California · Nonprofit
Rare Genomics Institute Inc
Rare Genomics Institute Inc (California) receives grants from 9 organizations whose IRS filings report $131,700 to it, the largest being J GURWIN FOUNDATION INC ($50,000). 3 of them have funded it in more than one year.
- Revenue FY2018
- $55k
- Funders on record
- 9
- Grants received
- $132k
- Net assets
- $70k
What Rare Genomics Institute Inc does
Mission
Support undiagnosed and rare disease patients and famil
As stated on its FY2018 Form 990-EZ.
Program
Patient advocacy team once a family applies to rgi for assistance with genome testing they are assigned a patient advocate who will work with them throughout the entire process this includes identifying the rgi site an rgi site consists of a research facility that is able to perform dna sequencing and a clinician andor scientist that can interpret the data from sequencing that best suits the needs of the patient and providing support to the patient and family all the way through sequencing and results
The first program described on its most recent Form 990-EZ.
Who funds it, year by year
2017 → 2022: the base narrowed from 3 funders to 1 funder, grant income fell $26k → $99.
3 of 9 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 29% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of Rare Genomics Institute Inc’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
Rare Genomics Institute Inc leans on a few funders — its largest provides 38% of grant income and the top three 74%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
37% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund Rare Genomics Institute Inc.
Largest funder’s share by year: 2017 58% · 2019 62% · 2020 86% · 2021 95% · 2022 100% — growing more concentrated.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
0% of Rare Genomics Institute Inc's funders are still giving 3 years after their first grant; 33% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2022, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
Rare Genomics Institute Inc draws 90% of its grant income from funders outside California, across 4 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $39k arriving through sponsors registered in 3 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
Rare Genomics Institute Inc receives grants from 9 organizations whose IRS filings report $132k to it.
this organization peer median middle 50% of peers· 6,029 health nonprofits under $100k, FY2018
Organizations like Rare Genomics Institute Inc
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In California
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Public support
98%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Screen this organization
A dated, signed PDF of the compliance screen for Rare Genomics Institute Inc: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds Rare Genomics Institute Inc?
- Rare Genomics Institute Inc (California) receives grants from 9 organizations whose IRS filings report $131,700 to it, the largest being J GURWIN FOUNDATION INC ($50,000). 3 of them have funded it in more than one year.
- How many funders does Rare Genomics Institute Inc have?
- IRS filings report 9 organizations giving $131,700 in grants to Rare Genomics Institute Inc, 3 of which have funded it in more than one year.
- Who is the largest funder of Rare Genomics Institute Inc?
- J GURWIN FOUNDATION INC is the largest funder on record, with $50,000 in grants. The full list of funders is on this page.
- How can an organization like Rare Genomics Institute Inc find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in California. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Rare Genomics Institute →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2018 (financials across 2018–2018), and the filings of 9 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing