Skip to content
Moebius Syndrome Foundation at a glanceAlso receives grants: funding profile →

· Public charity

Moebius Syndrome Foundation

The mission of the Moebius Syndrome Foundation is to provide information and support to individuals with moebius syndrome and their families, promote greater awareness and understanding of moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of moebius syndrome and its associated conditions.

$228k
Granted FY2025still arriving
2
Grants FY2025still arriving
2
States reached
$100k
Largest
01What it fundsRead
02The needRead
03Its fieldRead
04Through PlinthRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.

Health$515kEducation$54kScience & Tech$24k
02FY2025 · 2 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 2 grants below total $200,000, the rows itemized in this filing. The $227,648 headline is the total grant expense on the return; the other $27,648 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.
$100,000
Median grant
2
States reached
$2.5M
Total assets
Largest grants
RecipientAmount
The Board of Regents University of Wisconsin$100,000
Northwestern University$100,000
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY17–25) land where the poverty rate runs at 15%, against an area that typically sits at 11%. 76% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 11%BOSTON CHILDREN'S HOSPITAL: $50k → 16%University of Nebraska Lincoln: $3k → 13%Augsburg University: $3k → 11%Butler Community College: $3k → 9%York College of Pennsylvania: $3k → 9%Citrus Community College: $3k → 14%ICAHN SCHOOL OF MEDICINE AT MOUNT S: $160k → 17%Oklahoma Wesleyan University: $3k → 14%Oklahoma State University: $3k → 19%Arkansas Tech University: $3k → 15%The George Washington University: $3k → 14%Eckerd College: $3k → 12%University of South Florida: $3k → 13%University of North Florida: $3k → 14%The Board of Regents University of Wisconsin: $100k → 10%OREGON STATE UNIVERSITY: $24k → 18%University of Hartford: $3k → 11%Fayetteville State University: $3k → 16%Indiana University: $70k → 18%The Ohio State University at Lima: $3k → 13%Northwestern University: $100k → 14%Howard Community College: $3k → 6%NATIONAL HUMAN GENOME RESEARCH INSTITUTE: $75k → 8%University of Maryland College: $3k → 11%ICAHN SCHOOL OF MEDICINE AT MOUNT S: $80k → 17%University of South Florida: $3k → 13%MOUNT SINAI HOSPITAL: $80k → 17%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

MN
NY
MA
OR
IN
OH
PA
CT
CA
NE
MD
AR
NC
DC
OK
MS
FL
How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving.
03Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
University of New Haven

The University of New Haven is a student-centered comprehensive university with an emphasis on excellence in liberal arts and professional education. Our mission is to prepare our students to lead purposeful and fulfilling lives in a…

Education
2
Lehigh University

The university's goal in the coming decade is to advance learning through the integration of teaching, research and service to others. the core of this goal is to prepare graduates to engage with the world and lead lives of meaning. to do…

Education
3
Furman University

The primary mission of furman as a liberal arts institution is to provide a distinctive education in fine arts, humanities, social sciences, mathematics and the sciences, as well as selected professional disciplines.

Education
4
Augustana College

Rooted in the liberal arts & sciences & lutheran expression of the christian faith, & is committed to offering a challenging education that develops qualities of mind, spirit, & body necessary for a rewarding life of leadership & service…

Education
5
President and Fellows of Harvard College

Undergraduate, graduate, and professional education and research across a broad array of academic domains.

Education
6
Massachusetts Institute of Technology

The mission of mit is to advance knowledge and educate students in science, technology, and other areas of scholarship that will best serve the nation and the world in the 21st century.

Education
7
Northeast College of Health Sciences

Northeast college of health sciences (the college) is committed to academic excellence, leadership, and professional best practices in the health sciences.

Education
8
Trustees of Tufts College

Education and Research

Education
9
Trustees of Dartmouth College

Dartmouth College educates the most promising students and prepares them for a lifetime of learning and of responsible leadership, through a faculty dedicated to teaching and the creation of knowledge.

Education
10
Ashland University

Ashland university, guided by our christian heritage, is a comprehensive, private university that provides a transformative learning experience, shaping graduates who work, serve and lead with integrity in their local, national, and global…

Education
11
Point Park University

Provides innovative education in a dynamic urban setting. dedicated to academic excellence and community engagement,we prepare students of diverse backgrounds with the knowledge, skill,and experience to lead meaningful lives as informed…

—
12
Vanderbilt University

See Disclosure Above.

Education
How this is measured
The grantee most central to the portfolio’s shape is The George Washington University; the most unlike its peers is Children's Hospital Corporation. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

12 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 12 of the 25 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
0
Early backer (in before they grew)
12/12
Grantees still filing
10/12
Grew since first funded

Where the money sits, by cause and then by grantee

University of Wisconsin Madison: $100,000 · OtherUniversity of Wisconsin MadisonNATIONAL HUMAN GENOME RESEARCH INSTITUTE: $75,000 · OtherNATIONAL HUMAN GENOME RESEARCH INSTITUTEIndiana University School of Medicine: $70,000 · OtherIndiana University School of MedicineOREGON STATE UNIVERSITY: $24,344 · OtherOREGON STATE UNIVERSITY+9 more: $30,000 · Other+9 moreICAHN SCHOOL OF MEDICINE AT MOUNT SINAI: $240,000 · EducationICAHN SCHOOL OF MEDICINE AT MOUNT SIN…+8 more: $24,000 · Education+8 moreTHE MOUNT SINAI HOSPITAL: $80,000 · HealthTHE MOUNT SINAI HO…Children's Hospital Corporation: $50,000 · HealthChildren's Hospita…Northwestern University: $100,000 · Recreation & SportsNorthwestern U…
Other$299,344Education$264,000Health$130,000Recreation & Sports$100,000

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$10M$100Mgrantee revenue →↑ funder's share of their budgetICAHN SCHOOL OF MEDICINE AT MOUNT SINAI: $240,000 over 2y, 0.0% of budgetTHE MOUNT SINAI HOSPITAL: $80,000 over 1y, 0.0% of budgetChildren's Hospital Corporation: $50,000 over 1y, 0.0% of budgetAUGSBURG UNIVERSITY: $3,000 over 1y, 0.0% of budgetThe George Washington University: $3,000 over 1y, 0.0% of budgetEckerd College: $3,000 over 1y, 0.0% of budgetUNIVERSITY OF HARTFORD: $3,000 over 1y, 0.0% of budgetOklahoma State University Foundation: $3,000 over 1y, 0.0% of budgetCitrus College Foundation: $3,000 over 1y, 0.3% of budgetOKLAHOMA WESLEYAN UNIVERSITY: $3,000 over 1y, 0.0% of budgetYORK COLLEGE OF PENNSYLVANIA: $3,000 over 1y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

How much its grantees rely on government

Each dot is one organization Moebius Syndrome Foundation funds: left to right is the share of its income from government, bottom to top the share from Moebius Syndrome Foundation. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 10%0%1%3%5%funder's share of their income ↑0%5%10%15%20%share of the org’s income from government →median 1%
  • Children's Hospital Corporation: 10% of income from government
  • University of Hartford: 1% of income from government
  • Eckerd College: 0% of income from government
no gov moneyreceives it· size = income
1get no government money at all
2report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
⤢ axis zoomed · 0–20%
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.
04Through Plinth

Warm introductions · Powered by PlinthPlus

How do I get to Moebius Syndrome Foundation?

Find your warmest path to Moebius Syndrome Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 25 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

Play a game based on Moebius Syndrome’s filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home