Arizona · Nonprofit
CRUSH RETT SYNDROME
CRUSH RETT SYNDROME (Arizona) receives grants from 2 organizations whose IRS filings report $365,493 to it, the largest being AMERICAN ONLINE GIVING FOUNDATION INC ($364,234). 2 of them have funded it in more than one year, and 100% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $199k
- Funders on record
- 2
- Grants received
- $365k
- Net assets
- $33k
What Crush Rett Syndrome does
Mission
Raise Awareness/Fund Finding a Cure for Rett Syndrome
As stated on its FY2025 Form 990-EZ.
Programs
Crush Rett Syndromes mission is to raise awareness and funding to ultimately find a cure for rett syndrome. In 2025, we successfully raised funds through our fundraising events and our social media awareness efforts.
$175,000 spentof which $175,000 as grants100% of program spendingWe continued to keep control of our operating expenses by having effective fundraisers that require minimal upfront costs and risks.
As a result, we were able to use more funds to support exciting research on ways to cure rett syndrome. We provided 175,000 to important genetic research again this year.
The 3 programs described on its FY2025 Form 990-EZ. Program spending in total: $175,000.
The organization over time
Each line starts at 100 in 2018, so what you read is the shape rather than the size: 150 means half as much again as 2018, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $30k to $6k (−81%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
100% of CRUSH RETT SYNDROME’s revenue is contributions — more reliant on donations than three-quarters of its peers (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 8 reported years ran a deficit.
reserve
Who funds it, year by year
2020 → 2023: the base held at 2 funders, grant income rose $60k → $75k.
2 of 2 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 100% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of CRUSH RETT SYNDROME’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
CRUSH RETT SYNDROME leans on a few funders — its largest provides 100% of grant income and the top three 100%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
100% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund CRUSH RETT SYNDROME.
Largest funder’s share by year: 2020 100% · 2021 100% · 2022 100% · 2023 100% — broadly stable.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
100% of CRUSH RETT SYNDROME's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Too little is directly attributable to place on a map.
Funder states come from each funder’s own filing. $365k arriving through sponsors registered in 2 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
CRUSH RETT SYNDROME runs a healthier operating margin than half of the 7,883 health nonprofits its size.
this organization peer median middle 50% of peers· 7,883 health nonprofits $100k–$1M, FY2025
Organizations like CRUSH RETT SYNDROME
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Arizona
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Public support
87%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Screen this organization
A dated, signed PDF of the compliance screen for CRUSH RETT SYNDROME: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds CRUSH RETT SYNDROME?
- CRUSH RETT SYNDROME (Arizona) receives grants from 2 organizations whose IRS filings report $365,493 to it, the largest being AMERICAN ONLINE GIVING FOUNDATION INC ($364,234). 2 of them have funded it in more than one year, and 100% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does CRUSH RETT SYNDROME have?
- IRS filings report 2 organizations giving $365,493 in grants to CRUSH RETT SYNDROME, 2 of which have funded it in more than one year.
- Who is the largest funder of CRUSH RETT SYNDROME?
- AMERICAN ONLINE GIVING FOUNDATION INC is the largest funder on record, with $364,234 in grants. The full list of funders is on this page.
- How can an organization like CRUSH RETT SYNDROME find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Arizona. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2018–2025), and the filings of 2 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing