· Public charity
Huntington's Disease Society of America Inc
To improve the lives of everyone impacted by huntington's disease by providing support, driving advocacy, and accelerating research.
What you funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year — across FY2017–2025.
Where the money goes
Your grants by size, and where they go.
The 65 grants below total $2,070,500 — the rows itemised in this filing. The $2,298,001 headline is the total grant expense reported on the return, so the remaining $227,501 is giving the schedule does not break out: grants under the $5,000 itemisation floor, grants to individuals, and grants reported on other schedules. Every figure below describes the itemised rows only.
By grant size · FY2025
- Under $10k3 grants · $28k
- $10k–50k57 grants · $1.7M
- $50k–250k5 grants · $391k
| Recipient | Amount |
|---|---|
| REGENTS OF THE UNIVERSITY OF MICHIGAN | $100,000 |
| MASSACHUSETTS GENERAL HOSPITAL | $90,000 |
| MASSACHUSETTS GENERAL HOSPITAL | $90,000 |
| REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS HEALTH | $60,500 |
| UNIV OF WASHINGTON | $50,000 |
| UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER | $47,000 |
| TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA | $46,500 |
| VANDERBILT UNIVERSITY MEDICAL CENTER | $45,000 |
| OHIO STATE UNIVERSITY WEXNER MEDICAL CENTER | $42,750 |
| UNIVERSITY OF SOUTH FLORIDA | $42,750 |
| REGENTS UNIVERSITY OF CA LOS ANGELES | $42,500 |
| UNIVERSITY OF ALABAMA BIRMINGHAM | $42,000 |
| UNIVERSITY OF CALIFORNIA SAN DIEGO | $41,750 |
| RUSH UNIVERSITY MEDICAL CENTER | $41,500 |
| UNIVERSITY OF ROCHESTER MEDICAL CENTER | $41,000 |
Do your dollars go where the need is?
Each grant placed by the hardship in its grantee’s ZIP, then read against the area’s typical level.
Dollar for dollar, your grants (FY17–25) land where the poverty rate runs at 14%, against an area that typically sits at 11%. 84% of your dollars go to grantees based in above-average-need neighborhoods. Most of your grants land in higher-need ZIPs.
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty linein the grantee’s ZIP, averaged from the tracts in that ZIP; grantee ZIP can differ from where services are delivered.
Which US states your grants reach
US grants placed by each grantee’s ZIP, which can differ from where services are actually delivered. Need from public data — U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA — shown as context about the area, never attributed to your giving.
Who you back again
Which organizations you funded more than once, and which you funded a single time. Each grantee is matched to its own filings.
And the relationships you keep tend to grow: grantees you re-up on have seen median revenue of +55% since the first grant, against +35% for the ones you funded once.
81 repeat relationships — 60 still active in FY2025, 21 since wound down; 1 grantees were first funded in FY2025 (too recent to call).
How the two cohorts compare
Organizations
Total granted
Median revenue growth · since first grant
Still filing today
New vs renewed · share of each year
In FY2025, 95% of grant dollars renewed an existing relationship; $100k went to new ones.
Where new relationships form · theme of each grantee’s first grant
First-time = a grantee’s first year in your filing window; renewed = funded in an earlier year too. As a portfolio matures the renewed share naturally climbs — once funded, an org stays “renewable” — so the signal is the years that buck it (a new-grantee intake wave). The earliest year is left-censored: relationships that predate the data read as “new.” Theme is the grantee’s IRS cause.
Backed again, and grew
- VUVanderbilt University Medical Center9× · 2017–2025 · $568k · revenue +120%
- RURush University Medical Center9× · 2017–2025 · $548k · revenue +51%
- BIBETH ISRAEL DEACONESS MEDICAL CENTER INC9× · 2017–2025 · $465k · revenue +82%
Funded once
- TSThe Salk Institute for Biological Studiesone grant, 2022 · $240k · revenue +12%
- NYNEW YORK UNIVERSITY SCHOOL OF MEDICINEone grant, 2024 · $180k
- MGMASS GENERAL BRIGHAM INCORPORATEDone grant, 2018 · $150k
Repeat = funded in two or more distinct years; growth and survival are read from each grantee’s own subsequent IRS filings.
The map has a center of gravity: the average direction from the rest of the sector toward the organizations the foundation funds — the shape of its giving. Scoring every nonprofit along that direction surfaces the ones that look most like the portfolio. These are the closest matchesthat aren’t grantees — a resemblance in what they say they do, not a recommendation.
University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…
Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.
Thomas jefferson university ("tju") is a comprehensive university with preeminence in transdisciplinary, experiential professional education, research and discovery, delivering exceptional value for the 21st century students with…
Our mission at the university of chicago medicine is to provide superior health care through rigorous research, innovative education, and comprehensive care and healing. in partnership with our colleagues, we pursue life-changing…
University health is an academic health center providing accessible, state-of-the-art quality healthcare to our community regardless of the ability to pay.
The central mission of the university of southern california is the development of human beings and society as a whole through the cultivation and enrichment of the human mind and spirit. the principal means by which our mission is…
Education, research, medical services and other public services.
For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…
Mass general brigham incorporated is developing an integrated health care delivery system throughout the region that offers patients a continuum of coordinated, high-quality care.
THE MASSACHUSETTS EYE AND EAR INFIRMARY ("THE INFIRMARY") IS A NOT-FOR-PROFIT TEACHING HOSPITAL CONDUCTING PATIENT CARE AND RESEARCH. THE INFIRMARY IS A TEACHING HOSPITAL OF HARVARD MEDICAL SCHOOL AND AN INTERNATIONAL CENTER FOR RESEARCH.…
Case Western Reserve University is an independent, research-oriented university with broadly based strengths in health, including medicine, nursing and dentistry; in engineering; in the arts and sciences; and in law, management and social…
Support of subsidiary tax-exempt healthcare, education and research organizations (see schedule o)
For reference, the grantee most central to the portfolio’s shape is The Medstar-Georgetown Medical Center Inc and the most unlike its peers is Movement Disorders Foundation. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
For each theme you fund, this compares how the sector’s money is shifting with how your own giving is shifting.
Sector change and giving change are each shown relative to their own range, growing (right) or shrinking (left); both normalized, so inflation isn’t mistaken for growth.
Your grantees are a median of 53 years old; the field is 16. You back the established end — and your money leans older still.
The field is 22% startups (under 5 years old) — 0% of your grantees by number, and just 0% of your money.
The orgs you fund almost never close — 2% lost their exemption, against 13% of the field you don’t fund.
Age = years since IRS exemption (a founding proxy). “Closed” = auto-revocation for 3 years of non-filing — a floor on closure, not proof, and bigger established orgs lapse least. Association, not causation.
54 grantees tracked through their own filings, 2017–2025.
Each one resolved to its own IRS returns and tracked year by year — your grant beside their revenue from every source. Association, dated; never a causal claim.
Counted here: distinct organizations you funded across 2017–2025, not grant rows in a single year — so this will not match the grant count on the cover. 54 of the 101 grantees resolved in that span have returns of their own we could reconcile; the rest are funded organizations whose filings we could not track year by year.
Where your money sits — by cause, then by grantee
Each org by its size and your share of it — top-left is where you’re load-bearing
Go grantee by grantee — a decade per org, and how each moved after you funded them
A decade per grantee — revenue shaded, your grants as bars, all rows on one timeline.
- Who funds Vanderbilt University Medical Center ↗
- Who funds Rush University Medical Center ↗
- Who funds BETH ISRAEL DEACONESS MEDICAL CENTER INC ↗
- Who funds THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK ↗
- Who funds Northwestern University ↗
- Who funds TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA ↗
- Who funds WASHINGTON UNIVERSITY ↗
- Who funds JOHNS HOPKINS UNIVERSITY ↗
- Who funds University of Miami ↗
- Who funds HENNEPIN HEALTHCARE RESEARCH INSTITUTE ↗
- Who funds OHIO STATE UNIVERSITY FOUNDATION ↗
- Who funds DUKE UNIVERSITY ↗
- Who funds MOVEMENT DISORDERS FOUNDATION ↗
- Who funds UNIVERSITY OF ROCHESTER ↗
- Who funds Emory University ↗
- Who funds The Salk Institute for Biological Studies ↗
- Who funds GEORGETOWN UNIVERSITY ↗
- Who funds Columbia University Health Care Inc ↗
- Who funds OCHSNER CLINIC FOUNDATION ↗
The grantmakers whose grantees overlap with yours far more than size alone predicts. Each orbits closer the stronger the alignment; the arcs between them show where they also fund each other. Here it reads as a tightly interlocked camp — most of these funders back each other's grantees too.
Open a dossier: American Cancer Society Inc · Muscular Dystrophy Association Inc · American Heart Association Inc · Cystic Fibrosis Foundation · Parkinson's Foundation Inc · The Children's Hospital of Philadelphia · Vanderbilt University Medical Center · Mayo Clinic · The Trustees of Columbia University in the City of New York · The Children's Oncology Group Foundation Inc · Amyotrophic Lateral Sclerosis Assn · Washington University
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. A research starting point: overlap is association, not proof of shared intent.
Government reliance of your grantees
Every dot is one organization Huntington's Disease Society of America Inc funds. Left–right is the share of its income from government; up–down is the share from you. Bigger dots raise more. Filter to federal or a single department — and drag the year to watch it move.
- Johns Hopkins University — 12% of income from government
- Beth Israel Deaconess Medical Center Inc — 6% of income from government
- University of Miami — 5% of income from government
- The University of Vermont Health Network — 2% of income from government
- The University of Vermont Medical Center — 1% of income from government
Government income is each org’s traced federal awards (USASpending — grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that your grant caused the public funding. Coverage is precision-first — a floor, not a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12–24 months.