997,507.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2022 to 2023, from $793k to $1.0M (+32%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2017 2% · 2020 0% · 2021 0% · 2022 1% · 2023 1% · 2024 1% · 2025 1%. Grants only. Government contracts and fees sit inside program revenue.
71% of SOCIETY FOR INHERITED METABOLIC DISORDERS’s revenue is contributions — about as donation-reliant as the typical peer (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 7 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2021 → 2023: the base held at 1 funder, grant income rose $46k → $400k.
1 of 1 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 100% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of SOCIETY FOR INHERITED METABOLIC DISORDERS’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
100% of SOCIETY FOR INHERITED METABOLIC DISORDERS's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Too little is directly attributable to place on a map.
Funder states come from each funder’s own filing. $1.5M arriving through sponsors registered in 1 state is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
SOCIETY FOR INHERITED METABOLIC DISORDERS is better cushioned than half of the 7,883 health nonprofits its size.
this organization peer median middle 50% of peers· 7,883 health nonprofits $100k–$1M, FY2025
Organizations like SOCIETY FOR INHERITED METABOLIC DISORDERS
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Oregon
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
83% of spending goes to programs.
Governance
Public support
97%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for SOCIETY FOR INHERITED METABOLIC DISORDERS: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds SOCIETY FOR INHERITED METABOLIC DISORDERS?
- SOCIETY FOR INHERITED METABOLIC DISORDERS (Oregon) receives grants from 1 organization whose IRS filings report $1,546,000 to it, the largest being MARIN COMMUNITY FOUNDATION ($1,546,000). 1 of them have funded it in more than one year, and 100% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does SOCIETY FOR INHERITED METABOLIC DISORDERS have?
- IRS filings report 1 organization giving $1,546,000 in grants to SOCIETY FOR INHERITED METABOLIC DISORDERS, 1 of which have funded it in more than one year.
- Who is the largest funder of SOCIETY FOR INHERITED METABOLIC DISORDERS?
- MARIN COMMUNITY FOUNDATION is the largest funder on record, with $1,546,000 in grants. The full list of funders is on this page.
- How can an organization like SOCIETY FOR INHERITED METABOLIC DISORDERS find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Oregon. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Society for Inherited Metabolic Disorders →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 1 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing