Ohio · Public charity
International Rett Syndrome Foundation
To accelerate full spectrum research to cure rett syndrome and empower families with information, knowledge, and connectivity.
- $1.6M
- Granted FY2025(still arriving)
- 10
- Itemized grants FY2025
- 11
- Organizations funded FY2024
- 18%
- First-time grantees FY2024
- Itemized, FY2025
- $1.4M
- The rest is grants the schedule does not break out
- Median grant, FY2025
- $150,000
- Largest grant, FY2025
- $206,250
- Organizations funded a year
- 3 to 12
- FY2018 to FY2024
- States reached, FY2025
- 9
- Total assets, FY2025
- $4.7M
How open it is to new grantees
In FY2024, 18% of the organizations International Rett Syndrome Foundation funded were first-time grantees, receiving 13% of its grant dollars.
New vs renewed · share of each year
In FY2024, 87% of grant dollars renewed an existing relationship; $221k went to new ones.
Where new relationships form · theme of each grantee’s first grant
How this is measured
The numbers by year
| Fiscal year | Organizations funded | To those organizations | First-time grantees |
|---|---|---|---|
| FY2025still arriving | 8 | $1.1M | 25% |
| FY2024 | 11 | $1.7M | 18% |
| FY2023 | 6 | $687k | 17% |
| FY2022 | 12 | $1.5M | 33% |
| FY2021 | 11 | $1.2M | 55% |
| FY2020 | 3 | $115k | 100% |
| FY2019 | 5 | $1.0M | 80% |
| FY2018 | 6 | $1.0M | 33% |
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.
Where its grants go
Grant dollars by states, across the years we hold.
Which US states its grants reach
Top grantees
Largest recipients by total granted, FY2017 to FY2025, and the share of each one’s budget the grants supplied at peak.
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Vanderbilt University | $1,335,461 | 7 | 0% |
| Mass General Brigham Incorporated | $1,268,602 | 5 | n/a |
| Psychogenics Inc | $795,000 | 3 | n/a |
| Regents of the University of Colorado | $690,000 | 3 | n/a |
| University of Wisconsin Madison | $450,000 | 2 | n/a |
| Regents of the University of California at San Diego | $450,000 | 3 | n/a |
| Regents of the University of California | $375,000 | 4 | n/a |
| Baylor College of Medicine | $350,000 | 2 | 0% |
| Children's Hospital Corporation | $300,000 | 2 | 0% |
| University of Wisconsin | $300,000 | 1 | n/a |
Show all 39 grantees
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Vanderbilt University | $1,335,461 | 7 | 0% |
| Mass General Brigham Incorporated | $1,268,602 | 5 | n/a |
| Psychogenics Inc | $795,000 | 3 | n/a |
| Regents of the University of Colorado | $690,000 | 3 | n/a |
| University of Wisconsin Madison | $450,000 | 2 | n/a |
| Regents of the University of California at San Diego | $450,000 | 3 | n/a |
| Regents of the University of California | $375,000 | 4 | n/a |
| Baylor College of Medicine | $350,000 | 2 | 0% |
| Children's Hospital Corporation | $300,000 | 2 | 0% |
| University of Wisconsin | $300,000 | 1 | n/a |
| Loyola University of Chicago | $300,000 | 2 | 0% |
| Syracuse University | $287,305 | 2 | 0% |
| University of North Carolina at Chapel Hill | $283,464 | 3 | n/a |
| The University of Texas Southwestern Medical Cente | $275,000 | 2 | n/a |
| North Carolina State University | $270,982 | 2 | n/a |
| University of California Davis | $256,248 | 2 | n/a |
| Greenwood Genetic Center Inc | $250,000 | 2 | 1% |
| The Rockefeller University | $240,000 | 2 | 0% |
| Rector & Visitors of the University of Virginia | $200,000 | 2 | n/a |
| Regents Univ of California | $150,000 | 1 | n/a |
| University of Alabama at Birmingham | $150,000 | 1 | n/a |
| Duke University | $150,000 | 1 | 0% |
| Sanford Burnham Prebys Medical Discovery Institute | $150,000 | 3 | 0% |
| Icahn School of Medicine at Mount Sinai | $149,996 | 3 | 0% |
| Yeshiva University | $149,912 | 1 | 0% |
| University of Florida | $148,550 | 1 | n/a |
| The University of Texas at Dallas Center for Brainhealth | $146,271 | 1 | n/a |
| University of San Diego | $142,406 | 1 | 0% |
| Whitehead Institute for Biomedical Research | $137,500 | 3 | 0% |
| Nc State University | $120,982 | 1 | n/a |
| The University of Tennessee | $100,000 | 1 | n/a |
| UT Southwestern Medical Center | $89,125 | 1 | n/a |
| Marymount University | $75,000 | 1 | 0% |
| Board of Trustees for University of South Florida | $61,500 | 1 | n/a |
| Early Signal Foundation Inc | $57,246 | 1 | 3% |
| The George Washington University | $53,735 | 1 | 0% |
| Lucy Therapeutics Inc | $50,000 | 1 | n/a |
| Children's Hospital Medical Center | $40,500 | 1 | 0% |
| The Children's Hospital of Philadelphia | $40,100 | 1 | 0% |
Where it is load-bearing
Each grantee by its size and the share of its budget International Rett Syndrome Foundation supplied at peak.
Tap a dot to name the grantee.
How this is measured
Co-funders
Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.
Open a dossier: Donor Advised Charitable Giving Inc · Fidelity Investments Charitable Gift Fund
How this is measured
Compare International Rett Syndrome Foundation with peer funders
Warm introductions · Powered by PlinthPlus
How do I get to International Rett Syndrome Foundation?
Find your warmest path to International Rett Syndrome Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.
Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.
About International Rett Syndrome Foundation
- How much does International Rett Syndrome Foundation give?
- International Rett Syndrome Foundation reported 10 itemized grants totaling $1,377,096, out of $1,611,176 in total grant expense reported on the return in its FY2025 IRS filing. It funded between 3 and 12 organizations a year over FY2018 to FY2024.
- What does International Rett Syndrome Foundation fund?
- By grant dollars over FY2017 to FY2025, its largest causes are Health (100%).
- Who are International Rett Syndrome Foundation's largest grantees?
- By total granted over FY2017 to FY2025: Vanderbilt University ($1.3M), Mass General Brigham Incorporated ($1.3M), Psychogenics Inc ($795k).
- Does International Rett Syndrome Foundation fund new organizations?
- In FY2024, 18% of the organizations it funded were first-time grantees.
- Which funders back the same organizations as International Rett Syndrome Foundation?
- Its strongest co-funders, measured against what their size predicts, include Donor Advised Charitable Giving Inc, Fidelity Investments Charitable Gift Fund.
- Where is International Rett Syndrome Foundation based?
- International Rett Syndrome Foundation is based in OH.
Play a game based on International Rett Syndrome’s filings →