· Public charity
Fshd Society
Find treatments and a cure for facioscapulohumeral muscular dystrophy (fshd) while empowering our families.
What you funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year — across FY2017–2022.
Where the money goes
Your grants by size, and where they go.
The 4 grants below total $413,600 — the rows itemised in this filing. The $1,062,750 headline is the total grant expense reported on the return, so the remaining $649,150 is giving the schedule does not break out: grants under the $5,000 itemisation floor, grants to individuals, and grants reported on other schedules. Every figure below describes the itemised rows only.
| Recipient | Amount |
|---|---|
| JOHNS HOPKINS UNIVERSITY | $143,000 |
| UNIVERSITY OF KANSAS MEDICAL CENTER | $120,000 |
| UNIVERSITY OF MINNESOTA | $83,500 |
| ST LOUIS UNIVERSITY | $67,100 |
Do your dollars go where the need is?
Each grant placed by the hardship in its grantee’s ZIP, then read against the area’s typical level.
Dollar for dollar, your grants (FY17–22) land where the poverty rate runs at 12%, against an area that typically sits at 10%. 63% of your dollars go to grantees based in above-average-need neighborhoods. Most of your grants land in higher-need ZIPs.
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty linein the grantee’s ZIP, averaged from the tracts in that ZIP; grantee ZIP can differ from where services are delivered.
Which US states your grants reach
Grants abroad, by region — $138k on the FY2024 return
Schedule F, as filed: 2 regions. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.
Stated purpose: PHARMACOLOGICAL PREVENTION DUX4-MEDIATED MYONECROSIS IN VITRO & IN VIVO
Stated purpose: TO SUPPORT THE PROMOTION OF CLINICAL TRIAL READINESS IN BRAZIL
US grants placed by each grantee’s ZIP, which can differ from where services are actually delivered. Need from public data — U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA — shown as context about the area, never attributed to your giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
Who you back again
Which organizations you funded more than once, and which you funded a single time. Each grantee is matched to its own filings.
And the relationships you keep tend to grow: grantees you re-up on have seen median revenue of +69% since the first grant, against +47% for the ones you funded once.
13 repeat relationships — 4 still active in FY2022, 9 since wound down.
How the two cohorts compare
Organizations
Total granted
Median revenue growth · since first grant
Still filing today
New vs renewed · share of each year
In FY2022, 100% of grant dollars renewed an existing relationship; $0 went to new ones.
Where new relationships form · theme of each grantee’s first grant
First-time = a grantee’s first year in your filing window; renewed = funded in an earlier year too. As a portfolio matures the renewed share naturally climbs — once funded, an org stays “renewable” — so the signal is the years that buck it (a new-grantee intake wave). The earliest year is left-censored: relationships that predate the data read as “new.” Theme is the grantee’s IRS cause.
Backed again, and grew
- UOUNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE5× · 2018–2022 · $1.1M · revenue +102%
- CRCHILDREN'S RESEARCH INSTITUTE4× · 2017–2021 · $444k · revenue +90%
JOHNS HOPKINS UNIVERSITY2× · 2017–2022 · $238k · revenue +64%
Funded once
- NYNew York Universitygraduatedone grant, 2017 · $125k · revenue +76%
- NDNATIONAL DISEASE RESEARCH INTERCHANGEgraduatedone grant, 2017 · $65k · revenue +47%
- FHFRED HUTCHINSON CANCER RESEARCH CENTERone grant, 2017 · $54k · revenue +27%
Repeat = funded in two or more distinct years; growth and survival are read from each grantee’s own subsequent IRS filings.
The map has a center of gravity: the average direction from the rest of the sector toward the organizations the foundation funds — the shape of its giving. Scoring every nonprofit along that direction surfaces the ones that look most like the portfolio. These are the closest matchesthat aren’t grantees — a resemblance in what they say they do, not a recommendation.
Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o
As a leading research university with a distinctive commitment to undergraduate education, Rice University aspires to path breaking research, unsurpassed teaching, and contributions to the betterment of our world. It seeks to fulfill this…
The washington university is a co-educational, nondenominational university with a long and distinguished history of teaching, research and (cont'd on schedule o)
Drexel university fulfills its founder's vision of preparing each new generation of students for productive professional and civic lives while also focusing its collective expertise on solving society's greatest problems. drexel is an…
The central mission of the university of southern california is the development of human beings and society as a whole through the cultivation and enrichment of the human mind and spirit. the principal means by which our mission is…
See Form 990, Part I, Line 1, Description of Organization Mission.
We educate the next generation of leaders to improve the health of our society.
Dartmouth College educates the most promising students and prepares them for a lifetime of learning and of responsible leadership, through a faculty dedicated to teaching and the creation of knowledge.
Education, research, medical services and other public services.
The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.
For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…
The rockefeller university (the university) is a world renowned center for research and graduate education in the biomedical sciences, chemistry, bioinformatics, and physics. the university's 73 laboratories conduct both clinical and basic…
For reference, the grantee most central to the portfolio’s shape is Trustees of Boston University and the most unlike its peers is National Disease Research Interchange. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
12 grantees tracked through their own filings, 2017–2025.
Each one resolved to its own IRS returns and tracked year by year — your grant beside their revenue from every source. Association, dated; never a causal claim.
Counted here: distinct organizations you funded across 2017–2025, not grant rows in a single year — so this will not match the grant count on the cover. 12 of the 19 grantees resolved in that span have returns of their own we could reconcile; the rest are funded organizations whose filings we could not track year by year.
Where your money sits — by cause, then by grantee
Each org by its size and your share of it — top-left is where you’re load-bearing
Go grantee by grantee — a decade per org, and how each moved after you funded them
A decade per grantee — revenue shaded, your grants as bars, all rows on one timeline.
- Who funds UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE ↗
- Who funds Yale University ↗
- Who funds CHILDREN'S RESEARCH INSTITUTE ↗
- Who funds JOHNS HOPKINS UNIVERSITY ↗
- Who funds TRUSTEES OF BOSTON UNIVERSITY ↗
- Who funds Children's Hospital Corporation ↗
- Who funds ST LOUIS UNIVERSITY ↗
- Who funds New York University ↗
- Who funds NATIONAL DISEASE RESEARCH INTERCHANGE ↗
- Who funds FRED HUTCHINSON CANCER RESEARCH CENTER ↗
- Who funds UNIVERSITY OF ROCHESTER ↗
- Who funds OHIO STATE UNIVERSITY FOUNDATION ↗
Government reliance of your grantees
Every dot is one organization Fshd Society funds. Left–right is the share of its income from government; up–down is the share from you. Bigger dots raise more. Filter to federal, a single department, or state — and drag the year to watch it move.
- Trustees of Boston University — 12% of income from government
- Johns Hopkins University — 12% of income from government
- Yale University — 12% of income from government
- Children's Hospital Corporation — 10% of income from government
Government income is each org’s traced federal awards (USASpending — grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that your grant caused the public funding. Coverage is precision-first — a floor, not a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12–24 months.
Warm introductions · Powered by PlinthPlus
How do I get to Fshd Society?
Find your warmest path to Fshd Society through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.
Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.