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National Tuberous Sclerosis Association at a glanceMostly funded, not a grantmaker: see who funds it →

· Public charity

National Tuberous Sclerosis Association

To improve quality of life for everyone affected by tuberous sclerosis complex by catalyzing new treatments, driving research toward a cure and expanding access to lifelong support.

$1.0M
Granted FY2025still arriving
11
Grants FY2025still arriving
6
States reached
$150k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.

Health$3.5MScience & Tech$1.6MHuman Services$150kEducation$114k
02FY2025 · 11 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 11 grants below total $701,695, the rows itemized in this filing. The $1,040,281 headline is the total grant expense on the return; the other $338,586 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.

By grant size · FY2025

  • $10k–50k3 grants · $57k
  • $50k–250k8 grants · $644k
$56,250
Median grant
6
States reached
$18M
Total assets
Largest grants
RecipientAmount
NATIONAL ORGANIZATION FOR RARE DISORDERS$150,000
BOSTON CHILDREN'S HOSPITAL$100,579
EMORY UNIVERSITY$75,000
UNIVERSITY OF MASSACHUSETTS$75,000
NORTHWESTERN UNIVERSITY$75,000
BAYLOR COLLEGE OF MEDICINE$56,250
UNIVERSITY OF CALIFORNIA IRVINE$56,250
UNIVERSITY OF TEXAS DALLAS$56,250
CLEMSON UNIVERSITY$19,866
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA$18,750
CINCINNATI OF CHILDREN'S HOSPITAL$18,750
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Its human-services grants (FY19–21, $150k) land where the poverty rate runs at 14%, against an area that typically sits at 11%. 100% of those dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 11%NORTHWESTERN UNIVERSITY: $75k → 14%NORTHWESTERN UNIVERSITY: $56k → 14%NORTHWESTERN UNIVERSITY: $19k → 14%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

ME
WA
IL
MI
NY
MA
OH
CT
RI
CA
VA
MD
TN
SC
AL
GA
TX

Grants abroad, by region: $333k on the FY2025 return

Schedule F, as filed: 2 regions. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.

Europe (including Iceland and Greenland)$249k · 75% · 2 grants

Stated purpose: RESEARCH ON TUBEROUS SCLEROSIS COMPLEX

Sub-Saharan Africa$83k · 25% · 1 grant

Stated purpose: RESEARCH ON TUBEROUS SCLEROSIS COMPLEX

How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

97%of every dollar goes to organizations it has funded before.
$4.7M · 21 repeat orgs$160k to everyone else

Grantees it renews have grown median revenue +19% since the first grant, against +14% for those funded once.

21 repeat relationships: 11 still active in FY2025, 10 since wound down.

How the two cohorts compare

Re-uppedFunded once

Organizations

21
7

Total granted

$4.7M
$160k

Median revenue growth · since first grant

+19%
+14%

Still filing today

48%
14%

New vs renewed · share of each year

In FY2025, 100% of grant dollars renewed an existing relationship; $0 went to new ones.

50%100%’17’18’19’20’21’22’23’24’25
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’22’23’24’25
EducationHealthHuman ServicesRecreation & SportsOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • CH
    Children's Hospital Corporation
    8× · 2017–2025 · $936k · revenue +91%
  • CH
    CHILDREN'S HOSPITAL MEDICAL CENTER
    4× · 2019–2025 · $219k · revenue +37%
  • NU
    NORTHWESTERN UNIVERSITY SETTLEMENT ASSOCIATION
    3× · 2019–2021 · $150k · revenue +4%

Funded once

  • WS
    WAYNE STATE UNIVERSITY
    one grant, 2018 · $50k
  • WM
    Weill Medical College of Cornell Univers
    one grant, 2018 · $21k
  • NC
    NATIONWIDE CHILDRENS HOSPITAL INC
    one grant, 2022 · $20k
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
New York University

Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.

Education
2
University of Miami

See Form 990, Part I, Line 1, Description of Organization Mission.

Education
3
Rush University Medical Center

The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.

Health
4
Rhode Island Hospital

As a founding hospital in the brown university health system, rih is committed to its mission: delivering health with care.

Health
5
William Marsh Rice University

As a leading research university with a distinctive commitment to undergraduate education, Rice University aspires to path breaking research, unsurpassed teaching, and contributions to the betterment of our world. It seeks to fulfill this…

Education
6
Trustees of the University of Pennsylvania

The trustees of the university of pennsylvania (the "university") sees itself as having a public service mission. in such regard, the university aims to provide a rich and diverse educational environment for its students; to pioneer…

Education
7
University of Minnesota Physicians

University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…

Health
8
Case Western Reserve University

Case Western Reserve University is an independent, research-oriented university with broadly based strengths in health, including medicine, nursing and dentistry; in engineering; in the arts and sciences; and in law, management and social…

Education
9
Massachusetts Eye & Ear Infirmary

THE MASSACHUSETTS EYE AND EAR INFIRMARY ("THE INFIRMARY") IS A NOT-FOR-PROFIT TEACHING HOSPITAL CONDUCTING PATIENT CARE AND RESEARCH. THE INFIRMARY IS A TEACHING HOSPITAL OF HARVARD MEDICAL SCHOOL AND AN INTERNATIONAL CENTER FOR RESEARCH.…

Health
10
Cornell University

Education, research, medical services and other public services.

Education
11
University of Southern California

The central mission of the university of southern california is the development of human beings and society as a whole through the cultivation and enrichment of the human mind and spirit. the principal means by which our mission is…

Education
12
Mass General Brigham Incorporated & Affiliates Group Return

Mass general brigham incorporated is developing an integrated health care delivery system throughout the region that offers patients a continuum of coordinated, high-quality care.

Health
How this is measured
The grantee most central to the portfolio’s shape is Brown University; the most unlike its peers is American Thoracic Society Inc. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

15 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 15 of the 32 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
0
Early backer (in before they grew)
15/15
Grantees still filing
11/15
Grew since first funded

Where the money sits, by cause and then by grantee

NATIONAL ORGANIZATION FOR RARE DISORDERS INC: $865,000 · OtherNATIONAL ORGANIZATION FOR RARE DISORDERS INCMASS GENERAL BRIGHAM INCORPORATED: $690,916 · OtherMASS GENERAL BRIGHAM INCORPORATEDTHE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE: $431,250 · OtherTHE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTEREGENTS OF THE UNIVERSITY OF CALIFORNIA AT IRVINE: $150,000 · OtherTHE UNIVERSITY OF TEXAS AT DALLAS CENTER FOR BRAINHEALTH: $150,000 · OtherUNIVERSITY OF MARYLAND COLLEGE PARK: $149,884 · OtherREGENTS OF THE UNIVERSITY OF CALIFORNIA AT BERKELEY: $112,500 · OtherUNIVERSITY OF ALABAMA AT BIRMINGHAM: $107,182 · Other+10 more: $366,764 · Other+10 moreChildren's Hospital Corporation: $935,922 · HealthChildren's Hospital Corpo…CHILDREN'S HOSPITAL MEDICAL CENTER: $218,750 · HealthCHILDREN'S HOSPITAL MEDIC…+1 more: $37,500 · HealthBaylor College of Medicine: $150,000 · EducationBaylor College of…President and Fellows of Harvard College: $150,000 · EducationPresident and Fel…THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK: $150,000 · EducationTHE TRUSTEES OF C…Yale University: $148,768 · EducationYale UniversityEmory University: $93,750 · EducationEmory UniversityUNIVERSITY OF MASSACHUSETTS AMHERST FOUNDATION INC: $93,750 · EducationUNIVERSITY OF MAS…+2 more: $31,000 · EducationNORTHWESTERN UNIVERSITY SETTLEMENT ASSOCIATION: $150,001 · Human ServicesNorthwestern University: $93,750 · Recreation & SportsBROWN UNIVERSITY: $86,986 · Community Improvement
Other$3,023,496Health$1,192,172Education$817,268Human Services$150,001Recreation & Sports$93,750Community Improvement$86,986

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$100Mgrantee revenue →↑ funder's share of their budgetChildren's Hospital Corporation: $935,922 over 8y, 0.0% of budgetNATIONAL ORGANIZATION FOR RARE DISORDERS INC: $865,000 over 7y, 0.5% of budgetCHILDREN'S HOSPITAL MEDICAL CENTER: $218,750 over 4y, 0.0% of budgetNORTHWESTERN UNIVERSITY SETTLEMENT ASSOCIATION: $150,001 over 3y, 0.4% of budgetBaylor College of Medicine: $150,000 over 3y, 0.0% of budgetPresident and Fellows of Harvard College: $150,000 over 2y, 0.0% of budgetTHE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK: $150,000 over 3y, 0.0% of budgetYale University: $148,768 over 3y, 0.0% of budgetEmory University: $93,750 over 2y, 0.0% of budgetNorthwestern University: $93,750 over 2y, 0.0% of budgetUNIVERSITY OF MASSACHUSETTS AMHERST FOUNDATION INC: $93,750 over 2y, 0.2% of budgetBROWN UNIVERSITY: $86,986 over 2y, 0.0% of budgetVanderbilt University Medical Center: $37,500 over 2y, 0.0% of budgetUniversity of New England: $20,000 over 1y, 0.0% of budgetAMERICAN THORACIC SOCIETY INC: $11,000 over 2y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

  • Who funds Children's Hospital Corporation ↗
  • Who funds NATIONAL ORGANIZATION FOR RARE DISORDERS INC ↗
  • Who funds CHILDREN'S HOSPITAL MEDICAL CENTER ↗
  • Who funds NORTHWESTERN UNIVERSITY SETTLEMENT ASSOCIATION ↗
  • Who funds Baylor College of Medicine ↗
  • Who funds President and Fellows of Harvard College ↗
  • Who funds THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK ↗
  • Who funds Yale University ↗
  • Who funds Emory University ↗
  • Who funds Northwestern University ↗
  • Who funds UNIVERSITY OF MASSACHUSETTS AMHERST FOUNDATION INC ↗
  • Who funds BROWN UNIVERSITY ↗
  • Who funds Vanderbilt University Medical Center ↗
  • Who funds University of New England ↗
  • Who funds AMERICAN THORACIC SOCIETY INC ↗

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a set of overlaps that mostly run through this funder rather than between each other.

Fidelity Investments …
Fidelity Investments Charitable Gift FundMA6.6× affinity4 shared granteesties to 0 of 0Hover any node to trace its alignments.Compare side by side →

Open a dossier: Fidelity Investments Charitable Gift Fund

How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

How much its grantees rely on government

Each dot is one organization National Tuberous Sclerosis Association funds: left to right is the share of its income from government, bottom to top the share from National Tuberous Sclerosis Association. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 10%0%1%3%5%funder's share of their income ↑0%5%10%15%20%share of the org’s income from government →median 10%
  • Yale University: 12% of income from government
  • Children's Hospital Corporation: 10% of income from government
  • President and Fellows of Harvard College: 7% of income from government
no gov moneyreceives it· size = income
1get no government money at all
3report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
⤢ axis zoomed · 0–20%
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 32 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

Play a game based on National Tuberous Sclerosis Association’s filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home