Pennsylvania · Nonprofit
NATIONAL DISEASE RESEARCH INTERCHANGE
NATIONAL DISEASE RESEARCH INTERCHANGE (Pennsylvania) receives grants from 5 organizations whose IRS filings report $2,698,523 to it, the largest being CYSTIC FIBROSIS FOUNDATION ($2,038,548). 4 of them have funded it in more than one year.
- Revenue FY2025
- $13M
- Funders on record
- 5
- Grants received
- $2.7M
- Net assets
- $2.3M
What National Disease Research Interchange does
Mission
The mission of ndri is to provide human biospecimens worldwide to advance biomedical/bioscience research and development and education in the life sciences.
As stated on its FY2025 Form 990.
Programs
Human tissue and resource for research: ndri received a federal award for the human tissue and organ resource for the procurement and distribution of normal and diseased human organs and tissues to advance biomedical science.
$6,916,626 spent$832,829 earned by the program71% of program spendingPartner program: coordinates various human organ and tissue procurement programs with the pharmaceutical and biotechnology industries to accelerate research and development. Several of these programs have led to the development of treatments for medical conditions such as lung disease, diabetes, and cancer, to name only a few. Other partner programs have led to the creation of research tools for use in numerous toxicology and drug discovery platforms.
$901,436 spent$2,328,145 earned by the program9% of program spendingResearch collaborations with foundation and patient advocacy groups (pag): ndri maintains collaborations with a variety of different foundation and patient advocacy groups focused on the advancement of research in each of their respective areas of interest. These collaborations bring together patients, pags, foundations, ndri and the pharmaceutical industry to help advance r&d utilizing critical human biospecimens gifted by patients/donors.
$1,916,636 spent$1,271,950 earned by the program20% of program spending
The 3 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $9,734,698.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2018 to 2019, from $3.8M to $6.1M (+60%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2017 31% · 2018 29% · 2019 27% · 2020 31% · 2021 41% · 2022 43% · 2023 51% · 2024 59% · 2025 65%. Grants only. Government contracts and fees sit inside program revenue.
65% of NATIONAL DISEASE RESEARCH INTERCHANGE’s revenue is contributions — more reliant on donations than three-quarters of its peers (7% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 5 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
William Leinweber
President & CEO
Board chair
Mary Jc Hendrix
Chair of the board
As listed on its FY2025 Form 990.
Who funds it, year by year
2017 → 2023: the base held at 2 funders, grant income fell $385k → $19k.
1 of 5 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 0% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of NATIONAL DISEASE RESEARCH INTERCHANGE’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
NATIONAL DISEASE RESEARCH INTERCHANGE leans on a few funders — its largest provides 76% of grant income and the top three 98%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
100% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund NATIONAL DISEASE RESEARCH INTERCHANGE.
Largest funder’s share by year: 2017 83% · 2018 74% · 2019 67% · 2020 70% · 2021 86% · 2022 64% · 2023 100% — growing more concentrated.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
NATIONAL DISEASE RESEARCH INTERCHANGE draws 100% of its grant income from funders outside Pennsylvania, across 3 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $42 arriving through sponsors registered in 1 state is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
NATIONAL DISEASE RESEARCH INTERCHANGE has grown faster than half of the 2,843 health nonprofits its size.
this organization peer median middle 50% of peers· 2,843 health nonprofits $10M–$100M, FY2025
Government funding NATIONAL DISEASE RESEARCH INTERCHANGE receives
Grants and contracts to this organization from federal (USASpending) and state checkbooks, reconciled to its EIN. $49.5M on record — $49.5M federal, $1k state.
- Department of Health and Human Services$45.6M
- Department of Veterans Affairs$3.9M
- Laboratory Services$1k
Federal grants vs contracts are distinguished; state line items keep their reported category. Matched by name + geography (the BMF), so coverage is partial and precision-first.
Organizations like NATIONAL DISEASE RESEARCH INTERCHANGE
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Pennsylvania
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
75% of spending goes to programs.
Governance
Public support
99%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for NATIONAL DISEASE RESEARCH INTERCHANGE: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds NATIONAL DISEASE RESEARCH INTERCHANGE?
- NATIONAL DISEASE RESEARCH INTERCHANGE (Pennsylvania) receives grants from 5 organizations whose IRS filings report $2,698,523 to it, the largest being CYSTIC FIBROSIS FOUNDATION ($2,038,548). 4 of them have funded it in more than one year.
- How many funders does NATIONAL DISEASE RESEARCH INTERCHANGE have?
- IRS filings report 5 organizations giving $2,698,523 in grants to NATIONAL DISEASE RESEARCH INTERCHANGE, 4 of which have funded it in more than one year.
- Who is the largest funder of NATIONAL DISEASE RESEARCH INTERCHANGE?
- CYSTIC FIBROSIS FOUNDATION is the largest funder on record, with $2,038,548 in grants. The full list of funders is on this page.
- How can an organization like NATIONAL DISEASE RESEARCH INTERCHANGE find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Pennsylvania. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds National Disease Research Interchange →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 5 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing