Illinois · Nonprofit
NATIONAL SOCIETY OF GENETIC COUNSELORS
NATIONAL SOCIETY OF GENETIC COUNSELORS (Illinois) receives grants from 1 organization whose IRS filings report $1,500,000 to it, the largest being THE ENGELBERG FOUNDATION ($1,500,000). 0 of them have funded it in more than one year.
- Revenue FY2024
- $5.2M
- Funders on record
- 1
- Grants received
- $1.5M
- Net assets
- $4.7M
What National Society of Genetic Counselors does
Mission
The National Society of Genetic Counselors advances the various roles of genetic counselors in health care by fostering education, research, and public policy to ensure the availability of quality genetic services.
As stated on its FY2024 Form 990.
Programs
Annual meetings, online education, and other educational seminars educating attendees on updates and advancements in the genetic counseling field.
Publications and website: nsgc produces the journal of genetic counseling and its newsletter, perspectives in genetic counseling. The nsgc website provides educational and networking resources for members.
Awards and fellowships: primarily the jane engelberg memorial fellowship, which provides recipients with a research project grant. Other awards are professional achievement honoraria.
The 3 programs described on its FY2024 Form 990, listed largest first by expense.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2018 to 2019, from $4.5M to $5.3M (+17%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
8% of NATIONAL SOCIETY OF GENETIC COUNSELORS’s revenue is contributions — more earned-revenue than three-quarters of its peers (63% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 4 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Meghan Carey
Executive director
As listed on its FY2024 Form 990.
Who funds it, year by year
Grant support over time, funder by funder — shade shows the grant size each year.
From the IRS filings of NATIONAL SOCIETY OF GENETIC COUNSELORS’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
NATIONAL SOCIETY OF GENETIC COUNSELORS draws 100% of its grant income from funders outside Illinois, across 1 state in all.
Funder states come from each funder’s own filing. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
NATIONAL SOCIETY OF GENETIC COUNSELORS is better cushioned than half of the 5,127 arts & culture nonprofits its size.
this organization peer median middle 50% of peers· 5,127 arts & culture nonprofits $1M–$10M, FY2024
Organizations like NATIONAL SOCIETY OF GENETIC COUNSELORS
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Illinois
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Governance
Footprint & structure
Part of a family of 1 related entity
- Genetic Counseling Foundation · exempt
Screen this organization
A dated, signed PDF of the compliance screen for NATIONAL SOCIETY OF GENETIC COUNSELORS: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds NATIONAL SOCIETY OF GENETIC COUNSELORS?
- NATIONAL SOCIETY OF GENETIC COUNSELORS (Illinois) receives grants from 1 organization whose IRS filings report $1,500,000 to it, the largest being THE ENGELBERG FOUNDATION ($1,500,000). 0 of them have funded it in more than one year.
- How many funders does NATIONAL SOCIETY OF GENETIC COUNSELORS have?
- IRS filings report 1 organization giving $1,500,000 in grants to NATIONAL SOCIETY OF GENETIC COUNSELORS.
- Who is the largest funder of NATIONAL SOCIETY OF GENETIC COUNSELORS?
- THE ENGELBERG FOUNDATION is the largest funder on record, with $1,500,000 in grants. The full list of funders is on this page.
- How can an organization like NATIONAL SOCIETY OF GENETIC COUNSELORS find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Illinois. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds National Society of Genetic Counselors →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 1 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing