Utah · Nonprofit
NGLY1 Foundation
NGLY1 Foundation (Utah) receives grants from 3 organizations whose IRS filings report $5,951 to it, the largest being THE SINHA-BOUTELLE FOUNDATION ($5,000). 1 of them have funded it in more than one year.
- Revenue FY2019
- $52k
- Funders on record
- 3
- Grants received
- $6k
- Net assets
- $20k
What NGLY1 Foundation does
Mission
The mission of the NGLY1 Foundation is to eliminate the challenges of N-glycanase Deficiency through research, awareness and support.
As stated on its FY2019 Form 990-EZ.
Program
In 2019, NGLY1 Foundation conducted research into NGLY1 Deficiency
The first program described on its most recent Form 990-EZ.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2017 to 2018, from $52k to $9k (−83%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 1 of the last 3 reported years ran a deficit.
Who funds it, year by year
2020 → 2023: the base narrowed from 3 funders to 1 funder, grant income fell $6k → $23.
1 of 3 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 6% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of NGLY1 Foundation’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
NGLY1 Foundation leans on a few funders — its largest provides 84% of grant income and the top three 100%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
Largest funder’s share by year: 2020 86% · 2021 100% · 2022 100% · 2023 100% — growing more concentrated.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
NGLY1 Foundation draws 100% of its grant income from funders outside Utah, across 2 states in all.
Funder states come from each funder’s own filing. $351 arriving through sponsors registered in 1 state is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Organizations like NGLY1 Foundation
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Utah
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Screen this organization
A dated, signed PDF of the compliance screen for NGLY1 Foundation: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds NGLY1 Foundation?
- NGLY1 Foundation (Utah) receives grants from 3 organizations whose IRS filings report $5,951 to it, the largest being THE SINHA-BOUTELLE FOUNDATION ($5,000). 1 of them have funded it in more than one year.
- How many funders does NGLY1 Foundation have?
- IRS filings report 3 organizations giving $5,951 in grants to NGLY1 Foundation, 1 of which have funded it in more than one year.
- Who is the largest funder of NGLY1 Foundation?
- THE SINHA-BOUTELLE FOUNDATION is the largest funder on record, with $5,000 in grants. The full list of funders is on this page.
- How can an organization like NGLY1 Foundation find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Utah. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds NGLY1 →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2019 (financials across 2017–2019), and the filings of 3 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing