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Project Als Inc at a glanceMostly funded, not a grantmaker: see who funds it →

· Public charity

Project Als Inc

To recruit the world's best research scientists and clinicians to work together toward an understanding of and the first effective treatments for als (amyotrophic lateral sclerosis) also known as lou gehrig's disease.

$1.1M
Granted FY2025still arriving
2
Grants FY2025still arriving
2
States reached
$912k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
05Through PlinthRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.

Health$22M
02FY2025 · 2 grants

Where the money goes

Grants by size, and the largest recipients.

By grant size · FY2025

  • $50k–250k1 grant · $231k
  • $250k+1 grant · $912k
$912,468
Median grant
2
States reached
$1.5M
Total assets
Largest grants
RecipientAmount
COLUMBIA UNIVERSITY$912,468
UNIVERSITY OF CALIFORNIA SAN FRANCISCO$231,228
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY17–25) land where the poverty rate runs at 15%, against an area that typically sits at 10%. 88% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 10%HARVARD COLLEGE: $385k → 8%BOSTON CHILDREN'S HOSPITAL: $215k → 16%UNIVERSITY OF PENNSYLVANIA: $80k → 22%UNIVERSITY OF CALIFORNIA SAN FRANCISCO: $400k → 10%SALK INSTITUTE FOR BIOLOGICAL STUDIES: $240k → 11%WEILL MEDICAL COLLEGE OF CORNELL: $300k → 17%RUTGERS MEDICAL SCHOOL: $221k → 8%PROSETIN DRUG DEVELOPMENT: $1.5M → 5%JOHNS HOPKINS UNIVERSITY: $116k → 19%BOSTON CHILDREN'S HOSPITAL: $175k → 16%UNIVERSITY OF CALIFORNIA AT SAN FRANCISCO: $400k → 10%SALK INSTITUTE: $102k → 11%NY STRUCTURAL BIOLOGY CENTER: $525k → 17%PROSETIN DRUG DEVELOPMENT: $447k → 5%UC SAN FRANCISCO: $10k → 19%MASSACHUSETTS GENERAL HOSPITAL: $524k → 16%SALK INSTITUTE: $98k → 11%NEW YORK UNIVERSITY: $211k → 17%NEUROLOGICAL CLINICAL RESEARCH INSTITUTE: $36k → 16%THE SALK INSTITUTE: $78k → 11%NEW YORK UNIVERSITY: $171k → 17%NEUROLOGICAL CLINICAL RESEARCH INSTITUTE: $34k → 16%UNIVERSITY OF CALIFORNIA SAN DIEGO: $152k → 11%NEW YORK UNIVERSITY: $106k → 17%UNIVERSITY OF CALIFORNIA SAN DIEGO: $136k → 11%WEILL MEDICAL COLLEGE: $253k → 17%WEILL CORNELL MEDICAL COLLEGE: $51k → 17%WEILL CORNELL MEDICAL COLLEGE: $30k → 17%NEW YORK UNIVERSITY: $70k → 17%COLUMBIA UNIVERSITY: $2.6M → 17%COLUMBIA UNIVERSITY: $2.3M → 17%COLUMBIA UNIVERSITY: $1.9M → 17%COLUMBIA UNIVERSITY: $1.5M → 17%COLUMBIA UNIVERSITY: $1.1M → 17%COLUMBIA UNIVERSITY: $1.1M → 17%COLUMBIA UNIVERSITY: $912k → 17%COLUMBIA UNIVERSITY: $718k → 17%COLUMBIA UNIVERSITY: $598k → 17%PROJENX: $254k → 17%MEMORIAL SLOAN KETTERING: $110k → 17%NEW YORK GENOME: $500k → 17%MEMORIAL SLOAN KETTERING: $109k → 17%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.
How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

92%of every dollar goes to organizations it has funded before.
$19M · 11 repeat orgs$1.6M to everyone else

Grantees it renews have grown median revenue +76% since the first grant, against -13% for those funded once.

11 repeat relationships: 2 still active in FY2025, 9 since wound down.

How the two cohorts compare

Re-uppedFunded once

Organizations

11
5

Total granted

$19M
$1.6M

Median revenue growth · since first grant

+76%
-13%

Still filing today

45%
60%

New vs renewed · share of each year

In FY2025, 100% of grant dollars renewed an existing relationship; $0 went to new ones.

50%100%’17’18’19’20’21’22’23’24’25
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’22’23’24’25
HealthEducationScience & TechOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • PA
    PROJECT ALS INC
    2× · 2021–2022 · $1.9M · revenue +26% · 57% of their budget
  • NY
    New York University
    4× · 2017–2022 · $558k · revenue +76%
  • CH
    Children's Hospital Corporation
    2× · 2017–2018 · $390k · revenue +91%

Funded once

  • NY
    NEW YORK STRUCTURAL BIOLOGY CENTER INC
    one grant, 2019 · $525k · revenue -24%
  • NY
    NEW YORK GENOME CENTER INC
    one grant, 2017 · $500k · revenue -13%
  • PI
    PROJENX INC
    one grant, 2024 · $254k
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
Albany College of Pharmacy and Health Sciences

We educate the next generation of leaders to improve the health of our society.

Education
2
The Johns Hopkins Hospital

For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…

Health
3
American Museum of Natural History

The museum's mission statement is: "to discover, interpret, and disseminate - through scientific research and education - knowledge about human cultures, the natural world, and the universe."

Arts & Culture
4
Fred Hutchinson Cancer Center

Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o

Health
5
Sanford Burnham Prebys Medical Discovery Institute

Sanford burnham prebys medical discovery institute's mission is to advance the biomedical sciences by cultivating the next generation of scientific leaders, providing meaningful opportunities for researchers of all backgrounds to learn,…

Health
6
University of Southern California

The central mission of the university of southern california is the development of human beings and society as a whole through the cultivation and enrichment of the human mind and spirit. the principal means by which our mission is…

Education
7
Institute for Advanced Study - Louis Bamberger & Mrs Felix Fuld Foundation

The institute for advanced study (the institute) is one of the world's leading centers for theoretical research and intellectual inquiry. see schedule o.

Science & Tech
8
Memorial Sloan-Kettering Cancer Center

Leadership in the prevention, treatment, and cure of cancer through excellence, vision and cost effectiveness in patient care, outreach programs, research, and education.

Health
9
Hugo W Moser Research Institute At Kennedy Krieger Inc

The hugo w. moser research institute at kennedy krieger, inc. (the "research institute") is an internationally recognized research facility finding answers to problems and injuries that affect a child's developing brain. researchers have…

Science & Tech
10
Howard Hughes Medical Institute

The mission of the institute has remained constant since its founding in 1953. as its restated articles of incorporation state the primary purpose and objective of the howard hughes medical institute shall be the promotion of human…

Health
11
William Marsh Rice University

As a leading research university with a distinctive commitment to undergraduate education, Rice University aspires to path breaking research, unsurpassed teaching, and contributions to the betterment of our world. It seeks to fulfill this…

Education
12
Drexel University

Drexel university fulfills its founder's vision of preparing each new generation of students for productive professional and civic lives while also focusing its collective expertise on solving society's greatest problems. drexel is an…

Education
How this is measured
The grantee most central to the portfolio’s shape is The Salk Institute for Biological Studies; the most unlike its peers is Children's Hospital Corporation. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

10 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 10 of the 18 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

1
Load-bearing (≥25% of a budget)
0
Early backer (in before they grew)
10/10
Grantees still filing
8/10
Grew since first funded

Where the money sits, by cause and then by grantee

COLUMBIA UNIVERSITY: $12,821,940 · OtherCOLUMBIA UNIVERSITYUNIVERSITY OF CALIFORNIA SAN FRANCISCO: $1,076,728 · OtherUNIVERSITY OF CALIFORNIA SAN FRANCISCOWeill Medical College of Cornell Univers: $635,020 · OtherMASS GENERAL BRIGHAM INCORPORATED: $594,128 · Other+4 more: $962,650 · Other+4 morePROJECT ALS INC: $1,939,784 · HealthPROJECT ALS INCNEW YORK GENOME CENTER INC: $500,000 · HealthNEW YORK GENOME …Children's Hospital Corporation: $390,000 · HealthChildren's Hospi…MEMORIAL SLOAN-KETTERING CANCER CENTER: $219,300 · HealthMEMORIAL SLOAN-K…New York University: $558,180 · EducationTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $479,535 · EducationPresident and Fellows of Harvard College: $384,976 · EducationJOHNS HOPKINS UNIVERSITY: $115,922 · EducationNEW YORK STRUCTURAL BIOLOGY CENTER INC: $525,000 · Science & TechThe Salk Institute for Biological Studies: $318,056 · Science & Tech
Other$16,090,466Health$3,049,084Education$1,538,613Science & Tech$843,056

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$10M$100Mgrantee revenue →↑ funder's share of their budgetPROJECT ALS INC: $1,939,784 over 2y, 57% of budgetNew York University: $558,180 over 4y, 0.0% of budgetNEW YORK STRUCTURAL BIOLOGY CENTER INC: $525,000 over 1y, 2.0% of budgetNEW YORK GENOME CENTER INC: $500,000 over 1y, 0.5% of budgetTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $479,535 over 2y, 0.0% of budgetChildren's Hospital Corporation: $390,000 over 2y, 0.0% of budgetPresident and Fellows of Harvard College: $384,976 over 1y, 0.0% of budgetThe Salk Institute for Biological Studies: $318,056 over 2y, 0.2% of budgetMEMORIAL SLOAN-KETTERING CANCER CENTER: $219,300 over 2y, 0.0% of budgetJOHNS HOPKINS UNIVERSITY: $115,922 over 1y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

  • Who funds PROJECT ALS INC ↗
  • Who funds New York University ↗
  • Who funds NEW YORK STRUCTURAL BIOLOGY CENTER INC ↗
  • Who funds NEW YORK GENOME CENTER INC ↗
  • Who funds TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA ↗
  • Who funds Children's Hospital Corporation ↗
  • Who funds President and Fellows of Harvard College ↗
  • Who funds The Salk Institute for Biological Studies ↗
  • Who funds MEMORIAL SLOAN-KETTERING CANCER CENTER ↗
  • Who funds JOHNS HOPKINS UNIVERSITY ↗

How much its grantees rely on government

Each dot is one organization Project Als Inc funds: left to right is the share of its income from government, bottom to top the share from Project Als Inc. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 00%4%15%34%60%funder's share of their income ↑0%23%45%68%90%share of the org’s income from government →median 10%
  • Johns Hopkins University: 12% of income from government
  • Children's Hospital Corporation: 10% of income from government
  • President and Fellows of Harvard College: 7% of income from government
no gov moneyreceives it· size = income
0get no government money at all
0rely on government for over half their income
⤢ axis zoomed · 0–90%
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.
05Through Plinth

Warm introductions · Powered by PlinthPlus

How do I get to Project Als Inc?

Find your warmest path to Project Als Inc through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 18 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

Play a game based on Project Als’ filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home