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Massachusetts · Public charity

Fshd Society

Find treatments and a cure for facioscapulohumeral muscular dystrophy (fshd) while empowering our families.

$1.1M
Granted FY2022
4
Itemized grants FY2022
4
Organizations funded FY2022
0%
First-time grantees FY2022
Read the full brief
Itemized, FY2022
$414k
The rest is grants the schedule does not break out
Median grant, FY2022
$120,000
Largest grant, FY2022
$143,000
Organizations funded a year
4 to 11
FY2017 to FY2022
States reached, FY2022
4
Total assets, FY2022
$5.6M

How open it is to new grantees

In FY2022, 0% of the organizations Fshd Society funded were first-time grantees, receiving 0% of its grant dollars.

New vs renewed · share of each year

In FY2022, 100% of grant dollars renewed an existing relationship; $0 went to new ones.

50%100%’18’19’20’21’22
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’18’19’20’21’22
EducationHealthOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.
The numbers by year
Fiscal yearOrganizations fundedTo those organizationsFirst-time grantees
FY20224$414k0%
FY20218$1.1M25%
FY20206$535k17%
FY20198$805k13%
FY20186$452k50%
FY201711$950kn/a
100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2022.

Health$4.7M

Where its grants go

Grant dollars by states, across the years we hold.

Which US states its grants reach

WA
MN
NY
MA
NV
OH
PA
CT
UT
CO
MO
MD
KS

Top grantees

Largest recipients by total granted, FY2017 to FY2022, and the share of each one’s budget the grants supplied at peak.

GranteeTotal grantedYearsShare of their budget
University of Kansas Medical Center Research Institute$1,081,25450%
Nationwide Childrens Hospital Inc$444,4104n/a
Children's Research Institute$443,63740%
Board of Regents Nevada System of Higher Education$309,7682n/a
University of Minnesota$283,4983n/a
Regents of the University of Colorado$268,5372n/a
Johns Hopkins University$237,69620%
Trustees of Boston University$216,54020%
Children's Hospital Corporation$200,86020%
St Louis University$189,00020%
Show all 18 grantees
All grantees of Fshd Society by total granted
GranteeTotal grantedYearsShare of their budget
University of Kansas Medical Center Research Institute$1,081,25450%
Nationwide Childrens Hospital Inc$444,4104n/a
Children's Research Institute$443,63740%
Board of Regents Nevada System of Higher Education$309,7682n/a
University of Minnesota$283,4983n/a
Regents of the University of Colorado$268,5372n/a
Johns Hopkins University$237,69620%
Trustees of Boston University$216,54020%
Children's Hospital Corporation$200,86020%
St Louis University$189,00020%
University of Maryland College Park$172,3002n/a
New York University$125,00010%
National Disease Research Interchange$64,70211%
Fred Hutchinson Cancer Research Center$53,52010%
University of Utah$49,6211n/a
University of Rochester$49,01550%
Ohio State University Foundation$21,79530%
Boston Children's Hospital$2,5001n/a

Where it is load-bearing

Each grantee by its size and the share of its budget Fshd Society supplied at peak.

25%50%75%100%$100Mgrantee revenue →↑ funder's share of their budgetUniversity of Kansas Medical Center Research Institute: $1,081,254 over 5y, 0.2% of budgetChildren's Research Institute: $443,637 over 4y, 0.3% of budgetJohns Hopkins University: $237,696 over 2y, 0.0% of budgetTrustees of Boston University: $216,540 over 2y, 0.0% of budgetChildren's Hospital Corporation: $200,860 over 2y, 0.0% of budgetSt Louis University: $189,000 over 2y, 0.0% of budgetNew York University: $125,000 over 1y, 0.0% of budgetNational Disease Research Interchange: $64,702 over 1y, 0.8% of budgetFred Hutchinson Cancer Research Center: $53,520 over 1y, 0.0% of budgetUniversity of Rochester: $49,015 over 5y, 0.0% of budgetOhio State University Foundation: $21,795 over 3y, 0.0% of budget

Tap a dot to name the grantee.

How this is measured
Share of budget is the funder’s grant in a year over the grantee’s total revenue that year, at its highest across the years we hold; revenue is from all sources. Only grantees confirmed against their own filings, whose grants do not exceed their revenue, are plotted: the largest 11.

Compare Fshd Society with peer funders

Warm introductions · Powered by PlinthPlus

How do I get to Fshd Society?

Find your warmest path to Fshd Society through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

About Fshd Society

How much does Fshd Society give?
Fshd Society reported 4 itemized grants totaling $413,600, out of $1,062,750 in total grant expense reported on the return in its FY2022 IRS filing. It funded between 4 and 11 organizations a year over FY2017 to FY2022.
What does Fshd Society fund?
By grant dollars over FY2017 to FY2022, its largest causes are Health (100%).
Who are Fshd Society's largest grantees?
By total granted over FY2017 to FY2022: University of Kansas Medical Center Research Institute ($1.1M), Nationwide Childrens Hospital Inc ($444k), Children's Research Institute ($444k).
Does Fshd Society fund new organizations?
In FY2022, 0% of the organizations it funded were first-time grantees.
Where is Fshd Society based?
Fshd Society is based in MA.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 19 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2022, released 2022. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Possibly out of date. A more recent filing (FY2024) is on record and reports $278k of grant expense, but none of it to a named recipient. On a Form 990 that can mean grants abroad, filed by region only (Schedule F), grants under $5,000, which are not itemized, or a schedule referenced as an attachment the e-file does not carry. The figures above are therefore from FY2022, the most recent year this funder named its grantees.

Source object · view filing

Play a game based on Fshd Society’s filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home