· Public charity
National Tuberous Sclerosis Association
To improve quality of life for everyone affected by tuberous sclerosis complex by catalyzing new treatments, driving research toward a cure and expanding access to lifelong support.
What you funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year — across FY2017–2025.
Where the money goes
Your grants by size, and where they go.
The 11 grants below total $701,695 — the rows itemised in this filing. The $1,040,281 headline is the total grant expense reported on the return, so the remaining $338,586 is giving the schedule does not break out: grants under the $5,000 itemisation floor, grants to individuals, and grants reported on other schedules. Every figure below describes the itemised rows only.
By grant size · FY2025
- $10k–50k3 grants · $57k
- $50k–250k8 grants · $644k
| Recipient | Amount |
|---|---|
| NATIONAL ORGANIZATION FOR RARE DISORDERS | $150,000 |
| BOSTON CHILDREN'S HOSPITAL | $100,579 |
| EMORY UNIVERSITY | $75,000 |
| UNIVERSITY OF MASSACHUSETTS | $75,000 |
| NORTHWESTERN UNIVERSITY | $75,000 |
| UNIVERSITY OF TEXAS DALLAS | $56,250 |
| BAYLOR COLLEGE OF MEDICINE | $56,250 |
| UNIVERSITY OF CALIFORNIA IRVINE | $56,250 |
| CLEMSON UNIVERSITY | $19,866 |
| THE REGENTS OF THE UNIVERSITY OF CALIFORNIA | $18,750 |
| CINCINNATI OF CHILDREN'S HOSPITAL | $18,750 |
Do your dollars go where the need is?
Each grant placed by the hardship in its grantee’s ZIP, then read against the area’s typical level.
Your human-services grants (FY19–21, $150k) land where the poverty rate runs at 14%, against an area that typically sits at 11%. 100% of those dollars go to grantees based in above-average-need neighborhoods. Most of your grants land in higher-need ZIPs.
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty linein the grantee’s ZIP, averaged from the tracts in that ZIP; grantee ZIP can differ from where services are delivered.
Which US states your grants reach
Grants abroad, by region — $333k on the FY2025 return
Schedule F, as filed: 2 regions. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.
Stated purpose: RESEARCH ON TUBEROUS SCLEROSIS COMPLEX
Stated purpose: RESEARCH ON TUBEROUS SCLEROSIS COMPLEX
US grants placed by each grantee’s ZIP, which can differ from where services are actually delivered. Need from public data — U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA — shown as context about the area, never attributed to your giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
Who you back again
Which organizations you funded more than once, and which you funded a single time. Each grantee is matched to its own filings.
And the relationships you keep tend to grow: grantees you re-up on have seen median revenue of +19% since the first grant, against +14% for the ones you funded once.
21 repeat relationships — 11 still active in FY2025, 10 since wound down.
How the two cohorts compare
Organizations
Total granted
Median revenue growth · since first grant
Still filing today
New vs renewed · share of each year
In FY2025, 100% of grant dollars renewed an existing relationship; $0 went to new ones.
Where new relationships form · theme of each grantee’s first grant
First-time = a grantee’s first year in your filing window; renewed = funded in an earlier year too. As a portfolio matures the renewed share naturally climbs — once funded, an org stays “renewable” — so the signal is the years that buck it (a new-grantee intake wave). The earliest year is left-censored: relationships that predate the data read as “new.” Theme is the grantee’s IRS cause.
Backed again, and grew
- CHChildren's Hospital Corporation8× · 2017–2025 · $936k · revenue +69%
- CHCHILDREN'S HOSPITAL MEDICAL CENTER4× · 2019–2025 · $219k · revenue +37%
- NUNORTHWESTERN UNIVERSITY SETTLEMENT ASSOCIATION3× · 2019–2021 · $150k · revenue +4%
Funded once
- WSWAYNE STATE UNIVERSITYone grant, 2018 · $50k
- WMWeill Medical College of Cornell Universone grant, 2018 · $21k
- UOUNIVERSITY OF CINCINNATIone grant, 2018 · $20k
Repeat = funded in two or more distinct years; growth and survival are read from each grantee’s own subsequent IRS filings.
The map has a center of gravity: the average direction from the rest of the sector toward the organizations the foundation funds — the shape of its giving. Scoring every nonprofit along that direction surfaces the ones that look most like the portfolio. These are the closest matchesthat aren’t grantees — a resemblance in what they say they do, not a recommendation.
Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.
See Form 990, Part I, Line 1, Description of Organization Mission.
The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.
As a leading research university with a distinctive commitment to undergraduate education, Rice University aspires to path breaking research, unsurpassed teaching, and contributions to the betterment of our world. It seeks to fulfill this…
Education, research, medical services and other public services.
The trustees of the university of pennsylvania (the "university") sees itself as having a public service mission. in such regard, the university aims to provide a rich and diverse educational environment for its students; to pioneer…
Case Western Reserve University is an independent, research-oriented university with broadly based strengths in health, including medicine, nursing and dentistry; in engineering; in the arts and sciences; and in law, management and social…
University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…
THE MASSACHUSETTS EYE AND EAR INFIRMARY ("THE INFIRMARY") IS A NOT-FOR-PROFIT TEACHING HOSPITAL CONDUCTING PATIENT CARE AND RESEARCH. THE INFIRMARY IS A TEACHING HOSPITAL OF HARVARD MEDICAL SCHOOL AND AN INTERNATIONAL CENTER FOR RESEARCH.…
Mass general brigham incorporated is developing an integrated health care delivery system throughout the region that offers patients a continuum of coordinated, high-quality care.
Dartmouth College educates the most promising students and prepares them for a lifetime of learning and of responsible leadership, through a faculty dedicated to teaching and the creation of knowledge.
Education and Research
For reference, the grantee most central to the portfolio’s shape is Brown University and the most unlike its peers is American Thoracic Society Inc. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
Your grantees are a median of 53 years old; the field is 16. You back the established end — and your money leans older still.
The field is 22% startups (under 5 years old) — 0% of your grantees by number, and just 0% of your money.
The orgs you fund almost never close — 0.0% lost their exemption, against 13% of the field you don’t fund.
Age = years since IRS exemption (a founding proxy). “Closed” = auto-revocation for 3 years of non-filing — a floor on closure, not proof, and bigger established orgs lapse least. Association, not causation.
15 grantees tracked through their own filings, 2017–2025.
Each one resolved to its own IRS returns and tracked year by year — your grant beside their revenue from every source. Association, dated; never a causal claim.
Counted here: distinct organizations you funded across 2017–2025, not grant rows in a single year — so this will not match the grant count on the cover. 15 of the 32 grantees resolved in that span have returns of their own we could reconcile; the rest are funded organizations whose filings we could not track year by year.
Where your money sits — by cause, then by grantee
Each org by its size and your share of it — top-left is where you’re load-bearing
Go grantee by grantee — a decade per org, and how each moved after you funded them
A decade per grantee — revenue shaded, your grants as bars, all rows on one timeline.
- Who funds Children's Hospital Corporation ↗
- Who funds NATIONAL ORGANIZATION FOR RARE DISORDERS INC ↗
- Who funds CHILDREN'S HOSPITAL MEDICAL CENTER ↗
- Who funds NORTHWESTERN UNIVERSITY SETTLEMENT ASSOCIATION ↗
- Who funds Baylor College of Medicine ↗
- Who funds THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK ↗
- Who funds President and Fellows of Harvard College ↗
- Who funds Yale University ↗
- Who funds Emory University ↗
- Who funds UNIVERSITY OF MASSACHUSETTS AMHERST FOUNDATION INC ↗
- Who funds Northwestern University ↗
- Who funds BROWN UNIVERSITY ↗
- Who funds Vanderbilt University Medical Center ↗
- Who funds University of New England ↗
- Who funds AMERICAN THORACIC SOCIETY INC ↗
The grantmakers whose grantees overlap with yours far more than size alone predicts. Each orbits closer the stronger the alignment; the arcs between them show where they also fund each other. Here it reads as a set of overlaps that mostly run through you, not between each other.
Open a dossier: Fidelity Investments Charitable Gift Fund
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. A research starting point: overlap is association, not proof of shared intent.
Government reliance of your grantees
Every dot is one organization National Tuberous Sclerosis Association funds. Left–right is the share of its income from government; up–down is the share from you. Bigger dots raise more. Filter to federal, a single department, or state — and drag the year to watch it move.
- Yale University — 12% of income from government
- Children's Hospital Corporation — 10% of income from government
- President and Fellows of Harvard College — 7% of income from government
Government income is each org’s traced federal awards (USASpending — grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that your grant caused the public funding. Coverage is precision-first — a floor, not a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12–24 months.