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Slc6a1 Connect at a glanceMostly funded, not a grantmaker: see who funds it →

· Public charity

Slc6a1 Connect

SLC6A1 CONNECT is a patient advocacy group dedicated to improving the lives of children and families affected by the slc6a1 mutation.

$266k
Granted FY2024still arriving
7
Grants FY2024still arriving
7
States reached
$107k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2022 to 2024.

Health$1.8M
02FY2024 · 7 grants

Where the money goes

Grants by size, and the largest recipients.

By grant size · FY2024

  • $10k–50k5 grants · $107k
  • $50k–250k2 grants · $157k
$26,384
Median grant
7
States reached
$2.4M
Total assets
Largest grants
RecipientAmount
UNIVERSITY OF COLORADO$106,740
NATIONWIDE CHILDREN'S HOSPITAL$50,255
AMERICAN SOCIETY OF GENE & CELL THERAPY$33,334
UNIVERSITY OF TEXAS SOUTHWESTERN$26,384
COMBINEDBRIAN INC$25,417
UNIVERSITY OF ALABAMA$11,935
THE EPILEPSY FOUNDATION$10,215
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY22–24) land where the poverty rate runs at 14%, against an area that typically sits at 10%. 92% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 10%UNIVERSITY OF MONTANA: $55k → 9%GLADSTONE INSTITUTES: $25k → 10%WEILL CORNELL MEDICAL CENTER: $70k → 17%UNIVERSITY OF TEXAS SOUTHWESTERN: $27k → 14%UNIVERSITY OF ALABAMA: $33k → 17%AMERICAN SOCIETY OF GENE & CELL THERAPY: $33k → 5%COMBINEDBRIAN INC: $25k → 4%VANDERBILT UNIVERSITY: $35k → 14%UNIVERSITY OF COLORADO: $107k → 10%NATIONWIDE CHILDREN'S HOSPITAL: $639k → 15%THE EPILEPSY FOUNDATION: $10k → 11%UNIVERSITY OF MONTANA: $27k → 9%GLADSTONE INSTITUTES: $25k → 10%WEILL CORNELL MEDICAL CENTER: $33k → 17%UNIVERSITY OF TEXAS SOUTHWESTERN: $26k → 14%UNIVERSITY OF ALABAMA: $12k → 17%CHILDREN'S HOSPITAL OF COLORADO: $72k → 10%NATIONWIDE CHILDREN'S HOSPITAL: $393k → 15%UNIVERSITY OF TEXAS SOUTHWESTERN: $22k → 14%CHILDREN'S HOSPITAL OF COLORADO: $30k → 10%NATIONWIDE CHILDREN'S HOSPITAL: $50k → 15%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

MT
WI
NY
OH
CA
CO
MD
TN
AL
TX
How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

94%of every dollar goes to organizations it has funded before.
$1.6M · 7 repeat orgs$104k to everyone else

7 repeat relationships: 3 still active in FY2024, 4 since wound down; 3 grantees were first funded in FY2024 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

7
1

Total granted

$1.6M
$35k

Median revenue growth · since first grant

+5%
+24%

Still filing today

86%
100%

New vs renewed · share of each year

In FY2024, 74% of grant dollars renewed an existing relationship; $69k went to new ones.

50%100%’22’23’24
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’22’23’24
HealthEducationOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • NC
    Nationwide Childrens Hospital Group Return
    3× · 2022–2024 · $1.2M · revenue +11%
  • WC
    WEILL CORNELL IMAGING AT NEWYORK-PRESBYTERIAN
    2× · 2022–2023 · $103k · revenue +38%
  • TU
    THE UNIVERSITY OF MONTANA FOUNDATION
    2× · 2022–2023 · $81k · revenue +3%

Funded once

  • Vanderbilt University
    one grant, 2023 · $35k · revenue +24%
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
Neurology Associates of Stony Brook University Faculty Practice Corp

Provide clinical instruction to and supervision of medical school students, interns and residents and, incident thereto, rendering professional services.

Health
2
Stony Brook Internists University Faculty Practice Corporation

Provide clinical instruction to and supervision of medical school students, interns and residents and, incident thereto, rendering professional services.

Health
3
University Associates in Obstetrics and Gynecology University Faculty Pract ice Corporation

Provide clinical instruction to and supervision of medical school students, interns and residents and, incident thereto, rendering professional services.

Health
4
Stony Brook Urology University Faculty Practice Corporation

Provide clinical instruction to and supervision of medical school students, interns and residents and, incident thereto, rendering professional services.

Health
5
University of Maryland Neurosurgeryassociates Pa

Under the medical service plan of the university of maryland school of medicine, medical services are rendered by the members of the faculty on behalf of the school of medicine in connection with their duties to provide clinical…

Education
6
University of Maryland Anesthesiology Associates Pa

Under the medical service plan of the university of maryland school of medicine, medical services are rendered by the members of the faculty on behalf of the school of medicine in connection with their duties to provide clinical…

—
7
University of Maryland Neurology Associates Pa

Under the medical service plan of the university of maryland school of medicine, medical services are rendered by the members of the faculty on behalf of the school of medicine in connection with their duties to provide clinical…

—
8
Stony Brook Ophthalmology University Faculty Practice Corporation

Provide clinical instruction to and supervision of medical school students, interns and residents and, incident thereto, rendering professional services.

Health
9
Stony Brook Surgical Associates University Faculty Practice Corporation

Provide clinical instruction to and supervision of medical school students, interns and residents and, incident thereto, rendering professional services.

Health
10
Stony Brook Childrens Services University Faculty Practice Corporation

Provide clinical instruction to and supervision of medical school students, interns and residents and, incident thereto, rendering professional services.

Health
11
University of Maryland Oncology Associates Pa

Under the medical service plan of the university of maryland school of medicine, medical services are rendered by the members of the faculty on behalf of the school of medicine in connection with their duties to provide clinical…

Health
12
University of Maryland Physicians Pa

Under the medical service plan of the university of maryland school of medicine, medical services are rendered by the members of the faculty on behalf of the school of medicine in connection with their duties to provide clinical…

—
How this is measured
The grantee most central to the portfolio’s shape is Ut Southwestern Health Systems; the most unlike its peers is Nationwide Childrens Hospital Group Return. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

10 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 10 of the 11 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
0
Early backer (in before they grew)
10/10
Grantees still filing
6/10
Grew since first funded

Where the money sits, by cause and then by grantee

Nationwide Childrens Hospital Group Return: $1,189,787 · OtherNationwide Childrens Hospital Group ReturnBOARD OF THE UNIVERSITY OF ALABAMA: $45,269 · OtherWEILL CORNELL IMAGING AT NEWYORK-PRESBYTERIAN: $103,333 · HealthWEILL CORNELL IMAGING AT …Children's Hospital Colorado Foundation: $102,040 · HealthChildren's Hospital Color…UT SOUTHWESTERN HEALTH SYSTEMS: $76,064 · HealthUT SOUTHWESTERN HEALTH SY…THE J DAVID GLADSTONE INSTITUTES: $50,000 · HealthTHE J DAVID GLADSTONE INS…THE AMERICAN SOCIETY OF GENE & CELL THERAPY: $33,334 · HealthTHE AMERICAN SOCIETY OF G…COMBINEDBRAIN INC: $25,417 · HealthCOMBINEDBRAIN INC+1 more: $10,215 · HealthTHE UNIVERSITY OF MONTANA FOUNDATION: $81,024 · EducationVanderbilt University: $35,000 · Education
Other$1,235,056Health$400,403Education$116,024

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$10M$100Mgrantee revenue →↑ funder's share of their budgetNationwide Childrens Hospital Group Return: $1,189,787 over 3y, 0.0% of budgetWEILL CORNELL IMAGING AT NEWYORK-PRESBYTERIAN: $103,333 over 2y, 0.0% of budgetChildren's Hospital Colorado Foundation: $102,040 over 2y, 0.1% of budgetTHE UNIVERSITY OF MONTANA FOUNDATION: $81,024 over 2y, 0.2% of budgetUT SOUTHWESTERN HEALTH SYSTEMS: $76,064 over 3y, 1.3% of budgetTHE J DAVID GLADSTONE INSTITUTES: $50,000 over 2y, 0.0% of budgetVanderbilt University: $35,000 over 1y, 0.0% of budgetTHE AMERICAN SOCIETY OF GENE & CELL THERAPY: $33,334 over 1y, 0.2% of budgetCOMBINEDBRAIN INC: $25,417 over 1y, 2.1% of budgetEPILEPSY FOUNDATION OF AMERICA: $10,215 over 1y, 0.1% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

How much its grantees rely on government

Each dot is one organization Slc6a1 Connect funds: left to right is the share of its income from government, bottom to top the share from Slc6a1 Connect. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 00%0%1%3%5%funder's share of their income ↑0%10%20%30%40%share of the org’s income from government →median 22%
  • Epilepsy Foundation of America: 22% of income from government
no gov moneyreceives it· size = income
0get no government money at all
2report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
⤢ axis zoomed · 0–40%
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 11 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

Play a game based on Slc6a1 Connect’s filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home