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· Public charity

Moebius Syndrome Foundation

The mission of the Moebius Syndrome Foundation is to provide information and support to individuals with moebius syndrome and their families, promote greater awareness and understanding of moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of moebius syndrome and its associated conditions.

$22k
Granted FY2024still arriving
7
Grants FY2024still arriving
4
States reached
$3k
Largest
01What you fund
01100% classified

What you funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year — across FY20172024.

Health$515kEducation$54kScience & Tech$24k
02FY2024 · 7 grants

Where the money goes

Your grants by size, and where they go.

The 7 grants below total $21,000 — the rows itemised in this filing. The $22,400 headline is the total grant expense reported on the return, so the remaining $1,400 is giving the schedule does not break out: grants under the $5,000 itemisation floor, grants to individuals, and grants reported on other schedules. Every figure below describes the itemised rows only.

$3,000
Median grant
4
States reached
$2.0M
Total assets
Largest grants
RecipientAmount
University of Nebraska Lincoln$3,000
University of North Florida$3,000
Eckerd College$3,000
Oklahoma Wesleyan University$3,000
University of South Florida$3,000
Oklahoma State University$3,000
York College of Pennsylvania$3,000
02The need
03

Do your dollars go where the need is?

Each grant placed by the hardship in its grantee’s ZIP, then read against the area’s typical level.

show:

Dollar for dollar, your grants (FY17–24) land where the poverty rate runs at 16%, against an area that typically sits at 11%. 84% of your dollars go to grantees based in above-average-need neighborhoods. Most of your grants land in higher-need ZIPs.

area typical 11%BOSTON CHILDREN'S HOSPITAL: $50k → 16%University of Nebraska Lincoln: $3k → 13%Augsburg University: $3k → 11%Butler Community College: $3k → 9%York College of Pennsylvania: $3k → 9%Citrus Community College: $3k → 14%ICAHN SCHOOL OF MEDICINE AT MOUNT S: $160k → 17%Oklahoma Wesleyan University: $3k → 14%Oklahoma State University: $3k → 19%Arkansas Tech University: $3k → 15%The George Washington University: $3k → 14%Eckerd College: $3k → 12%University of South Florida: $3k → 13%University of North Florida: $3k → 14%OREGON STATE UNIVERSITY: $24k → 18%University of Hartford: $3k → 11%Fayetteville State University: $3k → 16%Indiana University: $70k → 18%The Ohio State University at Lima: $3k → 13%Howard Community College: $3k → 6%NATIONAL HUMAN GENOME RESEARCH INSTITUTE: $75k → 8%University of Maryland College: $3k → 11%MOUNT SINAI HOSPITAL: $80k → 17%University of South Florida: $3k → 13%ICAHN SCHOOL OF MEDICINE AT MOUNT S: $80k → 17%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount

Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty linein the grantee’s ZIP, averaged from the tracts in that ZIP; grantee ZIP can differ from where services are delivered.

Which US states your grants reach

MN
NY
MA
OR
IN
OH
PA
CT
CA
NE
MD
AR
NC
DC
OK
MS
FL

US grants placed by each grantee’s ZIP, which can differ from where services are actually delivered. Need from public data — U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA — shown as context about the area, never attributed to your giving.

03Your field

The map has a center of gravity: the average direction from the rest of the sector toward the organizations the foundation funds — the shape of its giving. Scoring every nonprofit along that direction surfaces the ones that look most like the portfolio. These are the closest matchesthat aren’t grantees — a resemblance in what they say they do, not a recommendation.

1
University of New Haven

The University of New Haven is a student-centered comprehensive university with an emphasis on excellence in liberal arts and professional education. Our mission is to prepare our students to lead purposeful and fulfilling lives in a…

Education
2
Augustana College

Rooted in the liberal arts & sciences & lutheran expression of the christian faith, & is committed to offering a challenging education that develops qualities of mind, spirit, & body necessary for a rewarding life of leadership & service…

Education
3
Furman University

The primary mission of furman as a liberal arts institution is to provide a distinctive education in fine arts, humanities, social sciences, mathematics and the sciences, as well as selected professional disciplines.

Education
4
Lehigh University

The university's goal in the coming decade is to advance learning through the integration of teaching, research and service to others. the core of this goal is to prepare graduates to engage with the world and lead lives of meaning. to do…

Education
5
Columbia College

Columbia college improves lives by providing quality education to both traditional and nontraditional students, helping them achieve their true potential.

Education
6
Northeast College of Health Sciences

Northeast college of health sciences (the college) is committed to academic excellence, leadership, and professional best practices in the health sciences.

Education
7
Ashland University

Ashland university, guided by our christian heritage, is a comprehensive, private university that provides a transformative learning experience, shaping graduates who work, serve and lead with integrity in their local, national, and global…

Education
8
President and Fellows of Harvard College

Undergraduate, graduate, and professional education and research across a broad array of academic domains.

Education
9
Point Park University

Provides innovative education in a dynamic urban setting. dedicated to academic excellence and community engagement,we prepare students of diverse backgrounds with the knowledge, skill,and experience to lead meaningful lives as informed…

10
Massachusetts Institute of Technology

The mission of mit is to advance knowledge and educate students in science, technology, and other areas of scholarship that will best serve the nation and the world in the 21st century.

Education
11
Manhattanville University

To educate students to be ethical and socially responsible leaders in a global community.

Education
12
Stony Brook Internists University Faculty Practice Corporation

Provide clinical instruction to and supervision of medical school students, interns and residents and, incident thereto, rendering professional services.

Health

For reference, the grantee most central to the portfolio’s shape is The George Washington University and the most unlike its peers is Augsburg University. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.

04the grantee network

11 grantees tracked through their own filings, 2017–2025.

Each one resolved to its own IRS returns and tracked year by year — your grant beside their revenue from every source. Association, dated; never a causal claim.

Counted here: distinct organizations you funded across 20172025, not grant rows in a single year — so this will not match the grant count on the cover. 11 of the 23 grantees resolved in that span have returns of their own we could reconcile; the rest are funded organizations whose filings we could not track year by year.

0
Load-bearing (≥25% of a budget)
0
Early backer (in before they grew)
11/11
Grantees still filing
9/11
Grew since you first funded

Where your money sits — by cause, then by grantee

ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI — $240,000 · EducationICAHN SCHOOL OF MEDICINE AT MOUNT SINAI+8 more — $24,000 · Education+8 moreNATIONAL HUMAN GENOME RESEARCH INSTITUTE — $75,000 · OtherNATIONAL HUMAN GENOME RESEARCH INSTITU…Indiana University School of Medicine — $70,000 · OtherIndiana University School of MedicineOREGON STATE UNIVERSITY — $24,344 · OtherOREGON STATE UNIVERSITY+9 more — $30,000 · Other+9 moreTHE MOUNT SINAI HOSPITAL — $80,000 · HealthTHE MOUNT SINAI HOSPITALChildren's Hospital Corporation — $50,000 · HealthChildren's Hospital Corp…
Education$264,000Other$199,344Health$130,000

Each org by its size and your share of it — top-left is where you’re load-bearing

25%50%75%100%$10M$100Mgrantee revenue →↑ your share of their budgetICAHN SCHOOL OF MEDICINE AT MOUNT SINAI — $240,000 over 2y, 0.0% of budgetTHE MOUNT SINAI HOSPITAL — $80,000 over 1y, 0.0% of budgetChildren's Hospital Corporation — $50,000 over 1y, 0.0% of budgetAUGSBURG UNIVERSITY — $3,000 over 1y, 0.0% of budgetOKLAHOMA WESLEYAN UNIVERSITY — $3,000 over 1y, 0.0% of budgetThe George Washington University — $3,000 over 1y, 0.0% of budgetUNIVERSITY OF HARTFORD — $3,000 over 1y, 0.0% of budgetOklahoma State University Foundation — $3,000 over 1y, 0.0% of budgetEckerd College — $3,000 over 1y, 0.0% of budgetCitrus College Foundation — $3,000 over 1y, 0.3% of budgetYORK COLLEGE OF PENNSYLVANIA — $3,000 over 1y, 0.0% of budget
Go grantee by grantee — a decade per org, and how each moved after you funded them

A decade per grantee — revenue shaded, your grants as bars, all rows on one timeline.

Government reliance of your grantees

Every dot is one organization Moebius Syndrome Foundation funds. Left–right is the share of its income from government; up–down is the share from you. Bigger dots raise more. Filter to federal, a single department, or state — and drag the year to watch it move.

2024
202122232425
no gov · 10%0%1%3%5%your share of their income ↑0%5%10%15%20%share of the org’s income from governmentmedian 1%
  • Children's Hospital Corporation10% of income from government
  • University of Hartford1% of income from government
  • Eckerd College0% of income from government
no gov moneyreceives it· size = income
1get no government money at all
2report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
⤢ axis zoomed · 0–20%
typical government reliance, FY2025

Government income is each org’s traced federal awards (USASpending — grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that your grant caused the public funding. Coverage is precision-first — a floor, not a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12–24 months.

04Through Plinth

Warm introductions · Powered by PlinthPlus

How do I get to Moebius Syndrome Foundation?

Find your warmest path to Moebius Syndrome Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

On method. Every financial figure here is read directly from IRS e-file XML — your own 990/990-PF and the multi-year returns of the 23 grantees we resolved across every year we hold, several hundred filings in all (a different count from the grant rows on the cover, which are one fiscal year)— each linked to its source. Grantee achievements and outcomes are each organization’s own program-service reporting (Form 990, Part III); we read these as association with sustained funding — the foundation is one of several forces — suppress low-confidence name matches rather than guess, and say so where a figure rests on a single grant or filing. Not everything on this page is a filed figure, and the difference matters. Filed is what you reported on your return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears. How we build these →

Generated from your IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12–24 months behind; figures are dated accordingly.

Source object · view filing

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