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Vasculitis Foundation at a glanceMostly funded, not a grantmaker: see who funds it →

· Public charity

Vasculitis Foundation

Building upon the collective strength of the vasculitis community, the VASCULITIS FOUNDATION supports, inspires and empowers individuals with vasculitis and their families through a wide range of education, research, clinical, and awareness initiatives.

$316k
Granted FY2020
6
Grants FY2020
6
States reached
$101k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead

Read this first · the figures below need context

66% of Vasculitis Foundation’s FY2025 grant dollars went to Trustees Of The University Of Pennsylvania, not to grantees.

Its money now reaches organizations through that sponsor, which does not report who recommended each grant. FY2025 names 3 organizations directly, so a portfolio cannot be read from it. Everything below is therefore FY2020, the last year Vasculitis Foundation named its own grantees at scale: 5 organizations, $263k. It is dated, not current.

Organizations named directly on the return

7
’17
5
’18
4
’19
5
’20
1
’21
2
’22
2
’23
0
’24
3
’25

Amber years are those where most dollars went to a sponsor.

01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.

Health$1.9MEducation$146k
02FY2020 · 6 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 6 grants below total $263,074, the rows itemized in this filing. The $315,541 headline is the total grant expense on the return; the other $52,467 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.

By grant size · FY2020

  • $10k–50k3 grants · $37k
  • $50k–250k3 grants · $226k
$50,000
Median grant
6
States reached
$6.1M
Total assets
Largest grants
RecipientAmount
AMERICAN COLLEGE OF RHEUMATOLOGY$100,609
JOHNS HOPKINS UNIVERSITY$75,000
HOSPITAL FOR SPECIAL SURGERY$50,000
YALE UNIVERSITY$12,500
UNIVERSITY OF PITTSBURGH$12,500
DUKE UNIVERSITY$12,465
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY17–25) land where the poverty rate runs at 18%, against an area that typically sits at 11%. 86% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 11%BOSTON UNIVERSITY: $12k → 8%MAYO CLINIC: $25k → 9%UNIVERSITY OF PITTSBURGH: $13k → 11%TRUSTEES OF THE UNIVERSITY OF PA: $450k → 22%LA JOLLA INSTITUTE FOR ALLERGY & IM: $25k → 11%HOSPITAL FOR SPECIAL SURGERY: $50k → 17%BAYLOR COLLEGE OF MEDICINE: $13k → 16%GEORGETOWN UNIVERSITY: $50k → 14%UNIVERSITY OF SOUTH FLORIDA: $46k → 13%YALE UNIVERSITY: $25k → 12%DUKE UNIVERSITY: $25k → 11%AMERICAN COLLEGE OF RHEUMATOLOGY: $101k → 14%UNIVERSITY OF COLORADO: $25k → 10%OHIO STATE UNIVERSITY: $23k → 15%NORTHWESTERN MEMORIAL FOUNDATION: $45k → 14%JOHNS HOPKINS UNIVERSITY: $75k → 19%BOSTON UNIVERSITY: $12k → 8%MAYO CLINIC: $25k → 9%TRUSTEES OF THE UNIVERSITY OF PA: $360k → 22%LA JOLLA INSTITUTE FOR ALLERGY & IM: $25k → 11%HOSTPITAL FOR SPECIAL SURGERY: $13k → 17%BAYLOR COLLEGE OF MEDICINE: $13k → 16%GEORGETOWN UNIVERSITY: $50k → 14%YALE UNIVERSITY: $19k → 12%DUKE UNIVERSITY: $12k → 11%UNIVERSITY OF COLORADO DENVER: $13k → 10%OHIO STATE UNIVERSITY: $11k → 15%NORTHWESTERN MEDICAL FACULTY FOUNDA: $35k → 14%MAYO CLINIC: $25k → 9%TRUSTEES OF THE UNIVERSITY OF PA: $80k → 22%YALE UNIVERSITY: $13k → 12%DUKE UNIVERSITY: $12k → 11%UNIVERSITY OF COLORADO DENVER: $13k → 10%OHIO STATE UNIVERSITY: $11k → 15%NORTHWESTERN MEDICINE GALTER PAV: $25k → 14%MAYO CLINIC: $20k → 9%TRUSTEES OF THE UNIVERSITY OF PA: $70k → 22%YALE UNIVERSITY: $13k → 12%TRUSTEES OF THE UNIVERSITY OF PA: $13k → 22%TRUSTEES OF THE UNIVERSITY OF PA: $13k → 22%TRUSTEES OF THE UNIVERSITY OF PA: $10k → 22%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

MN
IL
NY
MA
OH
PA
CT
CA
CO
MD
NC
DC
GA
TX
FL

Grants abroad, by region: $68k on the FY2025 return

Schedule F, as filed: 2 regions. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.

Europe (including Iceland and Greenland)$38k · 55% · 2 grants

Stated purpose: VASCULITIS RESEARCH

North America (Canada and Mexico)$31k · 45% · 2 grants

Stated purpose: FELLOWSHIP GRANT · VASCULITIS RESEARCH

How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

68%of every dollar goes to organizations it has funded before.
$576k · 11 repeat orgs$267k to everyone else

11 repeat relationships: 3 still active in FY2020, 8 since wound down; 3 grantees were first funded in FY2020 (too recent to call). Read against FY2020, the last year this funder named its own grantees directly; its giving has since run through a sponsor, which reports no donor behind each grant.

How the two cohorts compare

Re-uppedFunded once

Organizations

11
1

Total granted

$576k
$45k

Median revenue growth · since first grant

+51%
+146%

Still filing today

73%
100%

New vs renewed · share of each year

In FY2025, 100% of grant dollars renewed an existing relationship; $0 went to new ones.

50%100%’17’18’19’20’21’22’23’25
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’22’23’25
EducationHealthOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • GEORGETOWN UNIVERSITY
    2× · 2018–2019 · $100k · revenue +44%
  • THE CLEVELAND CLINIC FOUNDATION
    2× · 2017–2025 · $85k · revenue +62%
  • TH
    The Hospital for Special Surgery Fund Inc
    2× · 2017–2020 · $63k · revenue +102%

Funded once

  • NM
    Northwestern Memorial HealthCaregraduated
    one grant, 2017 · $45k · revenue +146%
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
New York University

Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.

Education
2
Massachusetts Institute of Technology

The mission of mit is to advance knowledge and educate students in science, technology, and other areas of scholarship that will best serve the nation and the world in the 21st century.

Education
3
Cornell University

Education, research, medical services and other public services.

Education
4
Case Western Reserve University

Case Western Reserve University is an independent, research-oriented university with broadly based strengths in health, including medicine, nursing and dentistry; in engineering; in the arts and sciences; and in law, management and social…

Education
5
The Trustees of Princeton University

Research, education and general - princeton university is a private not-for-profit, non-sectarian institution of higher learning with approximately 5,700 undergraduate and 3,300 graduate students. 2,500 students graduated in the 2024-2025…

Education
6
University of Southern California

The central mission of the university of southern california is the development of human beings and society as a whole through the cultivation and enrichment of the human mind and spirit. the principal means by which our mission is…

Education
7
University of New Haven

The University of New Haven is a student-centered comprehensive university with an emphasis on excellence in liberal arts and professional education. Our mission is to prepare our students to lead purposeful and fulfilling lives in a…

Education
8
Lehigh University

The university's goal in the coming decade is to advance learning through the integration of teaching, research and service to others. the core of this goal is to prepare graduates to engage with the world and lead lives of meaning. to do…

Education
9
Stony Brook Urology University Faculty Practice Corporation

Provide clinical instruction to and supervision of medical school students, interns and residents and, incident thereto, rendering professional services.

Health
10
President and Fellows of Harvard College

Undergraduate, graduate, and professional education and research across a broad array of academic domains.

Education
11
The Board of Trustees of the Leland Stanford Junior University

Stanford university is one of a select group of american universities that have achieved eminence in both undergraduate and graduate education and research - cont'd sch o.

Education
12
Seton Hall University

Seton hall university is a catholic institution of higher education

—
How this is measured
The grantee most central to the portfolio’s shape is Georgetown University; the most unlike its peers is The Cleveland Clinic Foundation. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

14 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 14 of the 18 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
0
Early backer (in before they grew)
14/14
Grantees still filing
14/14
Grew since first funded

Where the money sits, by cause and then by grantee

TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $995,240 · EducationTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIAGEORGETOWN UNIVERSITY: $100,000 · EducationGEORGETOWN UNIVERSITYYale University: $93,750 · EducationYale UniversityJOHNS HOPKINS UNIVERSITY: $75,000 · EducationDUKE UNIVERSITY: $49,924 · Education+3 more: $94,873 · Education+3 moreAMERICAN COLLEGE OF RHEUMATOLOGY: $100,609 · OtherAMERICAN COLLEGE O…NORTHWESTERN MEMORIAL HEALTHCARE: $60,000 · OtherNORTHWESTERN MEMOR…LA JOLLA INSTITUTE FOR IMMUNOLOGY: $50,000 · OtherLA JOLLA INSTITUTE…REGENTS OF THE UNIVERSITY OF COLORADO: $50,000 · OtherREGENTS OF THE UNI…THE OHIO STATE UNIVERSITY: $45,000 · OtherTHE OHIO STATE UNI…TRUSTEES OF BOSTON UNIVERSITY: $24,992 · OtherTRUSTEES OF BOSTON…MAYO CLINIC: $95,000 · HealthMAYO CLINICTHE CLEVELAND CLINIC FOUNDATION: $85,130 · HealthTHE CLEVELAND CL…The Hospital for Special Surgery Fund Inc: $62,500 · HealthThe Hospital for…Northwestern Memorial HealthCare: $45,000 · HealthNorthwestern Mem…
Education$1,408,787Other$330,601Health$287,630

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$100Mgrantee revenue →↑ funder's share of their budgetTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $995,240 over 6y, 0.0% of budgetGEORGETOWN UNIVERSITY: $100,000 over 2y, 0.0% of budgetMAYO CLINIC: $95,000 over 4y, 0.0% of budgetYale University: $93,750 over 5y, 0.0% of budgetTHE CLEVELAND CLINIC FOUNDATION: $85,130 over 2y, 0.0% of budgetJOHNS HOPKINS UNIVERSITY: $75,000 over 1y, 0.0% of budgetThe Hospital for Special Surgery Fund Inc: $62,500 over 2y, 0.2% of budgetLA JOLLA INSTITUTE FOR IMMUNOLOGY: $50,000 over 2y, 0.0% of budgetDUKE UNIVERSITY: $49,924 over 3y, 0.0% of budgetUniversity of South Florida Foundation Inc: $45,933 over 1y, 0.0% of budgetNorthwestern Memorial HealthCare: $45,000 over 1y, 0.0% of budgetBaylor College of Medicine: $25,000 over 2y, 0.0% of budgetTRUSTEES OF BOSTON UNIVERSITY: $24,992 over 2y, 0.0% of budgetUNIVERSITY OF PITTSBURGH: $23,940 over 2y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

How much its grantees rely on government

Each dot is one organization Vasculitis Foundation funds: left to right is the share of its income from government, bottom to top the share from Vasculitis Foundation. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 10%0%1%3%5%funder's share of their income ↑0%23%45%68%90%share of the org’s income from government →median 12%
  • Trustees of Boston University: 12% of income from government
  • Johns Hopkins University: 12% of income from government
  • Yale University: 12% of income from government
no gov moneyreceives it· size = income
1get no government money at all
1report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
⤢ axis zoomed · 0–90%
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 18 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2020, released 2020. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

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More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home