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North Carolina · Public charity

Pitt Hopkins Research Foundation

PITT HOPKINS RESEARCH FOUNDATION's mission is to support research dedicated to finding a treatment and an eventual cure of pitt hopkins syndrome and other similar disorders. The organization's mission is to also support the pitt hopkins community with resource recommendations, parental support and the latest medical information.

$204k
Granted FY2025(still arriving)
4
Grants FY2025
2
Organizations funded FY2024
0%
First-time grantees FY2024
Read the full brief
Median grant, FY2025
$73,985
Largest grant, FY2025
$106,000
Organizations funded a year
2 to 5
FY2018 to FY2024
States reached, FY2025
3
Total assets, FY2025
$1.3M

How open it is to new grantees

In FY2024, 0% of the organizations Pitt Hopkins Research Foundation funded were first-time grantees, receiving 0% of its grant dollars.

New vs renewed · share of each year

In FY2024, 100% of grant dollars renewed an existing relationship; $0 went to new ones.

50%100%’18’19’20’21’22’23’24
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’18’19’20’21’22’23’24
EducationHealthOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.
The numbers by year
Fiscal yearOrganizations fundedTo those organizationsFirst-time grantees
FY2025still arriving4$204k25%
FY20242$344k0%
FY20234$335k50%
FY20224$142k50%
FY20214$239k50%
FY20202$55k0%
FY20194$378k75%
FY20185$296k60%
100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.

Health$2.2MScience & Tech$83k

Where its grants go

Grant dollars by states, across the years we hold.

Which US states its grants reach

ME
MA
OH
PA
CA
CO
VA
MD
AZ
TN
NC
TX

Top grantees

Largest recipients by total granted, FY2017 to FY2025, and the share of each one’s budget the grants supplied at peak.

GranteeTotal grantedYearsShare of their budget
Arizona State University Foundation for a New American University$403,00030%
University of California Davis$278,7145n/a
Nationwide Children's Hospital Inc$262,197336%
Regents of the University of California$250,0002n/a
Lundquist Institute for Biomedical Innovation at Harbor-Ucla Medical Center$166,62840%
The University of Texas Southwestern Medical Cente$146,9702n/a
Regents of the University of California at San Diego$125,0001n/a
University of Massachusetts$112,0712n/a
The Lieber Institute Inc$87,14010%
University of North Carolina at Chapel Hill$83,0001n/a
Show all 18 grantees
All grantees of Pitt Hopkins Research Foundation by total granted
GranteeTotal grantedYearsShare of their budget
Arizona State University Foundation for a New American University$403,00030%
University of California Davis$278,7145n/a
Nationwide Children's Hospital Inc$262,197336%
Regents of the University of California$250,0002n/a
Lundquist Institute for Biomedical Innovation at Harbor-Ucla Medical Center$166,62840%
The University of Texas Southwestern Medical Cente$146,9702n/a
Regents of the University of California at San Diego$125,0001n/a
University of Massachusetts$112,0712n/a
The Lieber Institute Inc$87,14010%
University of North Carolina at Chapel Hill$83,0001n/a
Vanderbilt University$80,35320%
Uc San Diego Foundation$65,00010%
Virginia Commonwealth University Foundat$50,00010%
The Jackson Laboratory$46,09520%
iXcells Biotechnologies USA Inc$28,9151n/a
Arizona State University$17,5431n/a
Regents of the University of Colorado$16,6061n/a
University of Arizona$12,3201n/a

Plus 1 recipient with no EIN on record ($35k), not named here.

Where it is load-bearing

Pitt Hopkins Research Foundation supplied at least a quarter of the budget for 1 of its grantees at some point. The chart plots its 8 largest grantees; load-bearing ones sit top left.

25%50%75%100%$100Mgrantee revenue →↑ funder's share of their budgetArizona State University Foundation for a New American University: $403,000 over 3y, 0.1% of budgetNationwide Children's Hospital Inc: $262,197 over 3y, 36% of budgetLundquist Institute for Biomedical Innovation at Harbor-Ucla Medical Center: $166,628 over 4y, 0.1% of budgetThe Lieber Institute Inc: $87,140 over 1y, 0.4% of budgetVanderbilt University: $80,353 over 2y, 0.0% of budgetUc San Diego Foundation: $65,000 over 1y, 0.0% of budgetVirginia Commonwealth University Foundat: $50,000 over 1y, 0.4% of budgetThe Jackson Laboratory: $46,095 over 2y, 0.0% of budget

Tap a dot to name the grantee.

How this is measured
Share of budget is the funder’s grant in a year over the grantee’s total revenue that year, at its highest across the years we hold; revenue is from all sources. Only grantees confirmed against their own filings, whose grants do not exceed their revenue, are plotted: the largest 8.

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.

Vanguard Charitable Endowment ProgramPA8.8× affinity4 shared granteesties to 1 of 1Hover any node to trace its alignments.Compare side by side →

Open a dossier: Vanguard Charitable Endowment Program · Donor Advised Charitable Giving Inc

How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

Compare Pitt Hopkins Research Foundation with peer funders

Warm introductions · Powered by PlinthPlus

How do I get to Pitt Hopkins Research Foundation?

Find your warmest path to Pitt Hopkins Research Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

About Pitt Hopkins Research Foundation

How much does Pitt Hopkins Research Foundation give?
Pitt Hopkins Research Foundation reported 4 grants totaling $204,321 in its FY2025 IRS filing. It funded between 2 and 5 organizations a year over FY2018 to FY2024.
What does Pitt Hopkins Research Foundation fund?
By grant dollars over FY2017 to FY2025, its largest causes are Health (96%), Science & Tech (4%).
Who are Pitt Hopkins Research Foundation's largest grantees?
By total granted over FY2017 to FY2025: Arizona State University Foundation for a New American University ($403k), University of California Davis ($279k), Nationwide Children's Hospital Inc ($262k).
Does Pitt Hopkins Research Foundation fund new organizations?
In FY2024, 0% of the organizations it funded were first-time grantees.
Which funders back the same organizations as Pitt Hopkins Research Foundation?
Its strongest co-funders, measured against what their size predicts, include Vanguard Charitable Endowment Program, Donor Advised Charitable Giving Inc.
Where is Pitt Hopkins Research Foundation based?
Pitt Hopkins Research Foundation is based in NC.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 20 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

Play a game based on Pitt Hopkins Research’s filings →

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