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Pitt Hopkins Research Foundation

PITT HOPKINS RESEARCH FOUNDATION's mission is to support research dedicated to finding a treatment and an eventual cure of pitt hopkins syndrome and other similar disorders.

$204k
Granted FY2025still arriving
4
Grants FY2025still arriving
3
States reached
$106k
Largest
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.

Health$2.2MScience & Tech$83k
02FY2025 · 4 grants

Where the money goes

Grants by size, and the largest recipients.

By grant size · FY2025

  • Under $10k1 grant · $7k
  • $10k–50k1 grant · $18k
  • $50k–250k2 grants · $180k
$73,985
Median grant
3
States reached
$1.3M
Total assets
Largest grants
RecipientAmount
UT SOUTHWESTERN MEDICAL CENTER$106,000
UNIVERSITY OF CALIFORNIA - DAVIS$73,985
ARIZONA STATE UNIVERSITY$17,543
ASU FOUNDATION FOR A NEW AMERICAN UNIVERSITY$6,793
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY17–25) land where the poverty rate runs at 14%, against an area that typically sits at 12%. 61% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 12%UNIVERSITY OF ARIZONA: $12k → 15%UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL: $37k → 11%THE UNIVERSITY OF PENNSYLVANIA: $3k → 22%IXCELL BIOTECH: $29k → 11%LUNDQUIST INSTITUTE OF BIOMEDICAL INNOVATION LACOVINO: $79k → 14%UNIVERSITY OF CALIFORNIA - DAVIS: $74k → 16%UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER: $41k → 14%VANDERBILT UNIVERSITY: $17k → 14%ICAGEN CORP: $35k → 11%UNIVERSITY OF COLORADO DENVER: $17k → 12%NATIONWIDE CHILDREN'S HOSPITAL: $131k → 15%VIRGINIA COMMONWEALTH UNIVERSITY: $50k → 22%THE LIEBER INSTITUTE: $87k → 19%THE JACKSON LABORATORY: $27k → 11%THE REGENTS OF THE UNIVERSITY OF CALIFORNIA: $150k → 11%LUNDQUIST INSITUTE OF BIOMEDICAL INNOVATIONLACOVINO: $38k → 14%UNIVERSITY OF CALIFORNIA - DAVIS: $62k → 16%NATIONWIDE CHILDREN'S HOSPITAL: $66k → 15%THE JACKSON LABORATORY: $19k → 11%UNIVERSITY OF CALIFORNIA - SAN DIEGO: $125k → 11%LOS ANGELES BIOMED RESEARCH INSTITUTE AT HARBOR UCLA MEDICAL CENTER: $25k → 14%UNIVERSITY OF CALIFORNIA: $57k → 16%NATIONWIDE CHILDREN'S HOSPITAL: $66k → 15%THE REGENTS OF THE UNIVERSITY OF CALIFORNIA: $100k → 11%LOS ANGELES BIOMED RESEARCH INSTITUTE AT HARBOR UCLA MEDICAL CENTER: $25k → 14%UNIVERSITY OF CALIFORNIA - DAVIS: $51k → 16%UNIVERSITY OF CALIFORNIA SAN DIEGO FOUNDATION: $65k → 11%UNIVERSITY OF CALIFORNIA: $35k → 16%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

ME
MA
OH
PA
CA
CO
VA
MD
AZ
TN
NC
TX
How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

77%of every dollar goes to organizations it has funded before.
$1.7M · 9 repeat orgs$521k to everyone else

Grantees it renews have grown median revenue +74% since the first grant, against +61% for those funded once.

9 repeat relationships: 3 still active in FY2025, 6 since wound down; 1 grantees were first funded in FY2025 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

9
9

Total granted

$1.7M
$503k

Median revenue growth · since first grant

+74%
+61%

Still filing today

56%
33%

New vs renewed · share of each year

In FY2025, 91% of grant dollars renewed an existing relationship; $18k went to new ones.

50%100%’17’18’19’20’21’22’23’24’25
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’22’23’24’25
EducationHealthOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • ARIZONA STATE UNIVERSITY FOUNDATION FOR A NEW AMERICAN UNIVERSITY
    3× · 2019–2025 · $403k · revenue +84%
  • Vanderbilt University
    2× · 2017–2020 · $80k · revenue +74%
  • TJ
    THE JACKSON LABORATORY
    2× · 2017–2018 · $46k · revenue +74%

Funded once

  • RO
    REGENTS OF THE UNIVERSITY OF CALIFORNIA AT SAN DIEGO
    one grant, 2023 · $125k
  • TL
    THE LIEBER INSTITUTE INCgraduated
    one grant, 2018 · $87k · revenue +61%
  • UO
    UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
    one grant, 2017 · $83k
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
The Trustees of Princeton University

Research, education and general - princeton university is a private not-for-profit, non-sectarian institution of higher learning with approximately 5,700 undergraduate and 3,300 graduate students. 2,500 students graduated in the 2024-2025…

Education
2
California Institute for Immunology and Immunotherapy

To harness the power of the human immune system and advanced computing technologies to create and translate scientific discoveries into next generation vaccines and therapies for prevention, control and cure of chronic diseases, enabling…

Health
3
Massachusetts Institute of Technology

The mission of mit is to advance knowledge and educate students in science, technology, and other areas of scholarship that will best serve the nation and the world in the 21st century.

Education
4
Van Andel Research Institute

Medical research organization van andel research institute is an independent biomedical research organization committed to improving the health and enhancing the lives of current and future generations.

Health
5
The Rockefeller University

The rockefeller university (the university) is a world renowned center for research and graduate education in the biomedical sciences, chemistry, bioinformatics, and physics. the university's 73 laboratories conduct both clinical and basic…

Education
6
New York University

Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.

Education
7
University of Virginia Investment Management Company

The university of virginia investment management company (uvimco) is organized to invest funds on behalf of the rector and visitors of the university of virginia (the university or uva) and university-associated organizations (uaos).

Education
8
The Board of Trustees of the Leland Stanford Junior University

Stanford university is one of a select group of american universities that have achieved eminence in both undergraduate and graduate education and research - cont'd sch o.

Education
9
The Scripps Research Institute

The scripps research institute ("tsri") performs high impact basic biomedical research, improves the human condition by fostering translation of its discoveries into useful products and engages in the highest quality graduate scientific…

Health
10
President and Fellows of Harvard College

Undergraduate, graduate, and professional education and research across a broad array of academic domains.

Education
11
Stony Brook Internists University Faculty Practice Corporation

Provide clinical instruction to and supervision of medical school students, interns and residents and, incident thereto, rendering professional services.

Health
12
Lehigh University

The university's goal in the coming decade is to advance learning through the integration of teaching, research and service to others. the core of this goal is to prepare graduates to engage with the world and lead lives of meaning. to do…

Education
How this is measured
The grantee most central to the portfolio’s shape is Uc San Diego Foundation; the most unlike its peers is Trustees of the University of Pennsylvania. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

9 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 9 of the 20 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

1
Load-bearing (≥25% of a budget)
0
Early backer (in before they grew)
9/9
Grantees still filing
7/9
Grew since first funded

Where the money sits, by cause and then by grantee

UNIVERSITY OF CALIFORNIA DAVIS: $278,714 · OtherUNIVERSITY OF CALIFORNIA DAVISREGENTS OF THE UNIVERSITY OF CALIFORNIA: $250,000 · OtherREGENTS OF THE UNIVERSITY OF CALIFORNIATHE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE: $146,970 · OtherTHE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTEREGENTS OF THE UNIVERSITY OF CALIFORNIA AT SAN DIEGO: $125,000 · OtherREGENTS OF THE UNIVERSITY OF CALIFORNIA AT SAN DIEGOUNIVERSITY OF MASSACHUSETTS: $112,071 · OtherUNIVERSITY OF MASSACHUSETTSUNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL: $83,000 · OtherUNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL+5 more: $110,384 · Other+5 moreARIZONA STATE UNIVERSITY FOUNDATION FOR A NEW AMERICAN UNIVERSITY: $403,000 · EducationARIZONA STATE UNIVERSITY FOUND…Vanderbilt University: $80,353 · EducationVanderbilt UniversityUC SAN DIEGO FOUNDATION: $65,000 · EducationUC SAN DIEGO FOUNDATIONVIRGINIA COMMONWEALTH UNIVERSITY FOUNDAT: $50,000 · EducationVIRGINIA COMMONWEALTH UNIVERSI…+1 more: $3,000 · EducationNationwide Children's Hospital Inc: $262,197 · HealthNationwide Children's Hospit…LUNDQUIST INSTITUTE FOR BIOMEDICAL INNOVATION AT HARBOR-UCLA MEDICAL CENTER: $166,628 · HealthLUNDQUIST INSTITUTE FOR BIOM…THE LIEBER INSTITUTE INC: $87,140 · HealthTHE LIEBER INSTITUTE INCTHE JACKSON LABORATORY: $46,095 · HealthTHE JACKSON LABORATORY
Other$1,106,139Education$601,353Health$562,060

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$100Mgrantee revenue →↑ funder's share of their budgetARIZONA STATE UNIVERSITY FOUNDATION FOR A NEW AMERICAN UNIVERSITY: $403,000 over 3y, 0.1% of budgetNationwide Children's Hospital Inc: $262,197 over 3y, 36% of budgetLUNDQUIST INSTITUTE FOR BIOMEDICAL INNOVATION AT HARBOR-UCLA MEDICAL CENTER: $166,628 over 4y, 0.1% of budgetTHE LIEBER INSTITUTE INC: $87,140 over 1y, 0.4% of budgetVanderbilt University: $80,353 over 2y, 0.0% of budgetUC SAN DIEGO FOUNDATION: $65,000 over 1y, 0.0% of budgetVIRGINIA COMMONWEALTH UNIVERSITY FOUNDAT: $50,000 over 1y, 0.4% of budgetTHE JACKSON LABORATORY: $46,095 over 2y, 0.0% of budgetTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $3,000 over 1y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

  • Who funds ARIZONA STATE UNIVERSITY FOUNDATION FOR A NEW AMERICAN UNIVERSITY ↗
  • Who funds Nationwide Children's Hospital Inc ↗
  • Who funds LUNDQUIST INSTITUTE FOR BIOMEDICAL INNOVATION AT HARBOR-UCLA MEDICAL CENTER ↗
  • Who funds THE LIEBER INSTITUTE INC ↗
  • Who funds Vanderbilt University ↗
  • Who funds UC SAN DIEGO FOUNDATION ↗
  • Who funds VIRGINIA COMMONWEALTH UNIVERSITY FOUNDAT ↗
  • Who funds THE JACKSON LABORATORY ↗
  • Who funds TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA ↗

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.

Vanguard Charitable Endowment ProgramPA8.8× affinity4 shared granteesties to 1 of 1Hover any node to trace its alignments.Compare side by side →

Open a dossier: Vanguard Charitable Endowment Program · Donor Advised Charitable Giving Inc

How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

How much its grantees rely on government

Each dot is one organization Pitt Hopkins Research Foundation funds: left to right is the share of its income from government, bottom to top the share from Pitt Hopkins Research Foundation. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 00%3%10%23%40%funder's share of their income ↑0%25%50%75%100%share of the org’s income from government →median 31%
  • The Lieber Institute Inc: 31% of income from government
no gov moneyreceives it· size = income
0get no government money at all
0rely on government for over half their income
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.
05Through Plinth

Warm introductions · Powered by PlinthPlus

How do I get to Pitt Hopkins Research Foundation?

Find your warmest path to Pitt Hopkins Research Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 20 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

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