Skip to content

· Public charity

Relapsing Polychondritis Awareness and Support Foundation Inc

The rp foundation's mission is to: (a) increase awareness about relapsing polychondritis; (b) provide support (primarily through the use of the internet, social media, and patient advocacy programs) for those who are affected by relapsing polychondritis, support research to advance a cure for relapsing polychondritis; (c) promote quality…

$153k
Granted FY2026still arriving
1
Grants FY2026still arriving
1
States reached
$153k
Largest
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2021 to 2025.

Health$435kScience & Tech$388k
02FY2026 · 1 grant

Where the money goes

Grants by size, and the largest recipients.

$153,138
Median grant
1
States reached
$745k
Total assets
Largest grants
RecipientAmount
TRUSTEES OF THE UNIVERSITY OF PA$153,138
02Its field
03the grantee network

1 grantees tracked through their own filings, 2017–2026.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2026, not grant rows in a single year, so this will not match the grant count on the cover. 1 of the 7 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
0
Early backer (in before they grew)
1/1
Grantees still filing
1/1
Grew since first funded

Where the money sits, by cause and then by grantee

NYU LANGONE HEALTH: $350,000 · OtherNYU LANGONE HEALTHTRUSTEES OF THE UNIVERSITY OF PA: $213,457 · OtherTRUSTEES OF THE UNIVERSITY OF PAUNIVERSITY OF TEXAS: $207,400 · OtherUNIVERSITY OF TEXASTHE UNIVERSITY OF PENNSYLVANIA: $120,000 · OtherTHE UNIVERSITY OF PENNSYLVANIAALLEGHENY HEALTH NETWORK OFFICE: $65,000 · OtherALLEGHENY HEALTH NETWORK OFFICE+1 more: $10,000 · OtherFriends of Patients at the NIH Inc: $10,000 · Health
Other$965,857Health$10,000

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%grantee revenue →↑ funder's share of their budgetFriends of Patients at the NIH Inc: $10,000 over 1y, 2.7% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

  • Who funds Friends of Patients at the NIH Inc ↗

How much its grantees rely on government

Each dot is one organization Relapsing Polychondritis Awareness and Support Foundation Inc funds: left to right is the share of its income from government, bottom to top the share from Relapsing Polychondritis Awareness and Support Foundation Inc. Bigger dots raise more.

2024
’20’21’22’23’24
no gov · 00%0%1%3%5%funder's share of their income ↑0%10%20%30%40%share of the org’s income from government →median 26%
  • Friends of Patients at the Nih Inc: 26% of income from government
no gov moneyreceives it· size = income
0get no government money at all
0rely on government for over half their income
⤢ axis zoomed · 0–40%
typical government reliance, FY20–24
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.
03Through Plinth

Warm introductions · Powered by PlinthPlus

How do I get to Relapsing Polychondritis Awareness and Support Foundation Inc?

Find your warmest path to Relapsing Polychondritis Awareness and Support Foundation Inc through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 7 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2026, released 2026. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

Play a game based on Relapsing Polychondritis Awareness and Support’s filings →

More from the funding graph