· Public charity
International Rett Syndrome Foundation
To accelerate full spectrum research to cure Rett syndrome and empower families with knowledge and connectivity.
What you funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year — across FY2017–2024.
Where the money goes
Your grants by size, and where they go.
The 12 grants below total $1,678,482 — the rows itemised in this filing. The $1,856,999 headline is the total grant expense reported on the return, so the remaining $178,517 is giving the schedule does not break out: grants under the $5,000 itemisation floor, grants to individuals, and grants reported on other schedules. Every figure below describes the itemised rows only.
By grant size · FY2024
- $50k–250k10 grants · $1.1M
- $250k+2 grants · $600k
| Recipient | Amount |
|---|---|
| The General Hospital Corporation dba Massachusetts General Hospital | $300,000 |
| University of Wisconsin-Madison | $300,000 |
| Vanderbilt University | $137,500 |
| The University of Texas Southwestern Medical Center | $137,500 |
| The Regents of the University of Colorado | $137,500 |
| University of Colorado Denver | $125,000 |
| North Carolina State University | $120,982 |
| The Rockefeller University | $120,000 |
| University of Virginia Rector & Visitors | $100,000 |
| The University of North Carolina at Chapel Hill | $100,000 |
| Whitehead University | $50,000 |
| Regents of the University of California | $50,000 |
Do your dollars go where the need is?
Each grant placed by the hardship in its grantee’s ZIP, then read against the area’s typical level.
Dollar for dollar, your grants (FY17–24) land where the poverty rate runs at 13%, against an area that typically sits at 11%. 63% of your dollars go to grantees based in above-average-need neighborhoods. Most of your grants land in higher-need ZIPs.
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty linein the grantee’s ZIP, averaged from the tracts in that ZIP; grantee ZIP can differ from where services are delivered.
Which US states your grants reach
US grants placed by each grantee’s ZIP, which can differ from where services are actually delivered. Need from public data — U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA — shown as context about the area, never attributed to your giving.
Who you back again
Which organizations you funded more than once, and which you funded a single time. Each grantee is matched to its own filings.
18 repeat relationships — 9 still active in FY2024, 9 since wound down; 2 grantees were first funded in FY2024 (too recent to call).
How the two cohorts compare
Organizations
Total granted
Median revenue growth · since first grant
Still filing today
New vs renewed · share of each year
In FY2024, 87% of grant dollars renewed an existing relationship; $221k went to new ones.
Where new relationships form · theme of each grantee’s first grant
First-time = a grantee’s first year in your filing window; renewed = funded in an earlier year too. As a portfolio matures the renewed share naturally climbs — once funded, an org stays “renewable” — so the signal is the years that buck it (a new-grantee intake wave). The earliest year is left-censored: relationships that predate the data read as “new.” Theme is the grantee’s IRS cause.
Backed again, and grew
Vanderbilt University6× · 2017–2024 · $1.1M · revenue +74%- BCBaylor College of Medicine2× · 2019–2022 · $350k · revenue +47%
- LULOYOLA UNIVERSITY OF CHICAGO2× · 2021–2023 · $300k · revenue +30%
Funded once
- UOUniversity of Wisconsinone grant, 2022 · $300k
- RUREGENTS UNIV OF CALIFORNIAone grant, 2021 · $150k
DUKE UNIVERSITYgraduatedone grant, 2017 · $150k · revenue +51%
Repeat = funded in two or more distinct years; growth and survival are read from each grantee’s own subsequent IRS filings.
The map has a center of gravity: the average direction from the rest of the sector toward the organizations the foundation funds — the shape of its giving. Scoring every nonprofit along that direction surfaces the ones that look most like the portfolio. These are the closest matchesthat aren’t grantees — a resemblance in what they say they do, not a recommendation.
Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.
Education, research, medical services and other public services.
The central mission of the university of southern california is the development of human beings and society as a whole through the cultivation and enrichment of the human mind and spirit. the principal means by which our mission is…
See Form 990, Part I, Line 1, Description of Organization Mission.
The university's goal in the coming decade is to advance learning through the integration of teaching, research and service to others. the core of this goal is to prepare graduates to engage with the world and lead lives of meaning. to do…
Seton hall university is a catholic institution of higher education
Drexel university fulfills its founder's vision of preparing each new generation of students for productive professional and civic lives while also focusing its collective expertise on solving society's greatest problems. drexel is an…
We educate the next generation of leaders to improve the health of our society.
Research, education and general - princeton university is a private not-for-profit, non-sectarian institution of higher learning with approximately 5,700 undergraduate and 3,300 graduate students. 2,500 students graduated in the 2024-2025…
Organization's mission: boston university is an international, comprehensive, private research university, committed to educating students to be reflective, resourceful individuals ready to live, adapt, and lead in an interconnected world.…
As a leading research university with a distinctive commitment to undergraduate education, Rice University aspires to path breaking research, unsurpassed teaching, and contributions to the betterment of our world. It seeks to fulfill this…
Dartmouth College educates the most promising students and prepares them for a lifetime of learning and of responsible leadership, through a faculty dedicated to teaching and the creation of knowledge.
For reference, the grantee most central to the portfolio’s shape is Syracuse University and the most unlike its peers is Sanford Burnham Prebys Medical Discovery Institute. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
Your grantees are a median of 80 years old; the field is 16. You back the established end — and your money leans older still.
The field is 22% startups (under 5 years old) — 0% of your grantees by number, and just 0% of your money.
The orgs you fund almost never close — 5% lost their exemption, against 13% of the field you don’t fund.
Age = years since IRS exemption (a founding proxy). “Closed” = auto-revocation for 3 years of non-filing — a floor on closure, not proof, and bigger established orgs lapse least. Association, not causation.
19 grantees tracked through their own filings, 2017–2025.
Each one resolved to its own IRS returns and tracked year by year — your grant beside their revenue from every source. Association, dated; never a causal claim.
Counted here: distinct organizations you funded across 2017–2025, not grant rows in a single year — so this will not match the grant count on the cover. 19 of the 39 grantees resolved in that span have returns of their own we could reconcile; the rest are funded organizations whose filings we could not track year by year.
Where your money sits — by cause, then by grantee
Each org by its size and your share of it — top-left is where you’re load-bearing
Go grantee by grantee — a decade per org, and how each moved after you funded them
A decade per grantee — revenue shaded, your grants as bars, all rows on one timeline.
- Who funds Vanderbilt University ↗
- Who funds Baylor College of Medicine ↗
- Who funds LOYOLA UNIVERSITY OF CHICAGO ↗
- Who funds Children's Hospital Corporation ↗
- Who funds GREENWOOD GENETIC CENTER INC ↗
- Who funds THE ROCKEFELLER UNIVERSITY ↗
- Who funds SANFORD BURNHAM PREBYS MEDICAL DISCOVERY INSTITUTE ↗
- Who funds DUKE UNIVERSITY ↗
- Who funds ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI ↗
- Who funds SYRACUSE UNIVERSITY ↗
- Who funds YESHIVA UNIVERSITY ↗
- Who funds UNIVERSITY OF SAN DIEGO ↗
- Who funds WHITEHEAD INSTITUTE FOR BIOMEDICAL RESEARCH ↗
- Who funds MARYMOUNT UNIVERSITY ↗
- Who funds TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA ↗
- Who funds EARLY SIGNAL FOUNDATION INC ↗
- Who funds Massachusetts Institute of Technology ↗
- Who funds CHILDREN'S HOSPITAL MEDICAL CENTER ↗
- Who funds THE CHILDREN'S HOSPITAL OF PHILADELPHIA ↗
The grantmakers whose grantees overlap with yours far more than size alone predicts. Each orbits closer the stronger the alignment; the arcs between them show where they also fund each other. Here it reads as a tightly interlocked camp — most of these funders back each other's grantees too.
Open a dossier: Donor Advised Charitable Giving Inc · Fidelity Investments Charitable Gift Fund
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. A research starting point: overlap is association, not proof of shared intent.
Government reliance of your grantees
Every dot is one organization International Rett Syndrome Foundation funds. Left–right is the share of its income from government; up–down is the share from you. Bigger dots raise more. Filter to federal or a single department — and drag the year to watch it move.
- Massachusetts Institute of Technology — 35% of income from government
- Children's Hospital Corporation — 10% of income from government
- Whitehead Institute for Biomedical Research — 7% of income from government
Government income is each org’s traced federal awards (USASpending — grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that your grant caused the public funding. Coverage is precision-first — a floor, not a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12–24 months.
Warm introductions · Powered by PlinthPlus
How do I get to International Rett Syndrome Foundation?
Find your warmest path to International Rett Syndrome Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.
Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.