Kentucky · Public charity
GLUT1 Deficiency Foundation Inc
The GLUT1 Deficiency Foundation is a parent-led patient advocacy organizatino dedicated to bringing help and hope to the GLUT1 Deficiency community through increased awareness, improved education, advocacy for patients and families, and support and funding for research.
- $149k
- Granted FY2025(still arriving)
- 2
- Grants FY2025
- 1
- Organizations funded FY2024
- 100%
- First-time grantees FY2024
- Median grant, FY2025
- $100,000
- Largest grant, FY2025
- $100,000
- Organizations funded a year
- 1 to 2
- FY2020 to FY2024
- States reached, FY2025
- 2
- Total assets, FY2025
- $358k
How open it is to new grantees
In FY2024, 100% of the organizations GLUT1 Deficiency Foundation Inc funded were first-time grantees, receiving 100% of its grant dollars.
New vs renewed · share of each year
In FY2024, 0% of grant dollars renewed an existing relationship; $86k went to new ones.
Where new relationships form · theme of each grantee’s first grant
How this is measured
The numbers by year
| Fiscal year | Organizations funded | To those organizations | First-time grantees |
|---|---|---|---|
| FY2025still arriving | 2 | $159k | 100% |
| FY2024 | 1 | $86k | 100% |
| FY2023 | 2 | $45k | 100% |
| FY2022 | 1 | $30k | 0% |
| FY2021 | 2 | $117k | 50% |
| FY2020 | 1 | $90k | n/a |
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2020 to 2025.
Top grantees
Largest recipients by total granted, FY2020 to FY2025, and the share of each one’s budget the grants supplied at peak.
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| The University of Texas Southwestern Medical Cente | $210,000 | 3 | n/a |
| Cornell University | $100,000 | 1 | 0% |
| University of Texas | $86,000 | 1 | n/a |
| Oregon Health & Science University Foundation | $58,560 | 1 | 0% |
| Trustees of Tufts College | $25,000 | 1 | 0% |
| Rady Children's Hospital San Diego | $20,000 | 1 | 0% |
Plus 1 recipient with no EIN on record ($27k), not named here.
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About GLUT1 Deficiency Foundation Inc
- How much does GLUT1 Deficiency Foundation Inc give?
- GLUT1 Deficiency Foundation Inc reported 2 grants totaling $149,342 in its FY2025 IRS filing. It funded between 1 and 2 organizations a year over FY2020 to FY2024.
- What does GLUT1 Deficiency Foundation Inc fund?
- By grant dollars over FY2020 to FY2025, its largest causes are Health (50%), Science & Tech (50%).
- Who are GLUT1 Deficiency Foundation Inc's largest grantees?
- By total granted over FY2020 to FY2025: The University of Texas Southwestern Medical Cente ($210k), Cornell University ($100k), University of Texas ($86k).
- Does GLUT1 Deficiency Foundation Inc fund new organizations?
- In FY2024, 100% of the organizations it funded were first-time grantees.
- Where is GLUT1 Deficiency Foundation Inc based?
- GLUT1 Deficiency Foundation Inc is based in KY.
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