New York · Nonprofit
HUNTINGTON STUDY GROUP LTD
HUNTINGTON STUDY GROUP LTD (New York) receives grants from 5 organizations whose IRS filings report $462,788 to it, the largest being THE GRIFFIN FOUNDATION INC ($305,100). 4 of them have funded it in more than one year.
- Revenue FY2024
- $5.0M
- Funders on record
- 5
- Grants received
- $463k
- Net assets
- $6.8M
What Huntington Study Group Ltd does
Mission
The huntington study group (hsg) is dedicated to the mission: to seek treatments that make a difference to those affected by huntington disease. Description continued on schedule o.specifically, the hsg focuses on the conception, conduct, analyses, scientific reporting, and communication of clinical research, including treatment and observational trials, aimed at relieving the burdens and slowing the progression of hd. The hsg 1) identifies and prioritizes initiatives that can have an impact on patient care; 2) advances knowledge about the cause, disease progression and treatment of hd and related disorders; and 3) collaborates with government, foundations, industry, and the hd community to effectively plan, execute and disseminate research and new knowledge related to hd.
As stated on its FY2024 Form 990.
Program
The hsg is a network of clinicians, research investigators, scientists and huntington disease (hd) experts, largely from academic/research institutions worldwide working together with a variety of sponsors (government, industry, foundation) to develop treatments that make a difference for hd patients and families. We partner with hd care and advocacy groups in order to fulfill our mission most effectively.description continued on schedule o.the hsg has carried out cooperative therapeutic research since 1993, beginning with the development of the unified huntington's disease rating scale (uhdrs) and longitudinal database. The hsg, through clinical trials, has brought the only two fda-approved hd treatments (tetrabenazine and dutetrabenazine) to market. We continue to serve our constituents through clinical research studies. The hsg has partnered with pharmaceutical companies, private foundations, the national institutes of health (nih), and the fda orphan drug products divisions in developing and conducting trials and observational studies.the hsg is committed to 1) advance knowledge about the cause, disease progression and treatment of hd and related disorders; 2) development,…
$2,955,272 spent$4,694,539 earned by the program100% of program spending
The program described on its FY2024 Form 990. Program spending in total: $2,955,272.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $7.7M to $10M (+34%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2021 1%. Grants only. Government contracts and fees sit inside program revenue.
7% of HUNTINGTON STUDY GROUP LTD’s revenue is contributions — about as donation-reliant as the typical peer (51% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Board chair
Peter Schmidt Phd
Chair
As listed on its FY2024 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 1 funder to 3 funders, grant income fell $250k → $46k.
2 of 5 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 7% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of HUNTINGTON STUDY GROUP LTD’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
HUNTINGTON STUDY GROUP LTD leans on a few funders — its largest provides 66% of grant income and the top three 93%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
Largest funder’s share by year: 2017 100% · 2018 100% · 2019 100% · 2020 100% · 2021 100% · 2022 60% · 2023 56% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
HUNTINGTON STUDY GROUP LTD draws 100% of its grant income from funders outside New York, across 3 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $32k arriving through sponsors registered in 2 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
HUNTINGTON STUDY GROUP LTD's revenue fell 38% between 2017 and 2024.
this organization peer median middle 50% of peers· 8,121 health nonprofits $1M–$10M, FY2024
Organizations like HUNTINGTON STUDY GROUP LTD
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In New York
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
60% of spending goes to programs.
Governance
Public support
97%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Part of a family of 1 related entity
- Hsg Clinical Research Inc · corp_trust
Screen this organization
A dated, signed PDF of the compliance screen for HUNTINGTON STUDY GROUP LTD: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds HUNTINGTON STUDY GROUP LTD?
- HUNTINGTON STUDY GROUP LTD (New York) receives grants from 5 organizations whose IRS filings report $462,788 to it, the largest being THE GRIFFIN FOUNDATION INC ($305,100). 4 of them have funded it in more than one year.
- How many funders does HUNTINGTON STUDY GROUP LTD have?
- IRS filings report 5 organizations giving $462,788 in grants to HUNTINGTON STUDY GROUP LTD, 4 of which have funded it in more than one year.
- Who is the largest funder of HUNTINGTON STUDY GROUP LTD?
- THE GRIFFIN FOUNDATION INC is the largest funder on record, with $305,100 in grants. The full list of funders is on this page.
- How can an organization like HUNTINGTON STUDY GROUP LTD find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in New York. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 5 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing