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Virginia · Public charity

National Pku Alliance Inc

Our mission is to improve the lives of individuals with pku, pursue a cure by expanding research and provide education and support to individuals living with pku and their caregivers.

$459k
Granted FY2025(still arriving)
8
Itemized grants FY2025
1
Organizations funded FY2024
0%
First-time grantees FY2024
Read the full brief
Itemized, FY2025
$404k
The rest is grants the schedule does not break out
Median grant, FY2025
$50,000
Largest grant, FY2025
$169,344
Organizations funded a year
1 to 9
FY2018 to FY2024
States reached, FY2025
6
Total assets, FY2025
$6.2M

How open it is to new grantees

In FY2024, 0% of the organizations National Pku Alliance Inc funded were first-time grantees, receiving 0% of its grant dollars.

New vs renewed · share of each year

In FY2024, 100% of grant dollars renewed an existing relationship; $0 went to new ones.

50%100%’18’19’20’21’22’23’24
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’18’19’20’21’22’23’24
EducationHealthOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.
The numbers by year
Fiscal yearOrganizations fundedTo those organizationsFirst-time grantees
FY2025still arriving7$235k43%
FY20241$8k0%
FY20231$156k100%
FY20223$442k0%
FY20214$355k0%
FY20204$423k25%
FY20199$477k67%
FY20187$536k57%
100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.

Health$2.4MEducation$845kScience & Tech$316kPhilanthropy$156kHuman Services$25k

Where its grants go

Grant dollars by states, across the years we hold.

Which US states its grants reach

IL
NY
MA
OR
OH
PA
CA
UT
MO
MD
SC
GA
TX

Top grantees

Largest recipients by total granted, FY2017 to FY2025, and the share of each one’s budget the grants supplied at peak.

GranteeTotal grantedYearsShare of their budget
Oregon Health & Science University$1,109,0846n/a
University of Pittsburgh$274,12740%
Washington University$260,92020%
Children's Hospital Corporation$260,42230%
Curators of the University of Missouri$207,0052n/a
Curators of the University of Missouri Special Tr$155,6521n/a
University of Chicago$110,30120%
The Institute For Cancer Research$80,00020%
University of California San Diego$80,0001n/a
University of North Texas Health Science Center at Ft Worth Health Systems$55,0001n/a
Show all 22 grantees
All grantees of National Pku Alliance Inc by total granted
GranteeTotal grantedYearsShare of their budget
Oregon Health & Science University$1,109,0846n/a
University of Pittsburgh$274,12740%
Washington University$260,92020%
Children's Hospital Corporation$260,42230%
Curators of the University of Missouri$207,0052n/a
Curators of the University of Missouri Special Tr$155,6521n/a
University of Chicago$110,30120%
The Institute For Cancer Research$80,00020%
University of California San Diego$80,0001n/a
University of North Texas Health Science Center at Ft Worth Health Systems$55,0001n/a
University of North Texas$55,0001n/a
Regents of the University of California at San Diego$54,5421n/a
Emory University$50,0001n/a
Maryland Alliance of Pku Families Inc$43,5905n/a
The Ohio State University$40,0001n/a
Children's Research Institute$40,0001n/a
Clemson University$29,0001n/a
California Coalition for Pku and Allied Disorders$23,5003n/a
Georgia Pku Connect Inc$16,5002n/a
Mid-Atlantic Connection for Pku Allied Disorder Inc$12,000136%
Intermountain Pku and Allied Disorders Association$11,0001n/a
Pku Organization of Illinois$8,531117%

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a set of overlaps that mostly run through this funder rather than between each other.

Amazonsmile FoundationWA2× affinity7 shared granteesties to 0 of 0Hover any node to trace its alignments.Compare side by side →

Open a dossier: Amazonsmile Foundation

How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

Compare National Pku Alliance Inc with peer funders

About National Pku Alliance Inc

How much does National Pku Alliance Inc give?
National Pku Alliance Inc reported 8 itemized grants totaling $404,367, out of $459,015 in total grant expense reported on the return in its FY2025 IRS filing. It funded between 1 and 9 organizations a year over FY2018 to FY2024.
What does National Pku Alliance Inc fund?
By grant dollars over FY2017 to FY2025, its largest causes are Health (64%), Education (23%), Science & Tech (9%).
Who are National Pku Alliance Inc's largest grantees?
By total granted over FY2017 to FY2025: Oregon Health & Science University ($1.1M), University of Pittsburgh ($274k), Washington University ($261k).
Does National Pku Alliance Inc fund new organizations?
In FY2024, 0% of the organizations it funded were first-time grantees.
Which funders back the same organizations as National Pku Alliance Inc?
Its strongest co-funders, measured against what their size predicts, include Amazonsmile Foundation.
Where is National Pku Alliance Inc based?
National Pku Alliance Inc is based in VA.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 24 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

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