How much does National Tuberous Sclerosis Association give?

National Tuberous Sclerosis Association reported 11 itemized grants totaling $701,695, out of $1,040,281 in total grant expense reported on the return in its FY2025 IRS filing. It funded between 6 and 12 organizations a year over FY2018 to FY2024.

What does National Tuberous Sclerosis Association fund?

By grant dollars over FY2017 to FY2025, its largest causes are Health (65%), Science & Tech (30%), Human Services (3%).

Who are National Tuberous Sclerosis Association's largest grantees?

By total granted over FY2017 to FY2025: Children's Hospital Corporation ($936k), National Organization for Rare Disorders Inc ($865k), Mass General Brigham Incorporated ($691k).

Does National Tuberous Sclerosis Association fund new organizations?

In FY2024, 38% of the organizations it funded were first-time grantees.

Which funders back the same organizations as National Tuberous Sclerosis Association?

Its strongest co-funders, measured against what their size predicts, include Fidelity Investments Charitable Gift Fund.

Where is National Tuberous Sclerosis Association based?

National Tuberous Sclerosis Association is based in MD.

Foundation Dossiers Mostly funded, not a grantmaker: see who funds it →

Maryland · Public charity

National Tuberous Sclerosis Association

To improve quality of life for everyone affected by tuberous sclerosis complex by catalyzing new treatments, driving research toward a cure and expanding access to lifelong support.

$1.0M
Granted FY2025(still arriving): 11
Itemized grants FY2025: 8
Organizations funded FY2024: 38%
First-time grantees FY2024

Read the full brief

Itemized, FY2025: $702k; The rest is grants the schedule does not break out
Median grant, FY2025: $56,250
Largest grant, FY2025: $150,000
Organizations funded a year: 6 to 12; FY2018 to FY2024
States reached, FY2025: 6
Total assets, FY2025: $18M

How open it is to new grantees

In FY2024, 38% of the organizations National Tuberous Sclerosis Association funded were first-time grantees, receiving 10% of its grant dollars.

New vs renewed · share of each year

In FY2024, 90% of grant dollars renewed an existing relationship; $56k went to new ones.

RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

EducationHealthHuman ServicesRecreation & SportsOther

How this is measured

First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

The numbers by year

Fiscal year	Organizations funded	To those organizations	First-time grantees
FY2025still arriving	11	$702k	0%
FY2024	8	$538k	38%
FY2023	12	$558k	33%
FY2022	10	$607k	40%
FY2021	10	$780k	20%
FY2020	11	$567k	27%
FY2019	7	$400k	57%
FY2018	6	$320k	67%

100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.

Health$3.5MScience & Tech$1.6MHuman Services$150kEducation$114k

Where its grants go

Grant dollars by states, across the years we hold.

Which US states its grants reach

Top grantees

Largest recipients by total granted, FY2017 to FY2025, and the share of each one’s budget the grants supplied at peak.

Grantee	Total granted	Years	Share of their budget
Children's Hospital Corporation	$935,922	8	0%
National Organization for Rare Disorders Inc	$865,000	7	1%
Mass General Brigham Incorporated	$690,916	7	n/a
The University of Texas Southwestern Medical Cente	$431,250	7	n/a
Children's Hospital Medical Center	$218,750	4	0%
Northwestern University Settlement Association	$150,001	3	0%
Baylor College of Medicine	$150,000	3	0%
Regents of the University of California at Irvine	$150,000	3	n/a
The University of Texas at Dallas Center for Brainhealth	$150,000	3	n/a
University of Maryland College Park	$149,884	3	n/a

Show all 28 grantees

All grantees of National Tuberous Sclerosis Association by total granted
Grantee	Total granted	Years	Share of their budget
Children's Hospital Corporation	$935,922	8	0%
National Organization for Rare Disorders Inc	$865,000	7	1%
Mass General Brigham Incorporated	$690,916	7	n/a
The University of Texas Southwestern Medical Cente	$431,250	7	n/a
Children's Hospital Medical Center	$218,750	4	0%
Northwestern University Settlement Association	$150,001	3	0%
Baylor College of Medicine	$150,000	3	0%
Regents of the University of California at Irvine	$150,000	3	n/a
The University of Texas at Dallas Center for Brainhealth	$150,000	3	n/a
University of Maryland College Park	$149,884	3	n/a
Regents of the University of California at Berkeley	$112,500	3	n/a
University of Alabama at Birmingham	$107,182	2	n/a
University of Washington	$100,000	2	n/a
Emory University	$93,750	2	0%
Northwestern University	$93,750	2	0%
University of Massachusetts Amherst Foundation Inc	$93,750	2	0%
Regents Univ of California	$51,950	3	n/a
Wayne State University	$50,000	1	n/a
Vanderbilt University Medical Center	$37,500	2	0%
Rector & Visitors of the University of Virginia	$37,500	2	n/a
Clemson University	$37,490	2	n/a
Weill Medical College of Cornell Univers	$21,000	1	n/a
Nationwide Childrens Hospital Inc	$20,000	1	n/a
University of New England	$20,000	1	0%
University of Cincinnati	$20,000	1	n/a
The University of Tennessee	$18,511	1	n/a
American Thoracic Society Inc	$11,000	2	0%
University of Texas Health Science Center Houston	$10,313	1	n/a

Each grantee by its size and the share of its budget National Tuberous Sclerosis Association supplied at peak.

Tap a dot to name the grantee.

How this is measured

Share of budget is the funder’s grant in a year over the grantee’s total revenue that year, at its highest across the years we hold; revenue is from all sources. Only grantees confirmed against their own filings, whose grants do not exceed their revenue, are plotted: the largest 11.

Nonprofits that may fit its grantmaking

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a set of overlaps that mostly run through this funder rather than between each other.

Fidelity Investments Charitable Gift FundMA6.6× affinity4 shared granteesties to 0 of 0Hover any node to trace its alignments.Compare side by side →

Open a dossier: Fidelity Investments Charitable Gift Fund

How this is measured

Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

Compare National Tuberous Sclerosis Association with peer funders

About National Tuberous Sclerosis Association

How much does National Tuberous Sclerosis Association give?: National Tuberous Sclerosis Association reported 11 itemized grants totaling $701,695, out of $1,040,281 in total grant expense reported on the return in its FY2025 IRS filing. It funded between 6 and 12 organizations a year over FY2018 to FY2024.
What does National Tuberous Sclerosis Association fund?: By grant dollars over FY2017 to FY2025, its largest causes are Health (65%), Science & Tech (30%), Human Services (3%).
Who are National Tuberous Sclerosis Association's largest grantees?: By total granted over FY2017 to FY2025: Children's Hospital Corporation ($936k), National Organization for Rare Disorders Inc ($865k), Mass General Brigham Incorporated ($691k).
Does National Tuberous Sclerosis Association fund new organizations?: In FY2024, 38% of the organizations it funded were first-time grantees.
Which funders back the same organizations as National Tuberous Sclerosis Association?: Its strongest co-funders, measured against what their size predicts, include Fidelity Investments Charitable Gift Fund.
Where is National Tuberous Sclerosis Association based?: National Tuberous Sclerosis Association is based in MD.