Colorado · Public charity
Moebius Syndrome Foundation
The mission of the Moebius Syndrome Foundation is to provide information and support to individuals with moebius syndrome and their families, promote greater awareness and understanding of moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of moebius syndrome and its associated conditions.
- $228k
- Granted FY2025(still arriving)
- 2
- Itemized grants FY2025
- 7
- Organizations funded FY2024
- 86%
- First-time grantees FY2024
- Itemized, FY2025
- $200k
- The rest is grants the schedule does not break out
- Median grant, FY2025
- $100,000
- Largest grant, FY2025
- $100,000
- Organizations funded a year
- 1 to 8
- FY2017 to FY2024
- States reached, FY2025
- 2
- Total assets, FY2025
- $2.5M
How open it is to new grantees
In FY2024, 86% of the organizations Moebius Syndrome Foundation funded were first-time grantees, receiving 86% of its grant dollars.
New vs renewed · share of each year
In FY2024, 14% of grant dollars renewed an existing relationship; $18k went to new ones.
Where new relationships form · theme of each grantee’s first grant
How this is measured
The numbers by year
| Fiscal year | Organizations funded | To those organizations | First-time grantees |
|---|---|---|---|
| FY2025still arriving | 2 | $200k | 100% |
| FY2024 | 7 | $21k | 86% |
| FY2023 | 8 | $91k | 100% |
| FY2022 | 4 | $12k | 100% |
| FY2020 | 2 | $184k | 50% |
| FY2019 | 1 | $80k | 100% |
| FY2018 | 1 | $80k | 100% |
| FY2017 | 2 | $125k | n/a |
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.
Where its grants go
Grant dollars by states, across the years we hold.
Which US states its grants reach
Top grantees
Largest recipients by total granted, FY2017 to FY2025, and the share of each one’s budget the grants supplied at peak.
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Icahn School of Medicine at Mount Sinai | $240,000 | 2 | 0% |
| University of Wisconsin Madison | $100,000 | 1 | n/a |
| Northwestern University | $100,000 | 1 | n/a |
| The Mount Sinai Hospital | $80,000 | 1 | 0% |
| Indiana University School of Medicine | $70,000 | 1 | n/a |
| Children's Hospital Corporation | $50,000 | 1 | 0% |
| Oregon State University | $24,344 | 1 | n/a |
| University of South Florida | $6,000 | 2 | n/a |
| Butler Community College | $3,000 | 1 | n/a |
| Augsburg University | $3,000 | 1 | 0% |
Show all 22 grantees
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Icahn School of Medicine at Mount Sinai | $240,000 | 2 | 0% |
| University of Wisconsin Madison | $100,000 | 1 | n/a |
| Northwestern University | $100,000 | 1 | n/a |
| The Mount Sinai Hospital | $80,000 | 1 | 0% |
| Indiana University School of Medicine | $70,000 | 1 | n/a |
| Children's Hospital Corporation | $50,000 | 1 | 0% |
| Oregon State University | $24,344 | 1 | n/a |
| University of South Florida | $6,000 | 2 | n/a |
| Butler Community College | $3,000 | 1 | n/a |
| Augsburg University | $3,000 | 1 | 0% |
| The George Washington University | $3,000 | 1 | 0% |
| University of North Florida | $3,000 | 1 | n/a |
| Eckerd College | $3,000 | 1 | 0% |
| Fayetteville State University | $3,000 | 1 | n/a |
| University of Hartford | $3,000 | 1 | 0% |
| University of Maryland College Park | $3,000 | 1 | n/a |
| Oklahoma State University Foundation | $3,000 | 1 | 0% |
| Board of Regents of the University of Nebraska | $3,000 | 1 | n/a |
| Citrus College Foundation | $3,000 | 1 | 0% |
| Oklahoma Wesleyan University | $3,000 | 1 | 0% |
| Howard Community College | $3,000 | 1 | n/a |
| York College of Pennsylvania | $3,000 | 1 | 0% |
Plus 3 recipients with no EIN on record ($81k), not named here.
Where it is load-bearing
Each grantee by its size and the share of its budget Moebius Syndrome Foundation supplied at peak.
Tap a dot to name the grantee.
How this is measured
Warm introductions · Powered by PlinthPlus
How do I get to Moebius Syndrome Foundation?
Find your warmest path to Moebius Syndrome Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.
Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.
About Moebius Syndrome Foundation
- How much does Moebius Syndrome Foundation give?
- Moebius Syndrome Foundation reported 2 itemized grants totaling $200,000, out of $227,648 in total grant expense reported on the return in its FY2025 IRS filing. It funded between 1 and 8 organizations a year over FY2017 to FY2024.
- What does Moebius Syndrome Foundation fund?
- By grant dollars over FY2017 to FY2025, its largest causes are Health (87%), Education (9%), Science & Tech (4%).
- Who are Moebius Syndrome Foundation's largest grantees?
- By total granted over FY2017 to FY2025: Icahn School of Medicine at Mount Sinai ($240k), University of Wisconsin Madison ($100k), Northwestern University ($100k).
- Does Moebius Syndrome Foundation fund new organizations?
- In FY2024, 86% of the organizations it funded were first-time grantees.
- Where is Moebius Syndrome Foundation based?
- Moebius Syndrome Foundation is based in CO.
Play a game based on Moebius Syndrome’s filings →